Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for March 2024

B12 Manufacturing Process

I was reading a post about an Etsy shop offering injectable B12 doses so I decided to research where B12 is manufactured. I found this really interesting site...

I was reading a post about an Etsy shop offering injectable B12 doses so I decid...

MoKayD

•5 months ago

17 Replies

B12 available from Etsy.

Etsy are selling B12 vials....

charks

•5 months ago

30 Replies

Pernicious anaemia

Hi the result of my intrinsic factor came back positive and I start loading doses on Monday The results were written a little strangely though Intrinsic...

Hi the result of my intrinsic factor came back positive and I start loading dose...

mully

•5 months ago

8 Replies

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Reaction to B12 injection?

I have B12 jabs every 4 months, usually PA neuropathy flares up when it's due but this time it didn't. I felt ill about an hour after the jab, severely dizzy,...

I have B12 jabs every 4 months, usually PA neuropathy flares up when it's due bu...

Ix49

•5 months ago

7 Replies

Notes

This is my current system of keeping track of injections. When I first started and was experiencing severe symptoms including brain fog I took a piece of paper...

This is my current system of keeping track of injections. When I first started a...

WIZARD6787

•5 months ago

3 Replies

Reset - depleted

I talk about doing well after daily injections for 3 years. This is true. however I went to Italy, walked 9 hours a day, plus wine daily. The two things...

I talk about doing well after daily injections for 3 years. This is true. howe...

B12life

•5 months ago

39 Replies

Blood results

Hi all. Just had my blood test results back, which I’m told are all normal. Just thought I’d ask if anyone can confirm they are in fact normal, as I certainly...

Hi all. Just had my blood test results back, which I’m told are all normal. Jus...

MLJ2024

•5 months ago

12 Replies

Periodic need for more B12

I'd appreciate knowing your experiences about periodically recognising the need to up your B12 injections? My journey has lasted some years and after the...

I'd appreciate knowing your experiences about periodically recognising the need ...

Baggy8

•5 months ago

6 Replies

self injection

Where or how do I learn how to self -inject? Advice appreciated

36Hele

•5 months ago

7 Replies

NICE 2024 B12

Still trying to decipher the new guidelines. Does anyone know or had a : Cobasorb test? I've never heard of it . Name suggests it tests absorption of...

Still trying to decipher the new guidelines. Does anyone know or had a : Cobasor...

Nackapan

•5 months ago

15 Replies

Posting Advice….

Sorry not on topic but pertains to it. Am I able to post multiple photos in one post. I’ve tried but have only been able to post one photo per post. I’ve...

Sorry not on topic but pertains to it. Am I able to post multiple photos in on...

B12again

•5 months ago

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Pernicious Anemia treatment

Hi I am writing to share my recent health diagnosis and to seek your advice on a more efficient treatment approach. I am a 37-year-old man who has been...

Hi I am writing to share my recent health diagnosis and to seek your advice on...

merfi

•5 months ago

8 Replies

Love and B12

A little something I created. How love is so similar and soluble as B12 and they both must be applied consistently and often... I know silly. 😜 Injections...

A little something I created. How love is so similar and soluble as B12 and the...

Rexz

•5 months ago

17 Replies

Anaemia query

Is it at all possible to have some form of anaemia, even though blood results dont support that or are inconclusive? I havent felt well now for 4 years and...

Is it at all possible to have some form of anaemia, even though blood results do...

ValDee88

•5 months ago

7 Replies

Now guidelines

Looks like we'll be firing sling-shots at thick stone walls for a while longer. Perhaps one shutter is open a little on one high window. What's to be done now?...

Looks like we'll be firing sling-shots at thick stone walls for a while longer. ...

Orchard33

•5 months ago

18 Replies

B12 test results

I know I've been asking a lot of questions lately, trying to figure things out. 🤔 Here's another one!I've seen it commented before than once on injections...

I know I've been asking a lot of questions lately, trying to figure things out. ...

Suesue246

•5 months ago

5 Replies

Brain alterations with Chronic Fatigue

Hi all, I'm part of a chronic illness support group and they did a Zoom session on how to use telehealth visits for physical therapy . The physical therapist...

Hi all, I'm part of a chronic illness support group and they did a Zoom sessio...

Cobalt1312

•5 months ago

19 Replies

this is true?

