Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,101 members • 23,255 posts

All posts for October 2023

Blood result and raised MCV

Hi everyone. I had a recent blood test as I've been supplementing with gentle iron, general A-Z vits and B12 since the spring. I particularly wanted to check...

Hi everyone. I had a recent blood test as I've been supplementing with gentle ir...

KBird01

•7 months ago

2 Replies

Metformin alternatives

Hi all,Can anyone tell me what the recommend alternative drug for type2 diabetes is, other than Metformin. I'm recently diagnosed T2 diabetic and doctor wants...

Hi all,Can anyone tell me what the recommend alternative drug for type2 diabetes...

doityourself

•7 months ago

11 Replies

My Shadow...

Last year I was in this writers group and we were asked to write a description of our disease as a character. We were given 15 minutes and I thought and...

Last year I was in this writers group and we were asked to write a description o...

Rexz

•7 months ago

38 Replies

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one last question ( hopefully)

I have finally managed to get an appointment with my GP where I hope to convince him to give me B12 injections more often that once every 8 weeks and I...

I have finally managed to get an appointment with my GP where I hope to conv...

totallyFrustrated

•7 months ago

11 Replies

How Yoghurt MAY Help

The gut microbiome is poorly understood by the medical profession. However, dieticians, functional nutritionist/practitioners do. I know Technoid takes a keen...

The gut microbiome is poorly understood by the medical profession. However, diet...

Narwhal10

•7 months ago

15 Replies

Can anyone help explain what

hi I just received my blood test results back which all came back normal. I was expecting my homocysteine to be higher as I had stopped b12 twice daily and...

hi I just received my blood test results back which all came back normal. I was ...

brenanddave

•7 months ago

10 Replies

Y'all did it again.

First the term mucusy came to me on this forum I do not know from who. It resonated so I posted about it. Regenallotment shared he or she had a positive...

First the term mucusy came to me on this forum I do not know from who. It resona...

WIZARD6787

•7 months ago

6 Replies

Import duty / tax payment

Hi, I've just ordered from apohealth last week, and now received an email from DHL asking for import duty/tax payment of £86.55 for my shipment from...

Hi, I've just ordered from apohealth last week, and now received an email from D...

VMITCHELL78

•7 months ago

19 Replies

Trial with new exercise method.

With injections of 1mg of both hydroxocabalamin and methyelcobalamin with 6mg of Adenocabalamin 4 times a day along with my oral supplements I was able to...

With injections of 1mg of both hydroxocabalamin and methyelcobalamin with 6mg of...

WIZARD6787

•7 months ago

9 Replies

Looking for clarity on the best type of injectable B12 please

Information seems to be a bit muddled. I’m looking for the most natural and bioavailable please From what I read, cyanocobalamin isn’t the...

Information seems to be a bit muddled. I’m looking for the most natural and bi...

Noelnoel

•7 months ago

18 Replies

Hydroxo & Methyl

I’ve been on hydroxo injections for around 2 years. Recovery is very slow. I’ve got hold of 10 vials of methylcobalamin. Should inject methyl every day and...

I’ve been on hydroxo injections for around 2 years. Recovery is very slow. I’v...

qwertystar

•7 months ago

4 Replies

Helpful book.

I have been reading this excellent book which explains in simple terms most of the things people need to know about PA. Well worth a read by those with PA and...

I have been reading this excellent book which explains in simple terms most of t...

Bellabab

•7 months ago

4 Replies

Can B12 levels fluctuate?

Hi, Can B12 levels fluctuate? I have been having a number of B12 related symptoms, took supplements and felt better. I stopped supplements on the 18th June &...

Hi, Can B12 levels fluctuate? I have been having a number of B12 related sympt...

Ian232

•7 months ago

1 Reply

Get From Medisave + Video Description of B12D

I have just started SI, IM but going SC. Apart from 6mm needles at Amazon, you can get everything from Medisave: 1.5”x 21G, green needles, 100 @ £3.21+vat for...

I have just started SI, IM but going SC. Apart from 6mm needles at Amazon, you ...

B12again

•7 months ago

7 Replies

antibodies

Is it possible to have antibodies to parietal cells but not to intrinsic factor? I have no intrinsic factor.

Is it possible to have antibodies to parietal cells but not to intrinsic factor...

Sissiotto

•7 months ago

13 Replies

Dr Amir Khan post about Pernicious Anaemia

It might be of interest that Dr Amir Khan has done one of his (usually excellent) "Let's talk about....." posts about Pernicious Anaemia on his Instagram...

