Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for March 2024

Methylfolate dose for B12 injections

Whilst high dose folic acid is definitely helping me utilise my EOD injections, I think it’s also progressively not agreeing with me so I am going to try...

Whilst high dose folic acid is definitely helping me utilise my EOD injections, ...

MindfulSquirrel

•4 months ago

27 Replies

Crash after jab from different source?

I'm wondering if anyone has had issues with getting a jab from a different source. My husband normally does my jab (Pascoe 1500 hydroxo, was every 10 days but...

I'm wondering if anyone has had issues with getting a jab from a different sourc...

cdragin

•4 months ago

11 Replies

sons bloods

my 17 year old son has been very depressed, anxious and suicidal. He has vitiligo Here are his blood results. B12 =226 (201-914) folate =7 ( 3-20) TSH 2.73...

my 17 year old son has been very depressed, anxious and suicidal. He has vitilig...

Hectorsmum2

•4 months ago

25 Replies

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Preventative Medicine

UK paid £160 per patient for GP care 2022 That is no different really to many other countries So where is the problem Aside form al that Lets say a patient...

UK paid £160 per patient for GP care 2022 That is no different really to many o...

OldmanD

•4 months ago

19 Replies

Conundrum Gastrin

Hi everyone, does anyone have advice when trying to increase weight when diagnosed with Intestinal Metaplasia and Hyperplasia. I have been doing some research...

Hi everyone, does anyone have advice when trying to increase weight when diagnos...

Helliborous

•4 months ago

10 Replies

I've been thinking a lot about people's misdiagnoses........

We talk a lot about the vast number of people who have been misdiagnosed, who went on to self treat, and subsequently improved their health, and their quality...

We talk a lot about the vast number of people who have been misdiagnosed, who we...

BeachArt

•4 months ago

85 Replies

Just diagnosed. Does this explain my life? Especially my recent experiences?

For as long as I can remember, I have been suffering with various levels of depression and anxiety, lack of energy, poor sleep habits and headaches.Yet both...

For as long as I can remember, I have been suffering with various levels of depr...

Valid94

•5 months ago

29 Replies

Still no panpharma?

It seems there's a global drought of Hydroxocobalamin, according to New Zealand news sources....

It seems there's a global drought of Hydroxocobalamin, according to New Zealand ...

Pickle500

•5 months ago

24 Replies

ME/CFS article - Sound familiar?

Interesting article by George Monbiot in the Guardian. ME/CFS sufferers have been treated very similarly to B12 deficiency sufferers over the years. I think I...

Interesting article by George Monbiot in the Guardian. ME/CFS sufferers have bee...

Budsa

•5 months ago

31 Replies

Better Understanding

I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I...

I knew and expressed here that I was fearful of crashing this winter as I have s...

WIZARD6787

•5 months ago

23 Replies

B12 result after 6 months…

Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no...

Hi, So initially in October I was diagnosed with what they suspect to be pernic...

Nikkim236

•5 months ago

4 Replies

B12 injections

Hi,I've been diagnosed with PA since 2021. I was on loading doses, then 3 monthly. This didn't agree with me and I was exhausted so I was moved from 3 months...

Hi,I've been diagnosed with PA since 2021. I was on loading doses, then 3 monthl...

GranolaLover60

•5 months ago

5 Replies

support the Pernicious Anaemia Society

please help us if you can by making a donation, however small to Leanne's fantastic offer to run the Brighton Marathon for us to help raise awareness, improve...

please help us if you can by making a donation, however small to Leanne's fantas...

PAScomms

•5 months ago

10 Replies

B12 prescription cancelled by pharmacist

Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my...

Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the ti...

Willow404

•5 months ago

46 Replies

what does urine colour indicate?

Hi everyone. Just a quick question! I am on a cruise holiday at present and am SI 3 x 1.5 hydro b12 daily. My pee is a light lemon and clear so no sign of the...

Hi everyone. Just a quick question! I am on a cruise holiday at present and am S...

brenanddave

•5 months ago

19 Replies

Suspected Pernicious Anemia - what next?

Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found...

Hello, I am very glad to have found this forum as I have been researching B12D ...

Marlowekat

•5 months ago

14 Replies

folate dropping

I have been injecting since July 2023, thanks to you all, I knew to check my ferritin when I felt something else was off…since no doctor thought it necessary....

I have been injecting since July 2023, thanks to you all, I knew to check my fe...

MuppDog

•5 months ago

3 Replies

Adenosylcobalamin injections. Where can this be purchased??

Just wanting to know from anyone, where can I purchase injectable Adenosylcobalamin as I would like to trial this if I can find more improvement with my...

Just wanting to know from anyone, where can I purchase injectable Adenosylcobala...

