Furious : My mums Gp rang me.Mum deaf... - Pernicious Anaemi...

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Furious

Nackapan profile image
29 Replies

My mums Gp rang me.Mum deaf and im on her notes to speak to.

The community nurse team asking her to get mums b12 levels checked.

Then stop her 8 weekly b12 injections ive fought to get in the first place.

And to have b12 tablets .

The Gp was good and listened to my long spell. I heard hef tapping on the computer.

She is not stopping the b12 injections .

Said she wasn't sure why mums treatment being challenged by D Nurse team.

I answered that too.

A precise was they do not understand the importance and are trying to reduce workload.

It's not trained nurses that do the b12 injections .

I sort thr prescription.

Make sure ampoules in the house .

Let them in.

Not even 5 mins and on a very low pay grade!!!!

Always fitted in around other calls in the area !

I despair .

Thank goodness the Gp actually rang for my opinion.

Nurses have give me so many problems with B12

Refusing injections and so on.

More training .....same old

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Nackapan profile image
Nackapan
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29 Replies
wedgewood profile image
wedgewood

It’s marvellous that you are standing up for your Mum . Goodness knows what would happen if you were not there for her . So a community nurse was trying to get her treatment changed from injections to tablets . That’s awful

Anyhow — 🥇for you .

Janma123 profile image
Janma123

Good job you are now well enough and able to fight both your own corner and your mums! Keep up the good work. x

Nackapan profile image
Nackapan in reply toJanma123

Yes! I now know the gp did ring my mum first .

She couldnt hear !

Didn't know what it was all about .

I suppose then' permission' to ring me .

Made me laugh .

1. Not sure what she was saying yes to

2. Deafness surely on her notes

3. I'd told the gp how much b12 does for my mum .

I. e more with it

She is but not on the phone !! As deaf

She is 93 and a half!

It was only recently I had to chase b12 injection and waited for a call back from a district nurse.

Nothing said then ???

Thrones12 profile image
Thrones12 in reply toNackapan

so sorry to hear this again you must be furious and it’s so stressful for you,your poor mum what a way to treat our elderly it’s actually bullying isn’t it because they know fine well she’s unable to stand up for herself.disgraceful treatment my heart goes out to you..x

deniseinmilden profile image
deniseinmilden

You have my complete and heartfelt sympathy.

The less knowledge they have the nearer to God they think they are - and the greater the hassle they cause! Grrrrr!

Nackapan profile image
Nackapan in reply todeniseinmilden

Yes.Thanks for the sympathy

Good job my mum is not confused ,merely deaf.

Definitely not stupid as she's often treated .

It is more stressful than I think for me as when telling her the outcome I told her the change of arrangement of the 'homehelp' the following day Wednesday.

She said I'd told her already and it was Tuesday tomorrow !!

Can only laugh.

Shed had her b12 injection 💉 🤣

I'm also very aware as my gp surgery closes its doors at the end of April .

My treatment will be challenged no doubt,when I actually manage to register somewhere.

Chaos 5000 people looking.

You'd think they woukd just allocate as so many make a 'choice ' then refused.

The Gp that rang was good so noted her name!!

deniseinmilden profile image
deniseinmilden in reply toNackapan

Goodness, what a nightmare!

I'm so sorry for you having to deal with the hassle.

Good luck with it! x

Jillymo profile image
Jillymo

Your doing a grand job but why should we have to battle so hard due to nothing other than lack of training and understanding of the condition.

Grrrrr it makes me so cross. 🤬

Orchard33 profile image
Orchard33 in reply toJillymo

Yet again, blatant ignorance about the condition.

Nackapan profile image
Nackapan in reply toJillymo

Yes. Too much precious energy used.

When the next medic says we will check b12 levels and stop b12 injections if b12' in range' ive decided to say:

Sounds logical but is totally wrong.

Please read the guidelines .

Less words .

I'm getting better with a' pause button'

If inwardly cross or anxious I say too much too quickly .

My conclusion is they simply can't keep up.

So 'react' rather than respond to what's been said.

You are right ✅ shouldn't be necessary but is presently.

Sea-blue profile image
Sea-blue in reply toNackapan

I’m borrowing your “ sounds logical but is totally wrong, please read the guidelines” phrases. 👍

Jillymo profile image
Jillymo

As yet I havn't had to face my injections being stopped but pretty sure it will take place soon - I shall remember your words if and when it takes place.

