Meds and PA: I totally see the... - Pernicious Anaemi...

Pernicious Anaemia Society

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Meds and PA

brenanddave profile image
4 Replies

I totally see the influence of big pharmaceutical companies' involvement in the manipulation and control of how diseases like this are dealt with. No money in vitamins! My previous doctor didn't want me to have regular b12 to treat my PA even though he reiterated the fact it was harmless, but prescribed me 300 gabapentin!. and told me I could take up to 3600mg of those aahhh!!! He went on to write to a Neurologist to ask him to state how many b12 inj I should be having. He asked ifthe question was former was it patient driven! (his words) and said to tell me I could have one b12 ij two monthly! I was currently on two days as I was fighting covid as well as all my peripheral neuropathy etc .I read on a medical site about nerve damage and pain treatment. No mention of regular b12 for treatment of pernicious anemia apart from the usual 3 monthly inj. But what I noticed was as they laid out the possible progression of the disease they pointed out the choice of drugs you would need to take. Every symptom had a drug. The story ended with splints walkers etc possibly needed and continued on to heart meds b- blockers etc and then possibly death by heart arrhythmia and possible death!!!! aaahhh, so painfully obvious and infuriating.

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brenanddave
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4 Replies
wedgewood profile image
wedgewood

Yes , the power that “Big Pharma” has is a huge scandal , and you have illustrated it well .

Jillymo profile image
Jillymo

We are controlled by money no matter how serious a B12 problem we suffer. If we had a mental health issue they would dish out antidepressants like smarties. They dont care if we die it's just another off the ever expanding NHS list.

It sure is a currupt system. 🤑

brenanddave profile image
brenanddave in reply toJillymo

Makes you feel very powerless and frustrated doesn't it! x

Jillymo profile image
Jillymo in reply tobrenanddave

Just a bit!

Especially when Pals and the Ombudsman Service was put in place to help patients. 🤬

ombudsman.org.uk/publicatio...

The reviews on trust pilot for the NHS Ombudsman is a real eye opener.

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