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Pernicious Anaemia Society

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All posts for April 2023

B12 needles

I am a b12 deficient person self injecting intra muscular, for many years. My daughter also with b12 trouble and a nurse, says my needles ( blue for normal...

I am a b12 deficient person self injecting intra muscular, for many years. My d...

kittyflowers

•1 year ago

4 Replies

b12 help

I was diagnosed with PA around 7 years ago Get my 3 monthly injections My friend gives me it as I struggle get appointments. I have never felt so...

I was diagnosed with PA around 7 years ago Get my 3 monthly injections My f...

Erin818

•1 year ago

9 Replies

Autoimmune gastritis

I came across an abstract of an article called "Autoimmune gastritis". https://www.nature.com/articles/s41572-020-0187-8 Unfortunately, the actual article...

I came across an abstract of an article called "Autoimmune gastritis". https://...

WiscGuy

•1 year ago

6 Replies

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Elevated Liver Enzymes Due to COVID?

Has anyone had COVID (Omicron) and then had elevated liver enzymes 3 to 4 months later?

Has anyone had COVID (Omicron) and then had elevated liver enzymes 3 to 4 months...

Pain12345

•1 year ago

7 Replies

Dilemma - what is the right direction?

Hi Guys Been self injecting EOD for almost 6 months now and so much better - it’s hard to believe. But I have a dilemma! Background: Recently I had a...

Hi Guys Been self injecting EOD for almost 6 months now and so much better - it...

Wwwdot

•1 year ago

9 Replies

hello again I am writing regarding my daughter again…. She had a recent hospital stay with trigeminal neuralgia

she also had an infection in her gum treated with IV antibiotics. She has a previous diagnosis of trigeminal neuralgia and CRPS ( chronic regional pain...

she also had an infection in her gum treated with IV antibiotics. She has a pr...

Delilahmy

•1 year ago

17 Replies

My Results - Help please! 🤷‍♀️

Hi Everyone. So here I am on my health journey with some results. These were the Blue Horizon Pernicious Anaemia Profile taken 4 weeks ago. I had no...

Hi Everyone. So here I am on my health journey with some results. These were t...

KBird01

•1 year ago

21 Replies

How long before you could increase the time between injections (for those who SI)?

Hi, I have SI'ing for 6 years now. For 5 of those years I did every other day, and every 3 days for the past year. I have learnt a lot about my body, and B12,...

Hi, I have SI'ing for 6 years now. For 5 of those years I did every other day, a...

BeachArt

•1 year ago

17 Replies

Buying injectable Hydroxocobalamin in Spain or France

Hello there, Has anyone any experience of buying B12 in a Spain or France? If so where do you buy it, and what is the brand name please? TIA

Hello there, Has anyone any experience of buying B12 in a Spain or France? If s...

Cakebake

•1 year ago

14 Replies

Concern about PA and Cancer

I’ve been diagnosed with PA and I get weekly to every 2 weeks injections. I have anti parietal cell antibodies. I was very young when I was first discovered to...

I’ve been diagnosed with PA and I get weekly to every 2 weeks injections. I have...

Purplegirl2

•1 year ago

15 Replies

I believe you.

And I believe in you. I heard you when you wrote you suffered less when taking more B12 than some said was effective. I heard you when you wrote you...

And I believe in you. I heard you when you wrote you suffered less when taking...

WIZARD6787

•1 year ago

39 Replies

Weight gain with SI B12

Hi everyone. Since I started SI methylcobalamin 6+ months ago I've put on weight, almost a stone. This is very unusual for me as my weight is normally very...

Hi everyone. Since I started SI methylcobalamin 6+ months ago I've put on weight...

Sunnysidoop

•1 year ago

27 Replies

Spinal cord stimulation for treatment of neuropathy

I came across the following article: Spinal Cord Stimulation May Help Diabetic Neuropathy A link to the article:...

I came across the following article: Spinal Cord Stimulation May Help Diabetic N...

WiscGuy

•1 year ago

4 Replies

B12 Breakthrough?

Hi everyone, I want to share a little bit about my journey in case it's helpful to others. There are some notes here for what I'm about to say:...

Hi everyone, I want to share a little bit about my journey in case it's helpful ...

headypuma

•1 year ago

2 Replies

b12 injection intervals

hi everyone! I have b12 deficiency ( 168 at the time of diagnosis) and since i took folic acid for months without checking b12 level I started experiencing...

hi everyone! I have b12 deficiency ( 168 at the time of diagnosis) and since i t...

Kat_88

•1 year ago

15 Replies

Reply from my local ICB

We fully agree that is incumbent on all local NHS Systems to ensure that they treat their patients with pernicious anaemia effectively and in line with the...

We fully agree that is incumbent on all local NHS Systems to ensure that they tr...