Staying calm is a dificulty for me - deep breath. 🧘

pitney profile image
pitney

as if we are not exhausted enough with out getting this run around every few months, so sorry you are having to fight to get treatment all the time but glad your mum has you to help👍 take care

Sea-blue profile image
Sea-blue

Not only have you to fight and advocate for yourself B12 wise but also your mum too. You’re awesome and well done for keeping up the fight . It’s flaming hard sometimes. I so relate to your later post about saying too much when stressed or feeling gaslighted. I’m trying to learn to be more concise and not emotional when talking to medical peeps. Very hard when they don’t listen and treat you with respect. Luckily I currently see a GP who hasn’t got a massive ego

Cherylclaire profile image
CherylclaireForum Support

Furious, and yet still fair about low pay grade making a difference. You have once again averted a disaster - how many more times though ?

There are two things worth mentioning here: how well you have been doing lately (comparatively) and you finding a GP that you can talk to (in spite of the fact that she did phone your mumbefore contacting you).

You both deserve to get placed with a good local surgery where you have one dedicated "usual GP" to deal with as continuity is important as is family history.

A big ask these days, I know. Will cross my fingers for you and your mum .

Nackapan profile image
Nackapan in reply toCherylclaire

Mum is at a different surgery so no change .As there alot for her chose to be at a different one for me. My one closes at the end of the month .

So noted this Gps name as may be able to join that surgery given the circumstances now .

One daughter that now lives locally. Her surgery wouldn't accept me. One toad out of catchment apparently.

Over 5000 scrabling for a new gp.

Cherylclaire profile image
CherylclaireForum Support in reply toNackapan

Good if you can get on with the same surgery as your mum, especially since there is an approachable GP there (or at least for the time being !)

How is adhering to the previous catchment area going to work, given that 5,000 patients are now cast adrift ? Logistically does not seem likely. All the surgeries involved will be recruiting new GPs to cope with increased patient numbers - and you'd imagine that would take some time. Not to mention nurses and receptionists.

Have you had any advice from current practice manager ? I really thought this would be an automatic transfer.

Nackapan profile image
Nackapan in reply toCherylclaire

It's a complete mess .Practice manger impossible to contact as receptionists just give a telephone number to ring .

Outsourced!

My neighbours patents in their 90s applied to transfer to next gps closest to where they live.

My mums present surgery.

They were refused as out of catchment and offered a gp surgery much further way.

This made no sense as I knew historically 'IN catchment area'

Neighbour challenged on behalf of his parents ( Moved closer to him for care!)

They were then taken on ....as clearly when you put the postcode into the website the surgery applied for was first on the list .

Admins had to be shown this?

Again if no advocate elderly will be stressed and may end up with a surgery miles away They can't access. As not online either.

I've looked at the maps .( with difficulty ) mum been here since 1959. Same gp practice. Maps

Obviously done before alot of new roads made.

The gp surgeries are now in groups

The groups not in one local area .

Logistically surgeries in a group csn be 5-7 miles apart.

Seems like trying to get into a school you can walk to !

To me it would've made sense to allocate a gp surgery nearest in distance surely.

Then if person not happy to change it!

The admin is ludicrous 4 pages online . 1 page missing.

Only one surgery 'accepting paper applications ' ....again many upsets witnessed as don't do online

Can't do online ....perhaps unwell !!!

The latest is ,if application not in and processed by them by yesterday a surgery will be allocated!

Theve had our 'applications for over a month .

Only one reply sending page missing to fill out.

With was a duplication of information anyhow.

Again. Just a message on the surgery telephone line to ring a centre.

The centre don't know the area or can't make out the complicated catchment maps to help.

I applied to a surgery I know exists and physically went to look .

That wasn't even on their list ???

Is in the group !

Simply chosen as I can get there and they have nurses who take bloods . A rarity .

Nothing back yet.

B12 booked at present surgery open until the 30th next week.

I've now heard.

They will not honour that appointment if registered somewhere else by then ! . So ready fot that if I arrive and its not been cancelled ! But refused even though doctors employed to the 30th and booked.

Will see as booked for 25th with known Gp I want to discuss last bloods with as well as IM b12

Last bloods done at a 'hub' in the bus station .

Good if you are on a bus route to take you there !

Otherwise main huge hospital.

Half a days trip for those with disabilities.

Also hefty car park fees and taking spaces needed for more urgent appointments!

Contracts seem to run for 2 years .

Seemingly provision not thought through if not renewed.

Similar to NHS bid lost for my last NHS job.

Then new provider winning failed.

Schools complaining of needs of children entering school not met amongst other things. Too many cuts . Very short sighted .

Mayhem. and 2 yesrs later another takeover.

The loss of skilled workers ,service and huge money losses .

All by taking a bid that was cheaper but didn't know the job.

Shakeups good.

Reviews good .

Potential huge changes 2 yearly plain stupid .

( in my opinion)

Alot of experienced Gps and nurses going for early retirement as burnt out by another round of changes and workplaces just too far away from home.

Where this leaves us all ??

Goodness knows.

It was a shock as the building has had needed work . Security doors ect.

I wonder what that vacant building will be used for .

A gp surgery in 2 years perhaps!

Be an amazing phlebotomy hub.

Or combined a b12 clinic, vaccination Centre !!!!

Cherylclaire profile image
CherylclaireForum Support in reply toNackapan

So glad your mum has you there.

What a shame that the final visit to your surgery will involve gearing up in case of yet another fight for you !

What a mess ! Changing catchment areas, postcode lotteries, further travel required, agency staff, mobile phones, computers, remote access (or no access to decision-makers) : how useful is any of that for an elderly, confused or sick patient ?

They are the people that are going to fall through these huge cracks. Who is there to notice ?

Nackapan profile image
Nackapan in reply toCherylclaire

Exactly . The very people that need hralthcare provided the most ,will suffer.

Cherylclaire profile image
CherylclaireForum Support in reply toNackapan

Unnoticed.

Nackapan profile image
Nackapan in reply toCherylclaire

😒

Kazania profile image
Kazania in reply toNackapan

Gosh☹️ more hassle. I wish you buckets of good luck and hope you have the good fortune to find a good surgery with an understanding GP

EllaNore profile image
EllaNore

So sorry that happened. It's always something. I don't understand why they act like this with B12d.

So glad you set them straight. Just unnecessary stress for you and your mum.

Hedgehogs15 profile image
Hedgehogs15

I feel your pain Nackapan. I dodge a bullet every time I go for my 4 weekly injections. Nice nurse never questions. Yet if she’s not their other nurse says I need blood test and should I-only have jab every 12 weeks like her other patients have. I’ve told her doctor said 4 weeks but she doesn’t listen. I had her yesterday but when she did it I just left and didn’t rebook my injections like normal. Now I have to hope I get nice nurse for next 4 weeks one.

It’s such an unjust struggle for us all just to get on with our lives. Sending hugs x

Nackapan profile image
Nackapan in reply toHedgehogs15

I wouod check what nurse is on duty .I had to dodge a few when we had nurses at the surgery

When it was "cover ' nurses I hated it .

Never knew how they would react 😕

A few mucked up my agreed regime.

So annoying and totally unnecessary.

N9 wonder some really hurt as more tense thsn realise.

Also no idea of nurses expertise !

I was shocked last week bloods hurt .

She was brutal.

Never had that before !

Hedgehogs15 profile image
Hedgehogs15 in reply toNackapan

thank you for your reply Nackapan and I’m so sorry you are in the same boat. What do we have to do to be taken seriously. It shouldn’t be like this. Sending best wishes x

Twaddletop profile image
Twaddletop

Many years ago when I first discovered I had PA, I was given the required loading dose. I didn’t like the jabs one bit so asked the doc if there were any alternative. He replied that I could neglect to have the jabs and die. Now if my GP could tell me that so many years ago, why is it that GP’s and nurses seem to think that we can do without them now? It makes me feel bewildered, sad and angry all at the same time. I’m glad you look after your Mum Nackapan. I looked after and fought for my Mum till she passed two years ago. I used to worry about the dementia patients with no one to stick up for them. I don’t doubt that they were overlooked in many ways🥲

Kazania profile image
Kazania

So sorry Nackapan to hear about all the hassle, as if you haven’t got enough to cope with! So pleased you got it sorted although you shouldn’t have been forced to do all that additional fighting, honestly what is the matter with them!! Sending hugs, keep well🥰

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