I read on the net that Cyanocobalamin helps the physical condition, is it true? (I do pilates)

I read on the net that Cyanocobalamin helps the physical condition, is it true? ...

Ela23el

•5 months ago

4 Replies

where to get b12 injections to self administer?

hello, I am an American living in the UK. I was previously being treated in the USA for my pernicious anemia with once monthly, self injections. In the UK I...

hello, I am an American living in the UK. I was previously being treated in the ...

Popcornlover1

•5 months ago

20 Replies

ITV Evening News 6/3/24

I hear that the following is on ITV evening news. “Evening News on ITV will see Jimmy Norman share his story on ''how difficult it is'' to receive B12...

I hear that the following is on ITV evening news. “Evening News on ITV will se...

B12again

•5 months ago

7 Replies

Any Tips To Help With Post B12 Injection Affects?

Hi, I had my 2nd of 6 loading dose B12 injections this morning and I’m feeling it now.. I was so rough yesterday, which was the day after my 1st one, I’ve...

Hi, I had my 2nd of 6 loading dose B12 injections this morning and I’m feeling ...

Hidden

•5 months ago

2 Replies

Things are getting worse

So i started getting vitaminb12 shots (had a recording of 161 ) in Jan 2024.My doctor started giving me 3 shots in the first week then one shot a week for...

So i started getting vitaminb12 shots (had a recording of 161 ) in Jan 2024.My d...

Vongai

•5 months ago

10 Replies

folic acid

Is there a good resource showing the need for good folate levels alongside B12 injections? I’m on 4-weekly B12 injections but my latest serum folate blood...

Is there a good resource showing the need for good folate levels alongside B12 i...

Pa234aw

•5 months ago

8 Replies

New NICE Guidelines Now Published

Folks may already know this but see them here…. https://www.nice.org.uk/guidance/ng239/chapter/Recommendations

Folks may already know this but see them here…. https://www.nice.org.uk/guidan...

B12again

•5 months ago

14 Replies

Bleeding when injecting

Hi everyone, I have just done a IM in the outside upper thigh area which I always do, alternating legs I use. I have never had bleeding before until this...

Hi everyone, I have just done a IM in the outside upper thigh area which I alway...

Helliborous

•5 months ago

14 Replies

NICE guideline on B12 Deficiency diagnosis and monitoring in over 16s

The Vitamin B12 Deficiency Guideline in Over 16's has been published. What does this mean for those with Pernicious Anaemia whether formally...

The Vitamin B12 Deficiency Guideline in Over 16's has been published. What does...

PAScomms

•5 months ago

9 Replies

problems with loggin on.

Over the past year, I have had problems logging on, I am asked for password, give it and then told it is already in use. Dah! Try every way with email, etc....

Over the past year, I have had problems logging on, I am asked for password, giv...

islandlass

•5 months ago

3 Replies

New NICE guidelines

I have had a quick look at the new NICE guidelines. I cannot see anywhere where they advise on frequency of injections. It does state that if symptoms have not...

I have had a quick look at the new NICE guidelines. I cannot see anywhere where ...

BeachArt

•5 months ago

12 Replies

Private care

Hello all. I was due to have appt with CFS clinic/Endo last week. This was cancelled and I'm now waiting for more clinic dates to be released. I have a...

Hello all. I was due to have appt with CFS clinic/Endo last week. This was canc...

RedOne1

•5 months ago

1 Reply

Help! Have I messed up

I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the...

I have just had a telephone consultation with a GP hoping for help with the symp...

SpringerMom

•5 months ago

14 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2024

B12 Manufacturing Process

B12 available from Etsy.

Pernicious anaemia

Reaction to B12 injection?

Notes

Reset - depleted

Blood results

Periodic need for more B12

self injection

NICE 2024 B12

Posting Advice….

Pernicious Anemia treatment

Love and B12

Anaemia query

Now guidelines

B12 test results

Brain alterations with Chronic Fatigue

this is true?

where to get b12 injections to self administer?

ITV Evening News 6/3/24

Any Tips To Help With Post B12 Injection Affects?

Things are getting worse

folic acid

New NICE Guidelines Now Published

Bleeding when injecting

NICE guideline on B12 Deficiency diagnosis and monitoring in over 16s

problems with loggin on.

New NICE guidelines

Private care

Help! Have I messed up

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