Tedx NHS: Patient compliance talk - Pernicious Anaemi...

Pernicious Anaemia Society

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Tedx NHS: Patient compliance talk

RoseFlowerDew profile image
10 Replies

If anyone wants to add to the conversation about PA in a more public space I have posted a comment to the Tedx NHS talk on patient compliance with regards to patient safety, PA and treatment here: youtu.be/pxREcYmVMf4.

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RoseFlowerDew profile image
RoseFlowerDew
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10 Replies
pitney profile image
pitney

Thank you😀

charks profile image
charks

Slightly off subject. Yet another overweight medical professional. She specialises in strokes. Being overweight is one of the main causes of strokes. It send out all the wrong signals.

Ghound profile image
Ghound in reply to charks

You make a good point, and that was my attitude as a former young 'whippet slim' health professional.Now older and overweight, I agree that the modern Western world has completely lost the plot regarding appropriate diet and maintaining healthy weight.

Another perspective though ;

My nursing career evolved and I came to teaching dental nursing as a mature student.

I probably wasn't the most 'knowledgeable' tutor there's ever been, because juggling family, elderly parents etc. I had to be realistic about the amount of extra studying I had time to do.

However, this made me a good tutor, because I now understood the constraints some students were coping under and I was more sympathetic to those who were struggling with the complexity of some subjects.

Perhaps sometimes when health professionals appear too 'perfect ' patients feel discouraged that goals may be unattainable for them ?

Of course, ideally health professionals should lead by example, and I agree that the number of obese nurses etc these days is shocking, but there is also a role for professionals who are less than perfect themselves.

RoseFlowerDew profile image
RoseFlowerDew in reply to Ghound

I’m personally wary of commenting on weight as I had PCOS and the GP never informed me. Weight crept up over the years and then later put on medication that has been described by some professionals as the most effective way of creating weight gain in humans than any other prescribed medication. Now that I am facing blood tests for malabsorption and celiac I have to eat gluten and the weight is piling on again, possibly because I am struggling with calcium levels and other minerals that make energy conversion possible. It’s discouraging because I lost over 2 stones for my wedding last year going under the Obese threshold heading towards normal weight. But I understand your point the NHS is very much ‘do as I say’ than not.

charks profile image
charks in reply to RoseFlowerDew

I am a celiac as well so I understand how difficult it is to have to eat gluten to have tests. After giving up gluten I felt so much healthy - no more bloating and acid reflux - that I was very reluctant to start eating gluten again to get tested. After reading that celiac tests are very unreliable - like the PA test - I decided against having the tests. I figured I didn't need a definitive diagnosis of celiac. I obviously had a allergy to gluten and that was enough for me.

I was overweight then but I am a very healthy weight now. I intermittent fast. It takes a little getting used to but it works for me. It helps that most of my fasting period is when I am asleep.

Ghound profile image
Ghound in reply to RoseFlowerDew

We never know whether someone's weight or general appearance could be as a result of illness, be it physical or mental.

Ghound profile image
Ghound

Thank you ! Very interesting and enlightening, hope health professionals take this on board ... x

Kazania profile image
Kazania

Thank you a very engaging speaker. Her patients are very fortunate to get such thoughtful help.

WIZARD6787 profile image
WIZARD6787

I would like to do a Ted Talk on medical professionals non conformance to scientific based guidelines.

Mixteca profile image
Mixteca

Assessment? plan? goals to get there? If only that actually happened we might be making some progress. GPs seem to be sleep-walking when it comes to B12D, the majority have no clue what they're doing and why. So we self-assess, we plan as far as possible in the absence of 'expert' help and support. We are forced to take control over our treatment, with no medical training in the majority of cases. DIY health service rather than a functional NHS.

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