It might be of interest that Dr Amir Khan has done one of his (usually excellent...

eclilley

•8 months ago

1 Reply

B12 made symptoms go away

Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I had fatigue, myclonic jerks especially while sleeping which woke me up and...

Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I ...

MEguy

•8 months ago

13 Replies

Getting there, but slowly

More blood tests back now but still don't have all the figures. Serum immunoglobulins all normal Coeliac screen - negative Ferritin 197 (range 13-150)...

More blood tests back now but still don't have all the figures. Serum immunoglo...

Onefish

•8 months ago

5 Replies

Functional B12 deficiency

Hi, I have been around a long time and read every day. I have a hard time understanding what a functional deficiency mean. In my case just a few injections...

Hi, I have been around a long time and read every day. I have a hard time unde...

EiCa

•8 months ago

13 Replies

GP call

hi all 🥰 All of 11 mins discussing my blood results with GP - (Bloods) serum B12 221ng/L (<178) B12 active 49.2 pmol/L (37.5 - 188) NICE guidelines suggest...

hi all 🥰 All of 11 mins discussing my blood results with GP - (Bloods) serum B...

Doris11

•8 months ago

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Methylcobalamin vs Hydroxocobalamin ?

Does anyone else find they do better on methylcobalamin than hydroxocobalamin? I've done some major googling but not been able to find out much and would...

Does anyone else find they do better on methylcobalamin than hydroxocobalamin? ...

pipple

•8 months ago

13 Replies

advice please

recently been advised that my B12 is normal and waiting to see a neurologist 23 weeks waiting list I was on injections until March and everything was fine I...

recently been advised that my B12 is normal and waiting to see a neurologist 23 ...

Imcn1960

•8 months ago

36 Replies

Functional B12 deficiency question

Hi, is anyone diagnosed with functional B12 deficiency here? If so, could you tell me if you have B12 injections, how long does it take to feel any positive...

Hi, is anyone diagnosed with functional B12 deficiency here? If so, could you te...

Zmalp

•8 months ago

40 Replies

Slippery elm for gastritis

Hi , has anyone tried slippery elm for a stomach flare up because of PA

Helliborous

•8 months ago

6 Replies

NICE guidelines

Just had someone at my surgery call to say I haven’t had b12 for years (needless to say untrue) and so cannot receive my usual injection. I have explained that...

Just had someone at my surgery call to say I haven’t had b12 for years (needless...

RoseFlowerDew

•8 months ago

4 Replies

Doctor has asked to see me.......

I have been SI'ing for 6½ years now. I get some B12 on prescription, but just one a month. I buy the rest myself, and SI every 3 days. I put in my prescription...

I have been SI'ing for 6½ years now. I get some B12 on prescription, but just on...

BeachArt

•8 months ago

31 Replies

Bloating

What's the score with bloating and bowels with little or to much b12

Mozza127

•8 months ago

1 Reply

injections

please an advise. Are subcutaneous injections as effective as intra muscular.

Sissiotto

•8 months ago

24 Replies

B12 self injection

So we ordered some panpharma b12 injections which arrived yesterday. My partner has a b12 level of 123 with neurological symtoms and gp refuses to treat. I...

So we ordered some panpharma b12 injections which arrived yesterday. My partner ...

Nic878

•8 months ago

28 Replies

Intrinsic factor antibody

I'm posting on here as I been advised to. I've just been back to my GP because I had a blood test done the other week for intrinsic factor antibody. I had a...

I'm posting on here as I been advised to. I've just been back to my GP because I...

suzybear

•8 months ago

14 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(77)

All things Pernicious Anaemia Society(77)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2023

Blood result and raised MCV

Metformin alternatives

My Shadow...

one last question ( hopefully)

How Yoghurt MAY Help

Can anyone help explain what

Y'all did it again.

Import duty / tax payment

Trial with new exercise method.

Looking for clarity on the best type of injectable B12 please

Hydroxo & Methyl

Helpful book.

Can B12 levels fluctuate?

Get From Medisave + Video Description of B12D

antibodies

Dr Amir Khan post about Pernicious Anaemia

B12 made symptoms go away

Getting there, but slowly

Functional B12 deficiency

GP call

Methylcobalamin vs Hydroxocobalamin ?

advice please

Functional B12 deficiency question

Slippery elm for gastritis

NICE guidelines

Doctor has asked to see me.......

Bloating

injections

B12 self injection

Intrinsic factor antibody

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive