Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for October 2023

Am I going insane?

Hmm so I’m just wondering, do those of you with PA that self inject regularly still suffer extreme fatigue and body aches and pains or other symptoms? I...

Hmm so I’m just wondering, do those of you with PA that self inject regularly st...

Mandymoos8

•7 months ago

34 Replies

GIFFGAFF community support

The Pernicious Anaemia Society has been kindly nominated by two of our members in the GiffGaff Community Support Charity Nominations for 2023. If you use...

The Pernicious Anaemia Society has been kindly nominated by two of our members i...

PAScomms

•7 months ago

Be the first to reply

Exercise for this winter.

I needed to design a new exercise method for this winter. The 5 weeks of 5K on the week-end needed to be abandoned due to needing to get more sun energy. I...

I needed to design a new exercise method for this winter. The 5 weeks of 5K on t...

WIZARD6787

•7 months ago

11 Replies

Want to take advantage of all our features? Just log in!

Hi everyone,

Hi everyone, has anyone any experience with Symprove , ? thanks

Helliborous

•7 months ago

3 Replies

Eye problems

Ok So, I woke up this morning with a fairly large posey-shaped vitreous floater along with a flashing light that darts across the same eye when I move my head...

Ok So, I woke up this morning with a fairly large posey-shaped vitreous floater ...

brenanddave

•7 months ago

17 Replies

anxiety/holding down jobs

Hi brothers and sisters., i got diagnosed as having pernicious 2 and half years ago - ive always had anxiety - more so in the workplace, ive only worked 4...

Hi brothers and sisters., i got diagnosed as having pernicious 2 and half yea...

dolphin66stag

•7 months ago

16 Replies

Question about mood

does anyone else get depression like symptoms, anxiety like symptoms and just an overall flat affect as you wait the month out for your next injection? I was...

does anyone else get depression like symptoms, anxiety like symptoms and just an...

Schpsych2414

•7 months ago

8 Replies

North of Tyne, Gateshead and North Cumbria guidelines - reviewed June 2023

Hi All, I noticed these guidelines had been reviewed. I'm not sure what changes have been made....

Hi All, I noticed these guidelines had been reviewed. I'm not sure what changes...

Sleepybunny

•7 months ago

2 Replies

Appointment with my longevity physician was canceled.

They died. Sorry I could not help myself.

WIZARD6787

•7 months ago

6 Replies

Persistence pays off

Today I finally got access to my detailed coded record online from the NHS. I have been asking for this for some time. I believe there is a deadline for access...

Today I finally got access to my detailed coded record online from the NHS. I ha...

Permexpi

•7 months ago

9 Replies

Statins and B12 deficiency

During a Lung Health check recently, lungs were fine but I was found to have coronary artery calcification- which meant that I had to see a GP. I do not know...

During a Lung Health check recently, lungs were fine but I was found to have cor...

Cherylclaire

Forum Support•7 months ago

61 Replies

Methylmalonic Acid Test

Can anyone tell me whether the MMA test can be obtained through the NHS? I saw a GP yesterday (I am still dizzy following falling backwards again a week ago)...

Can anyone tell me whether the MMA test can be obtained through the NHS? I saw ...

LynneG

•7 months ago

12 Replies

Use-by dates for B12

I posted recently about a three month decline and symptom return as my B12 batch approached its December expiry date. When I tealised what the problem might be...

I posted recently about a three month decline and symptom return as my B12 batch...

Orchard33

•7 months ago

16 Replies

Forgive the dozy question but...

I may have to wait a week or so before my injections start and at the moment they're only going to be once every three months. No loading schedule has been...

I may have to wait a week or so before my injections start and at the moment the...

Onefish

•7 months ago

21 Replies

Writing a lot here.

I am aware I am writing a lot here. I am also aware others are doing the important work of disseminating information to those who are suffering and I am not...

I am aware I am writing a lot here. I am also aware others are doing the importa...

WIZARD6787

•7 months ago

13 Replies

Sweating

Hi also does anyone sweat at night after injecting B12

Mozza127

•7 months ago

4 Replies

Newbie

Hello everyone 😀 I have read many posts on here already and have found out so much useful information. I have had symptoms of PA for around 10 years. The...

Hello everyone 😀 I have read many posts on here already and have found out so ...

Doppydoo

•7 months ago

21 Replies

Needles , finest, shortest

There was discussion about needle gauges and lengths which I saved to go back to it. No surprises then that I now can't find it to see which to buy. I...

There was discussion about needle gauges and lengths which I saved to go back to...