Orchard33

•1 year ago

52 Replies

New Name and Question about MMA and homocysteine levels

Hi All - - The other day I was trying to remove the thyroid group from my feed and I accidently removed myself from HealthUnlocked entirely! Anyway, I had to...

Hi All - - The other day I was trying to remove the thyroid group from my feed a...

LynetteinUSA

•1 year ago

6 Replies

Tracking your B12 changes after injections? (Please share if so)

Hey everyone. In November 2022 I tested positive for parietal cell antibodies with a B12 deficiency. I started loading doses of B12 with weekly injections...

Hey everyone. In November 2022 I tested positive for parietal cell antibodies ...

Pante

•1 year ago

13 Replies

Transcobalamin

I have read often that B12 in the blood stream is not important and all that is important is the B12 available at the cellular level. I have not read as of yet...

I have read often that B12 in the blood stream is not important and all that is ...

WIZARD6787

•1 year ago

28 Replies

Furious

My mums Gp rang me.Mum deaf and im on her notes to speak to. The community nurse team asking her to get mums b12 levels checked. Then stop her 8 weekly b12...

My mums Gp rang me.Mum deaf and im on her notes to speak to. The community nurse...

Nackapan

•1 year ago

29 Replies

any advice please

I’m having the weirdest of times just now.. I redid all my anemia testing ,it had been a year since I did them so as I thought my iron was maybe too low and...

I’m having the weirdest of times just now.. I redid all my anemia testing ,it h...

Thrones12

•1 year ago

6 Replies

B12 Information

This is a link to an interesting video about B12 supplementation...

MoKayD

•1 year ago

5 Replies

B12 nasal spray

Has anyone had experience of B12 nasal spray, is it any good (Question mark not working).

Has anyone had experience of B12 nasal spray, is it any good (Question mark not ...

Diana49

•1 year ago

4 Replies

B12 acne

My daughter has developed terrible acne following B12 injections. Does anyone know how long this will last as it has had a devastating impact on her...

My daughter has developed terrible acne following B12 injections. Does anyone kn...

EliTottie

•1 year ago

15 Replies

Saline solution

I have just purchases Methylcobalamin in powdered form from Oxford Biosciences Ltd but the sterile saline solution they recommend from germany is not...

I have just purchases Methylcobalamin in powdered form from Oxford Biosciences L...

Vonni7

•1 year ago

3 Replies

Injections for Neuropathy in Feet

Hi After the usual tale of rejection I am paying for injections for neuropathy problem in my feet every other day and wonder whether anyone has advice about...

Hi After the usual tale of rejection I am paying for injections for neuropathy ...

TonyK1

•1 year ago

3 Replies

Fibromyalgia study results

Results of a study looking at new drugs in treatment of fibromyalgia has been published. In a way, this study is another example of why medical research makes...

Results of a study looking at new drugs in treatment of fibromyalgia has been pu...

WiscGuy

•1 year ago

8 Replies

Question about methylated vits and Vit B6.

Does anyone know anything about methylated vitamins - I feel worse when I take them, but I’m confused about this as I’ve MTHFR mutations and it’s meant to...

Does anyone know anything about methylated vitamins - I feel worse when I take t...

MrsTuft

•1 year ago

20 Replies

Grey hair growing coloured again!

I dye my hair as lots of grey. I have my roots done every six weeks. I started going grey about 20 years ago. I have been on B12 every other day for 4...

I dye my hair as lots of grey. I have my roots done every six weeks. I started...

Wwwdot

•1 year ago

19 Replies

NICE guidelines access

I'm external to the UK so I can't access the NICE guidelines. I'd like to read them to compare to guidelines in the United States. Website states: The NICE...

I'm external to the UK so I can't access the NICE guidelines. I'd like to read t...

FocusedInbox

•1 year ago

7 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2023

B12 needles

b12 help

Autoimmune gastritis

Elevated Liver Enzymes Due to COVID?

Dilemma - what is the right direction?

hello again I am writing regarding my daughter again…. She had a recent hospital stay with trigeminal neuralgia

My Results - Help please! 🤷‍♀️

How long before you could increase the time between injections (for those who SI)?

Buying injectable Hydroxocobalamin in Spain or France

Concern about PA and Cancer

I believe you.

Weight gain with SI B12

Spinal cord stimulation for treatment of neuropathy

B12 Breakthrough?

b12 injection intervals

Reply from my local ICB

New Name and Question about MMA and homocysteine levels

Tracking your B12 changes after injections? (Please share if so)

Transcobalamin

Furious

any advice please

B12 Information

B12 nasal spray

B12 acne

Saline solution

Injections for Neuropathy in Feet

Fibromyalgia study results

Question about methylated vits and Vit B6.

Grey hair growing coloured again!

NICE guidelines access

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive