Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for March 2024

Update on changes to notifications font & colour

Hi to all who are struggling with the new blue colour for notifications... a reply from the site admin:-"Thank you for bringing this to our attention. We...

Hi to all who are struggling with the new blue colour for notifications... a rep...

Myoldcat

•5 months ago

4 Replies

Increased symptoms after injections.

I'm still trying to get my head around everything and I have a memory like a sieve regarding what I've read to date...I always have had so that's not...

I'm still trying to get my head around everything and I have a memory like a sie...

Suesue246

•5 months ago

15 Replies

Good Supplier Of Folate 🇬🇧

Any recommendations for 5mg supplier of folate please?

B12again

•5 months ago

14 Replies

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Hidden Illness, a poem in anticipation of tomorrow's guidelines

In the crowded margins of society we live with silent sickness, ailing, slowly dying. With this illness there is no absent limb, cardiac arrest or stroke,...

In the crowded margins of society we live with silent sickness, ailing, slowly ...

Orchard33

•5 months ago

27 Replies

help please

Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’s in the family ,and low folate , I’d had the basic B12 bloods done they said...

Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’...

Windyway

•5 months ago

8 Replies

B12 Injection Side Effects

Hi! I had my first of 6 B12 injection yesterday and it’s totally floored me. It’s like I’ve been given a sleeping tablet I feel so groggy and spaced out, sick...

Hi! I had my first of 6 B12 injection yesterday and it’s totally floored me. It’...

Hidden

•5 months ago

22 Replies

Uncooperative GP

My husband died in summer 2022 in hospital. At the time I was having very successful B12 loading injections for anaemia but after his death I was overwhelmed...

My husband died in summer 2022 in hospital. At the time I was having very succ...

Eulophia47

•5 months ago

7 Replies

Curious why GPs are so reticent to support B12 symptoms

Having struggled with sudden onset of strange symptoms last April ('buzzing' bottom extending to full leg, extreme fatigue, numbness in legs and no pain in...

Having struggled with sudden onset of strange symptoms last April ('buzzing' bot...

Cotswolds23

•5 months ago

39 Replies

BD microfine integral needle and syringe. 199 surplus to requirements.PM me if anyone wants them

Got these for my son to inject B12 but he prefers the separate needle and syringe. Understandably Amazon don’t want them back

Got these for my son to inject B12 but he prefers the separate needle and syring...

Noelnoel

•5 months ago

2 Replies

Draft NICE B12?

Hi everyone, I was checking the NICE site for B12 guidelines in anticipation of Wednesday’s publication and noticed that the release date has been removed and...

Hi everyone, I was checking the NICE site for B12 guidelines in anticipation of ...

RoseFlowerDew

•5 months ago

5 Replies

Winter Down Turn

I experienced a slowing of healing during the winter months. The reasons are not definitively knowable. This seems to be on the wane. Factors are less light,...

I experienced a slowing of healing during the winter months. The reasons are not...

WIZARD6787

•5 months ago

2 Replies

Long Covid, B12 and Iron Deficiency

From our friend Mixteca A long listen - so make a brew, or two! 👂...

Wwwdot

•5 months ago

6 Replies

Zentiva date 03/26

Use by date for Zentiva cyano just arrived this morning I not due again until 6th but will update if I remember. . . . .

Use by date for Zentiva cyano just arrived this morning I not due again until 6...

OldmanD

•5 months ago

3 Replies

B12 ??

Hi does anyone else have episodes of lightheadedness, reaching out for an object to miss it or keep dropping things. Also miss judging space, like walking...

Hi does anyone else have episodes of lightheadedness, reaching out for an objec...

LorraineQ

•5 months ago

5 Replies

Clueless and looking for advice!

Hi, I was recommended to post here from the thyroid uk group. I did a medichecks test last week, and my vitamin levels were as follows. I have also included...

Hi, I was recommended to post here from the thyroid uk group. I did a medichecks...

KTEO

•5 months ago

10 Replies

Platform

I'm having difficulty using the helpline.It's all at the footer of the posts. I've not done anything to change the colour of the 'likes ' 'responses ' After...

I'm having difficulty using the helpline.It's all at the footer of the posts. I'...

Nackapan

•5 months ago

7 Replies

Wenvoegolf

Hi I'm not sure if anyone can help but my wife has pernicious anemia and she is thinking of self injecting but I have found a site for needless injection...

Hi I'm not sure if anyone can help but my wife has pernicious anemia and she is ...

Wenvoegolf

•5 months ago

1 Reply

Help Ordering B12 from Germany, pls

I need to order B12 injection so gone to VersandApo site, gone to checkout but where it says 'Address should be in Germany' what do I need to do for delivery...