Polo22

•7 months ago

21 Replies

Air bubbles help

Sorry to be a pain I feel like im driving everyone nuts, we've drawn the liquid from ampoule and got a massive air bubble we can't get out, the more we try to...

Sorry to be a pain I feel like im driving everyone nuts, we've drawn the liquid ...

Nic878

•7 months ago

12 Replies

Evaluating

This is written from the perspective of having experienced life long B12 deficiency and injecting 5+- times a day consistently for the last 5 weeks. 1 mg...

This is written from the perspective of having experienced life long B12 deficie...

WIZARD6787

•7 months ago

2 Replies

Sent Cyano instead of Hydroxocobalin

Hallo I must have ordered Cyno instead of Hydroxocobalin My question is it ok to inject the Cyano .I am a bit apprehensive about doing it but I don’t want to...

Hallo I must have ordered Cyno instead of Hydroxocobalin My question is it ok t...

Chocolate41

•7 months ago

17 Replies

Antonmove 30G x 6mm steel pipe

Hi are these the correct needles everyone is using for injecting into tummy fat they seem so small which is a good thing obviously:)

Hi are these the correct needles everyone is using for injecting into tummy fat ...

Nic878

•7 months ago

2 Replies

Clunking, Fading and Sleep

This is written from the perspective of having experienced life long B12 deficiency and injecting 5+- times a day consistently for the last 5 weeks. 1 mg...

This is written from the perspective of having experienced life long B12 deficie...

WIZARD6787

•7 months ago

22 Replies

Found some research from the 1960s re alternative to injecting B12... Warning! Probably too much info before breakfast - Suppositories!

I am really struggling with injections no matter where, how and with help or not. Seriously interested in alternatives that could help....

I am really struggling with injections no matter where, how and with help or not...

f1ddle_st1cks

•7 months ago

5 Replies

Manufacturer recommendations

I’ve just read and compared the manufacturer instructions for Hevert and Pascoe. Hevert - first few weeks 1ml (500mcg) twice weekly followed by 100mcg per...

I’ve just read and compared the manufacturer instructions for Hevert and Pascoe....

MorningMist

•7 months ago

12 Replies

New to SC injections

I was looking for a video after buying the 31g 6mm needles as kindly recommended on here and found there to be information regarding different angles when...

I was looking for a video after buying the 31g 6mm needles as kindly recommended...

pinkpaddleboarder

•7 months ago

19 Replies

subcutaneous injection

I know some people have been questioning if subcutaneous injection is as good as IM and as i happened to come across the following i thought I would post link...

I know some people have been questioning if subcutaneous injection is as good as...

Dragonfly1962

•7 months ago

9 Replies

Following on,,SAR saga,

So following on from previous post https://healthunlocked.com/pasoc/posts/150085887/how-long-does-gp-surgery-have-to-respond-to-a-sar called into surgery...

So following on from previous post https://healthunlocked.com/pasoc/posts/150...

Polo22

•7 months ago

9 Replies

New Self Injecting Device ?

Hi all Does anyone know anything about an injection device that doesn’t need you to inject a needle? It may be Australian? Thank you in advance folks!...

Hi all Does anyone know anything about an injection device that doesn’t need yo...

Wwwdot

•7 months ago

16 Replies

The cause of my B12 deficiency.

The most likely reason for my B12 deficiency is my body uses B12 faster than is normal for reasons unknown and unstudied other than me as far as I know. This...

The most likely reason for my B12 deficiency is my body uses B12 faster than is ...

WIZARD6787

•7 months ago

13 Replies

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(76)

All things Pernicious Anaemia Society(76)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2023

Am I going insane?

GIFFGAFF community support

Exercise for this winter.

Hi everyone,

Eye problems

anxiety/holding down jobs

Question about mood

North of Tyne, Gateshead and North Cumbria guidelines - reviewed June 2023

Appointment with my longevity physician was canceled.

Persistence pays off

Statins and B12 deficiency

Methylmalonic Acid Test

Use-by dates for B12

Forgive the dozy question but...

Writing a lot here.

Sweating

Newbie

Needles , finest, shortest

Air bubbles help

Evaluating

Sent Cyano instead of Hydroxocobalin

Antonmove 30G x 6mm steel pipe

Clunking, Fading and Sleep

Found some research from the 1960s re alternative to injecting B12... Warning! Probably too much info before breakfast - Suppositories!

Manufacturer recommendations

New to SC injections

subcutaneous injection

Following on,,SAR saga,

New Self Injecting Device ?

The cause of my B12 deficiency.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive