Canada -

[grandmacutler]

Anyone know anything about PA in Canada. Looking for support group or /and information. Thank you

[Sleepybunny]

Hi,

Welcome to the forum.

When I searched forum posts for "Canada" I found several threads started by forum members in Canada.

A few links about PA and B12 deficiency

PAS (Pernicious Anaemia Society)

Based in Wales, UK. Has some overseas members.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring

B12 Info.com website

b12deficiency.info/

B12 Awareness (US website)

b12awareness.org/

Stichting B12 Tekort (Dutch website with English articles)

stichtingb12tekort.nl/weten...

B12 Institute - Netherlands

Has useful lists of symptoms and causes.

b12-institute.nl/en/home-2/

Two useful B12 books

B12 books I found useful

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper is the chair of PAS (Pernicious Anaemia Society).

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (USA authors)

Very comprehensive with lots of case studies.

I'm not medically trained.

[grandmacutler in reply to Sleepybunny]

Thank you. I did a primary search but didn't get much infor. I appreciate your reply thank you so much.

[clivealive Forum Support in reply to grandmacutler]

My friend in Canada asked where abouts locally in Canada are you?

[Nackapan in reply to clivealive]

I have a friend in Canada with PA too

[grandmacutler in reply to clivealive]

North of Toronto Ontario north on hwy 400

[clivealive Forum Support in reply to grandmacutler]

Hi grandmacutler Thanks to my one time "teenage girlfriend" from 1958/9 who now lives in Canada - she has sent the following which I hope you will find useful..

This lady below is on Linked in and Facebook. She’s in Ontario but may have wider connections

Screenprint of a computer page

[grandmacutler in reply to clivealive]

Thankyou but this page seems to be inactive,

[clivealive Forum Support in reply to grandmacutler]

Hi again, If you are on Facebook type Pat Kornic into the search box on the top left side of the page and click on Pat Kornic (Pat Anderson) to open her page. Then you can become a friend or message her.

en-gb.facebook.com/pat.kornic/

facebook.com/PAB12DSupportG...

or email her at

[e-mail]

I am in the UK so I am sorry not to be able to help you more.

I wish you well

[Plucky1976]

Hi! I’m from Windsor, Ontario. I am not diagnosed PA but was definitely deficient. I haven’t had any luck in finding anything over here myself. Hope you have more luck.

[wedgewood in reply to Plucky1976]

It is very difficult to get a diagnosis of Pernicious Anaemia, because the test, called the IFAB test ( Intrinsic Factor Antibodies test ) shows up negative for about 50% of P.A. patients . Doctors are very ignorant on the subject , Ww are rather on our own .

I suggest that you read a book by our Chairman Martyn Hooper . on the subject . You can buy them from Amazon USA . Also a book by Sally Pacholok called “ Could it be B12 “ . All very revealing . Best wishes .

[Plucky1976 in reply to wedgewood]

Thank you! I will look into the book by Martin Hooper. The book by Sally Pacholok was the first thing I purchased. Even before my vials of b12. Lol.

The line I kept getting from the doctors was that it didn’t matter as the treatment would be the same. I just kept saying “but it matters to me!” It’s impossible over here.

[clivealive Forum Support in reply to Plucky1976]

If you are on Facebook type Pat Kornic into the search box on the top left side of the page and click on Pat Kornic (Pat Anderson) to open her page. Then you can become a friend or message her.

healthunlocked.com/redirect...

healthunlocked.com/redirect...

or email her at [e-mail]

Click on any of the blue links

[Sleepybunny]

Hi again,

I found a few links that might be worth a look when I searched online for

" Ontario B12 deficiency guidelines" and

"Canada B12 deficiency guidelines"

[Bluebell7575]

Hello! I am diagnosed with PA and I’m in Canada (Ontario). I’m happy to chat as I think we live close.

Also, there is a fantastic PA/B12 deficiency group on Facebook run by a Canadian from Belleville Ontario who has been extremely helpful to me.

Edit to add that I’ve had some fantastic doctors helping me with this diagnosis - I can share this info with you as well

[B12life in reply to Bluebell7575]

The list of docs from a Canadian will be priceless! Bluebell to the rescue.

[grandmacutler in reply to B12life]

My appt is on fri. Very worried about where this will lead. Not happy so far with the diagnosis Ive received. Any ideas gratefully received.

[B12life in reply to grandmacutler]

Paste this message as another question perhaps of what tests to get or how to prepare for your 1st appointment.

[grandmacutler in reply to Bluebell7575]

Thanks it is a difficult journey

[grandmacutler in reply to grandmacutler]

My appt is on fri. Very worried about where this will lead. Not happy so far with the diagnosis Ive received. Any ideas gratefully received.

[B12life]

Welcome.

Well I'm in the US and this is my go to for support and info. PAS is in UK but is the best source of support and info I have found thus far (2 years).

I get my b12 from canada (lucky you!) or germany. germany if I want a higher dose. Canada will get you from ground zero back to on your feet.

I get my b12 and needles here:

canadadrugsuperstore.com/in...