Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,057 members • 23,203 posts

All posts for April 2023

Blood Tests denied

Having started loading doses of B12 after long history of being told B12 low last year I have now received my final quarterly shot. Condition solved no...

Having started loading doses of B12 after long history of being told B12 low las...

Nonameme

•1 year ago

6 Replies

Ampules from versandapo De

Hi I have been trying to buy ampules from versandapo De .I used to get them from here with ease.The last couple of years I can’t see how to get correct postage...

Hi I have been trying to buy ampules from versandapo De .I used to get them from...

margareta12321

•1 year ago

12 Replies

Does anyone have the same PA experience that I do?

I'd like to share my experience of PA with you all, to see if anyone feels the same as I (and to prove I'm not alone in this... :) ) Firstly, I'm male, 58,...

I'd like to share my experience of PA with you all, to see if anyone feels the s...

hypervox

•1 year ago

20 Replies

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when to stop supplementing with iron prior to iron panel blood test?

I’m getting my iron and ferritin levels checked. Does anyone know how long one should stop supplementing with iron before gettung blood drawn for these? This...

I’m getting my iron and ferritin levels checked. Does anyone know how long one s...

Dolansan

•1 year ago

3 Replies

Zinc and Copper Deficiencies

Hello, All! Well it's always something - isn't it? Before I begin - a refresher - I have AMAG, PA; take B12 sublinguals daily along with 500mg folic acid...

Hello, All! Well it's always something - isn't it? Before I begin - a refreshe...

Hidden

•1 year ago

7 Replies

Another ignorant GP - "is PA forever?" he asked

Firstly, I must say, I feel lucky and greatful that I have been able to get my b12 on prescription since being diagnosed with PA 7 years ago, I self inject...

Firstly, I must say, I feel lucky and greatful that I have been able to get my b...

HKAnne

•1 year ago

20 Replies

Does anybody else suffer chronic bone pain during the night ?

Despite my many autoimmune conditions nobody has thought to check my pitituitary gland. I cant help wonder if I have low cortisol levels or something like...

Despite my many autoimmune conditions nobody has thought to check my pitituitary...

Jillymo

•1 year ago

19 Replies

Advanced warning - 18 April HU platform will be unavailable for a while due to scheduled maintenance 11 am BST/6am EDT

HU have scheduled maintenance on 18 April at 11.00 am BST/6.00 am EDT. They expect the site to be unavailable for about 30 minutes

HU have scheduled maintenance on 18 April at 11.00 am BST/6.00 am EDT. They e...

Gambit62

Administrator•1 year ago

2 Replies

Help with blood results

Hi everyone.I hope you are well.Just needed hel with some blood results TSH (satisfactory) 3.79 0.55-4.7 B12 (satisfactory) 268 211. -911 Vitamin d (low) 31...

Hi everyone.I hope you are well.Just needed hel with some blood results TSH (sat...

Rachel20

•1 year ago

22 Replies

blood results

Hello again can someone tell me if my iron count is in my blood test results..🙏 and if it’s ok?

Hello again can someone tell me if my iron count is in my blood test results..🙏...

Blondie126

•1 year ago

2 Replies

Preservatives in B12 injections - does frequency matter?

Hi all, I'm hoping for some insight about what effect the preservatives in different B12 injections have (or don't have) on us. I know I've heard some...

Hi all, I'm hoping for some insight about what effect the preservatives in diffe...

Cobalt1312

•1 year ago

6 Replies

Supplements?

Hi all I’m soo confused abt supplements coz I’ve had advice of what to take but the more I look the more I’m gonna be rattling I feel can anyone advise what to...

Hi all I’m soo confused abt supplements coz I’ve had advice of what to take but ...

Blondie126

•1 year ago

2 Replies

Exhaustion

Is exhaustion just something we have to put up with if you have PA? I’m SI Hydroxocobalamin twice a week with folate supplements , in between getting it from...

Is exhaustion just something we have to put up with if you have PA? I’m SI Hydro...

Sea-blue

•1 year ago

11 Replies

Hello from a (UK based) Pernicious Anaemia sufferer...

I am like so many others trying to jump the health hurdles I keep facing and recently feel like I've been running straight into them instead of avoiding. I am...

I am like so many others trying to jump the health hurdles I keep facing and rec...

f1ddle_st1cks

•1 year ago

19 Replies

Can B12 deficiency cause pounding heart?

Diana49

•1 year ago

10 Replies

Recommendations for multivits

Hi everyone, Still waiting for my blood results from IFAB/Parietal cell/MMA/etc, etc. Hopefully have them next week, so 🤞 for some answers... In the...

Hi everyone, Still waiting for my blood results from IFAB/Parietal cell/MMA/etc...

KBird01

•1 year ago

11 Replies

Personal stories - Spring 2023 PAS newsletter

Hi All, I'm sure this has been posted earlier this year and I wondered if any of you had read the personal stories in it. Pages 8/9/10....