I need to order B12 injection so gone to VersandApo site, gone to checkout but w...

JMN2017

•5 months ago

10 Replies

derealisation

does anyone know what causes this feeling? It’s like when I’m talking with people I’m ok but when I’m in familiar surroundings is large spaces it’s like the...

does anyone know what causes this feeling? It’s like when I’m talking with peop...

130396

•5 months ago

37 Replies

Breast and pelvis tenderness after injecting

Hi All, I am new to the forum and grateful for all the info I have received so far. My query is: do any of you experience breast tenderness and lower abdomen/...

Hi All, I am new to the forum and grateful for all the info I have received so ...

Jjjmmm

•5 months ago

3 Replies

A revealing Nightmare

Hi Guys I woke up out of sorts this morning having had a revealing nightmare last night. In my dream, I was supposed to be attending a meeting but couldn’t...

Hi Guys I woke up out of sorts this morning having had a revealing nightmare la...

Wwwdot

•5 months ago

46 Replies

meganilbedose in Spain 10 mg or 1 mg , and 1ml?

I have been using hydroxycobalamin Alternova 1mg/1ml but as my usual pharmacy is out of stock .now I am visiting Spain Barcelona and I am looking to buy...

I have been using hydroxycobalamin Alternova 1mg/1ml but as my usual pharmacy i...

MiaMavlankar

•5 months ago

5 Replies

0.9 saline 1 liter IV infusion.

Last year I asked on the forum if anyone knew where I could get a saline infusion. Come to find out that was heretical and not done in the UK. 🙂 In the USA...

Last year I asked on the forum if anyone knew where I could get a saline infusi...

WIZARD6787

•5 months ago

12 Replies

B12 jabs

Hi I've had in December top up jabs for b12 because it was 184 tested in late February and the level is 2000 anyone else had this or is it normal

Hi I've had in December top up jabs for b12 because it was 184 tested in late...

gpw61

•5 months ago

12 Replies

where to buy syringes

I’m using a 25 gauge 1 inch needle for my b12 injections. Where do you all buy your syringes?

I’m using a 25 gauge 1 inch needle for my b12 injections. Where do you all buy y...

Dawn1015

•5 months ago

13 Replies

IFAB test

When should the IFAB test be done please? I've read somewhere that it should be before starting treatment? Mine was immediately after my 5th losing dose. Could...

When should the IFAB test be done please? I've read somewhere that it should be ...

UpsyDaisy2

•5 months ago

15 Replies

Raised MMA result

Hi everyone Have written before about my low active B12 results(medichecks). Latest one had been 36.7 (37.5~188). My previous 3 were slowly dropping from...

Hi everyone Have written before about my low active B12 results(medichecks). ...

Pomart

•5 months ago

29 Replies

Share your Story

Hello good people, The Patient Revolution is currently reaching out to patients across the globe to ask people for their stories of industrialized health...

Hello good people, The Patient Revolution is currently reaching out to patie...

Cobalt1312

•5 months ago

2 Replies

B12 Injections and Folic Acid question

Hi! I am starting my course of B12 injections on Monday and my GP also gave me a prescription for folic acid tablets too but said not to start them until my...

Hi! I am starting my course of B12 injections on Monday and my GP also gave me a...

Hidden

•5 months ago

3 Replies

Anyone else had this?

Hi everyone I am due my 10 weekly jab next week. Life has been hectic recently so I accept being really exhausted but I have come out in a very itchy rash on...

Hi everyone I am due my 10 weekly jab next week. Life has been hectic recently ...

Mrsmr

•5 months ago

22 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2024

Update on changes to notifications font & colour

Increased symptoms after injections.

Good Supplier Of Folate 🇬🇧

Hidden Illness, a poem in anticipation of tomorrow's guidelines

help please

B12 Injection Side Effects

Uncooperative GP

Curious why GPs are so reticent to support B12 symptoms

BD microfine integral needle and syringe. 199 surplus to requirements.PM me if anyone wants them

Draft NICE B12?

Winter Down Turn

Long Covid, B12 and Iron Deficiency

Zentiva date 03/26

B12 ??

Clueless and looking for advice!

Platform

Wenvoegolf

Help Ordering B12 from Germany, pls

derealisation

Breast and pelvis tenderness after injecting

A revealing Nightmare

meganilbedose in Spain 10 mg or 1 mg , and 1ml?

0.9 saline 1 liter IV infusion.

B12 jabs

where to buy syringes

IFAB test

Raised MMA result

Share your Story

B12 Injections and Folic Acid question

Anyone else had this?

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