New NICE Guidelines Now Published

[B12again]

Folks may already know this but see them here….

nice.org.uk/guidance/ng239/...

[mobyjoby]

Does this bit mean they agree that frequency can be more often than 2 monthly if symptoms return.Or that frequency can be increased but only as far as 2 monthly?

Photo of a section of the new b12 guidelines

[B12again in reply to mobyjoby]

You can read the PAS statement concerning the guidelines here: bit.ly/PASstatement

[VellBlue in reply to mobyjoby]

Hey Mobyjoby, where is this in the guidelines?

[helvella in reply to VellBlue]

If you download the guidelines as a PDF, you can easily search it.

Page 52

[VellBlue in reply to helvella]

Thanks, so towards the end of the 'Rationale and Impact' section of the website: nice.org.uk/guidance/ng239/...

[mobyjoby in reply to VellBlue]

I clicked through this link in the main guidelines ( pg 26) and my screenshot is from the document that opens.

Screenshot b12 guidelines

[VellBlue in reply to mobyjoby]

thanks, found it, page 16.

It definitely seems to be saying the frequency variation can be 2-3 monthly, rather than anything more frequent.

[jaybirdxNHM]

It does say injections can be bought over the counter. When,??? really,????

[helvella in reply to jaybirdxNHM]

It says:

Over-the-counter preparations

Vitamin B12 supplements (including sublingual vitamin B12 tablets and multivitamin

supplements containing the vitamin), injections or transdermal patches that can be

obtained without a prescription (for example, in a pharmacy or supermarket, or online).

Which requires extremely careful reading by an informed person to realise that the "injections" are only purchasable "online" and even then, only from places outwith the UK.

[Dancer57]

Hooray!!! They took the publishing date off on the 4th March and put TBC!!!

Thanks for the update.

[HeartyGilly]

I have read them. Do they actually change anything? I don’t think they do

[Midnight_Voice in reply to HeartyGilly]

Yes. The PAS is going to have to change its name to the AGS 😀

[sanstarr]

Sad to see the importance of pernicious anemia not being stressed enough but, at least its a step forward.

[Cherylclaire Forum Support in reply to sanstarr]

For those with no diagnosis, no given cause for their B12 deficiency before getting B12 injections (or self-injecting), this is probably of little importance now. Those who got a diagnosis of functional B12 deficiency will be similarly disadvantaged, since this condition has not been mentioned.

Younger people also seem to have gone unnoticed. There is certainly a need for GPs to have guidance about the safe and effective treatment of children with B12 deficiency.

Much-needed clearer pathways for those who have depleted B12 due to using nitrous oxide - but what if they are younger than 16 ? Is that a likely situation ?

I think a lot of opportunities presented themselves, during discussions and draft meetings, to seek out real answers to the problems we face - but the resulting guidelines seem to have not quite gone that far.

I'm sure the PAS are almost as disappointed as I am.