Hi All, I'm sure this has been posted earlier this year and I wondered if any o...

Sleepybunny

•1 year ago

2 Replies

B12 injection before my hip replacement

Hi I have B12 injections every 12 weeks from my GP but inject every 3 weeks at home. My question is should I inject a couple of days before I go in? I feel...

Hi I have B12 injections every 12 weeks from my GP but inject every 3 weeks at ...

Chocolate41

•1 year ago

10 Replies

Pernicious Anaemia

Hi Guys I have had B12 above reference range (NHS UK so probably a very outdate reference range system) GP told me it was high a year ago. Nobody had told...

Hi Guys I have had B12 above reference range (NHS UK so probably a very outdate...

Kwizzbit

•1 year ago

5 Replies

It is not all in my head.

If I take B6 Vitamin Pyridoxal 5 Phosphate 25 mg with water twice a day and B12 hydroxocobalamin subcutaneously 1 mg three times a day then symptoms known to...

If I take B6 Vitamin Pyridoxal 5 Phosphate 25 mg with water twice a day and B12...

WIZARD6787

•1 year ago

16 Replies

Hiim having problems purchasing B12 ampoules hydrox, anyone got a link?

Hi Im having problems purchasing B12 ampoules hydrox, anyone got a link?

ollie7horse

•1 year ago

7 Replies

MORE INFO!!

I hope this info helps has much as it has helped informed me, I was getting very frustrated until I came upon this site! https://youtu.be/1Gb_1RGX6Jc...

I hope this info helps has much as it has helped informed me, I was getting very...

RisingOne

•1 year ago

7 Replies

B12 testing issues, from 2005

Another interesting article, this one with a focus on assessment of issues pertaining to B12 deficiency. Amazingly, when contrasting things known in this...

Another interesting article, this one with a focus on assessment of issues perta...

WiscGuy

•1 year ago

4 Replies

B12 help with self injecting

Hi all thanks for accepting me on your group so I want to start self injecting just need some advice on what size needle I need to use and any other help you...

Hi all thanks for accepting me on your group so I want to start self injecting j...

Blondie126

•1 year ago

2 Replies

Happy Easter

I wish everyone celebrating Easter a happy day. I’m a chocoholic and this is a very good time of year for me🤗 I’d like to thank each and everyone of you on...

I wish everyone celebrating Easter a happy day. I’m a chocoholic and this is a v...

Twaddletop

•1 year ago

4 Replies

B12 and Acne

After a few of my b12 shots, I've started to get acne on my face, back and even scalp.And I did a little research and b12 is proven to give acne to some...

After a few of my b12 shots, I've started to get acne on my face, back and even ...

Shipship

•1 year ago

29 Replies

Medical article describing many aspects of B12 deficiency

Many of the brief reviews of medical literature at the beginnings of medical journal articles are rife with error. This article, in contrast, broadly and, as...

Many of the brief reviews of medical literature at the beginnings of medical jou...

WiscGuy

•1 year ago

11 Replies

Lyme and Long Covid (and perhaps by proxy, B12 deficiency)

The seeming correlations between B12 deficiency and Long Covid have been discussed on this forum. Given that, there might be some interest in this...

The seeming correlations between B12 deficiency and Long Covid have been discuss...

WiscGuy

•1 year ago

Be the first to reply

VERY HELPFUL And INFORMATIVE INFORMATION

https://youtu.be/opvpUdXZd14 Must listen! Applies to PA also.

RisingOne

•1 year ago

8 Replies

Happy Easter

I would like to wish each and every one of you a restful peaceful Easter - go steady on the chocolate. 🐰 🍫

I would like to wish each and every one of you a restful peaceful Easter - go st...

Jillymo

•1 year ago

17 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(76)

All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2023

Blood Tests denied

Ampules from versandapo De

Does anyone have the same PA experience that I do?

when to stop supplementing with iron prior to iron panel blood test?

Zinc and Copper Deficiencies

Another ignorant GP - "is PA forever?" he asked

Does anybody else suffer chronic bone pain during the night ?

Advanced warning - 18 April HU platform will be unavailable for a while due to scheduled maintenance 11 am BST/6am EDT

Help with blood results

blood results

Preservatives in B12 injections - does frequency matter?

Supplements?

Exhaustion

Hello from a (UK based) Pernicious Anaemia sufferer...

Can B12 deficiency cause pounding heart?

Recommendations for multivits

Personal stories - Spring 2023 PAS newsletter

B12 injection before my hip replacement

Pernicious Anaemia

It is not all in my head.

Hiim having problems purchasing B12 ampoules hydrox, anyone got a link?

MORE INFO!!

B12 testing issues, from 2005

B12 help with self injecting

Happy Easter

B12 and Acne

Medical article describing many aspects of B12 deficiency

Lyme and Long Covid (and perhaps by proxy, B12 deficiency)

VERY HELPFUL And INFORMATIVE INFORMATION

Happy Easter

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive