B12 test results

[Suesue246]

I know I've been asking a lot of questions lately, trying to figure things out. 🤔 Here's another one!I've seen it commented before than once on injections levels should be over 1000 minimum in order for healing to happen.

I also know we are told not to get levels rechecked once on injections.

In November my g.p. retested levels despite me saying not to and they were 899.

Do we know if this is correct about levels needing to be over 1000 once on injections? Thanks if anyone knows.

[Narwhal10]

Hi Suesue246,

What symptoms did you have before injections ?

What symptoms do you have now ?

899 (ng/L) is just a random number on a computer screen. Your GP just wasted money and does not understand PA/B12D. It does not say what it happening at cellular level. You also have hypochlorrida so it is highly likely you have other essential nutrient deficiencies. These can contribute to a vast range of signs and symptoms.

If you did not consent to rechecking your B12 levels then it is the common law tort of battery. However, if you held out your arm for phlebotomist/nurse to take your blood that is implied consent.

Some people have their B12 levels erroneously rechecked and it is 2,000 ng/L or over. The report from the pathology laboratory states Has enough B12 stored in liver for 2 years. ( Does not require further injections ).

It is yet another fallacy - we cannot store B12.

Best wishes.

[Suesue246 in reply to Narwhal10]

Thank you. My initial symptom in 2005 was purely tiredness but I had a family history of P.A so it was checked. Around the same time I developed lots of heartburn and violent burping and after a few years congestion to nose and throat which ENT said was silent reflux, so it's been digestive and congestion symptoms and tiredness over the years. 2 and a half years ago I started with upper back ache and then hip pain and in the last few months hand pain . These are my daily aches. Then I get random aches in feet arms anywhere really but these are intermittent and not a big issue. A few months ago I started pins and needles in one arm and hand, mainly at night and this is now widespread pins and needles. The aches are really impacting on life. It's like a jigsaw puzzle trying to work out if and how I can improve, in the knowledge that if I do work things out it will be by myself and with help from people on here rather than the g.p. any suggestions for me to consider are always appreciated. 🙂

[wedgewood in reply to Narwhal10]

Narwhal , I now have definite proof that a B12 blood serum level test can be an inaccurate indication of the true amount of B12 . I had an NHS blood test in which my blood serum level was “ off the scale “ at over 2000 ng/L A private Medichecks blood test , taken 2 days after the NHS one , which included an ACTIVE b12 test , was not “off the scale ,” but was 150 pmo/L ( range for active B12 is 35.7 —188 pmo/L).

[Narwhal10 in reply to wedgewood]

Exactly wedgewood, proof.

There are so many things we do not need the ‘machines’ for. One doughnut offered me diazepam for the way I walked. They do not have adequate knowledge of my disease and it does not serve the purpose.

I do hope Suesue is taking a multivitamin and mineral. Plus, digestive enzymes. Gluten free guerillas on Healthunlocked can also be helpful for advice as those with coeliac disease can have multiple essential micronutrient deficiencies.

[Suesue246 in reply to Narwhal10]

Thank you. I'm taking folic acid and D3 with K2 as advised by the consultant. I've added magnesium. I'm thinking should I add b complex which many seem to or a multivitamin/mineral. The consultant suggested trying gluten free ( I'm not coeliac) so I've started that too. He suggested lactose free might be a good idea to try too but I've not gone down that route as yet.