GoneWithTheWind1972

•5 months ago

9 Replies

Extra doses!

Hi everyone, Out of interest, does anymore here who has B12 deficiency and pernicious anaemia, self adminster extra doses? The reason I ask, is for a long...

Hi everyone, Out of interest, does anymore here who has B12 deficiency and pern...

JOLLYDOLLY

•5 months ago

56 Replies

Daughter, still really not great and cannot get through to medics

Short one as , well, I am buggered. Brain not working , so here to pick brains. As per not really getting anywhere with Gp. They have sent me a form to...

Short one as , well, I am buggered. Brain not working , so here to pick brains...

Polo22

•5 months ago

14 Replies

Accessing Methylcobalamin ampoules UK

Hi everyone, can anyone help me. I do better injecting methylcobalamin. Does anyone know of anywhere that will supply UK. All help appreciated Xx

Hi everyone, can anyone help me. I do better injecting methylcobalamin. Does a...

Katherine1234

•5 months ago

60 Replies

Has anyone used or heard of Infared Light to heal, PA nerve damage

Hi Family, Has anyone used or heard of Infared Light to heal and shorten nerve healing time, in PA or B12 Deficiency? I found this Video on YouTube:...

Hi Family, Has anyone used or heard of Infared Light to heal and shorten nerve ...

RisingOne

•5 months ago

28 Replies

Apohealth Shipping Cist Doubled again

Hi all aghhh!!! Just ordered more B12 and shipping was €20 last month and now €38 😭😭😭😭 🤗🤗🤗

Hi all aghhh!!! Just ordered more B12 and shipping was €20 last month and now €...

Wwwdot

•5 months ago

11 Replies

Advice from the University of sussex on how to inject B12.

https://www.unimed.co.uk/wp-content/uploads/2020/05/B12-self-injecting.pdf

charks

•5 months ago

4 Replies

Hydroxcobalamin injectable medication

There is a shortage in USA. How can I order Hydroxcobalamin in another country to have delivered to address in USA? Do I need a prescription? Thanks in...

There is a shortage in USA. How can I order Hydroxcobalamin in another country t...

Kitty30000

•5 months ago

10 Replies

Feeling weird

Hi on the 6th I had a loading dose of b12 although. My doctor said I didn't need it as I had a reading for of 2000 Buy since having it a feel very jittery...

Hi on the 6th I had a loading dose of b12 although. My doctor said I didn't need...

gpw61

•5 months ago

12 Replies

Error in Design

I experienced successful results of a 12 day trial of 1.5 mg of adenosylcobalamin and 1.5 mg of methylcobalamin 5 times a day including setting an alarm and...

I experienced successful results of a 12 day trial of 1.5 mg of adenosylcobalam...

WIZARD6787

•5 months ago

8 Replies

For those taking Vit D supplements

I happen to take Vit D3 supplements and I presume many others on this forum do also. I knew about the adverse affects of taking too much Vit D3. So I do not...

I happen to take Vit D3 supplements and I presume many others on this forum do a...

Rexz

•5 months ago

75 Replies

I just came across this book

on amazon https://prnt.sc/NrwOje4JswYj has anyone of you read it? Is it worth buying or are Dr Chandy and the other one better? I'd love your input before...

on amazon https://prnt.sc/NrwOje4JswYj has anyone of you read it? Is it worth ...

totallyFrustrated

•5 months ago

11 Replies

B12 Frequency Research

Hi All The frequency of B12 dosing is a regular topic so I thought I would share this in a post if it’s own. Three months ago I revisited "What you need to...

Hi All The frequency of B12 dosing is a regular topic so I thought I would shar...

Wwwdot

•5 months ago

91 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2024

Methylfolate dose for B12 injections

Crash after jab from different source?

sons bloods

Preventative Medicine

Conundrum Gastrin

I've been thinking a lot about people's misdiagnoses........

Just diagnosed. Does this explain my life? Especially my recent experiences?

Still no panpharma?

ME/CFS article - Sound familiar?

Better Understanding

B12 result after 6 months…

B12 injections

support the Pernicious Anaemia Society

B12 prescription cancelled by pharmacist

what does urine colour indicate?

Suspected Pernicious Anemia - what next?

folate dropping

Adenosylcobalamin injections. Where can this be purchased??

Extra doses!

Daughter, still really not great and cannot get through to medics

Accessing Methylcobalamin ampoules UK

Has anyone used or heard of Infared Light to heal, PA nerve damage

Apohealth Shipping Cist Doubled again

Advice from the University of sussex on how to inject B12.

Hydroxcobalamin injectable medication

Feeling weird

Error in Design

For those taking Vit D supplements

I just came across this book

B12 Frequency Research

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