Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for March 2023

LAST FYI ON shelf life of B12. Hope it helps.

How quickly does the B12 degrade when exposed to light? I’m curious how fast I need to inject the needle once it’s drawn with fluid. I took about 2 minutes...

How quickly does the B12 degrade when exposed to light? I’m curious how fast I n...

RisingOne

•1 year ago

12 Replies

More FYI from https://perniciousanemia.org/b12/injections/expiry/

https://perniciousanemia.org/b12/injections/photolysis/ Very important and interesting information.

https://perniciousanemia.org/b12/injections/photolysis/ Very important and inte...

RisingOne

•1 year ago

6 Replies

FYI FAMILY

I found this info on the American Pernicious Anemia site. https://perniciousanemia.org/b12/injections/expiry/ Does Injectable Vitamin...

I found this info on the American Pernicious Anemia site. https://pernicio...

RisingOne

•1 year ago

6 Replies

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Backpain & tiredness and legs (from waist down)

Good day everyone. It's been a month since my B12 injections. I have back pain on my spine, I really do not know how to explain it, but its like a combination...

Good day everyone. It's been a month since my B12 injections. I have back pain o...

mbhembe

•1 year ago

8 Replies

Hit a vein while injecting

Sorry if this question has been asked a million times before, but is a B12 injection still effective if you hit a vein? I was injecting my thigh, and I was...

Sorry if this question has been asked a million times before, but is a B12 injec...

Cobalt1312

•1 year ago

6 Replies

More curious ponderings - hypochlorhydria

I have another curious pondering if anyone is interested to chip in... Is it correct that PA is a consequence of low stomach acid? And perhaps, as we all...

I have another curious pondering if anyone is interested to chip in... Is it co...

Pickle500

•1 year ago

25 Replies

Tongue pain and white tongue 🙁😥😢

Sir my tongue is hurting since 3 months it is tingling and white tongue there is no any kind of ulcer in the mouth but how many showed to the hospital it is...

Sir my tongue is hurting since 3 months it is tingling and white tongue there is...

pradeep_jackonn

•1 year ago

4 Replies

B12 - advice on supplementing injections sought

Hi, I was recently diagnosed with pernicious anaemia. Initially put on 3-monthly injections. Changed to 2-monthly by GP because of recurrence of neurological...

Hi, I was recently diagnosed with pernicious anaemia. Initially put on 3-month...

skylark25

•1 year ago

9 Replies

HELP desperately needed….. 🤒

I haven’t posted in quite a few years. A little about me 51 yo self inject very 6-8 weeks, no Dx PA, Holo tc test 19*😳(this is the active test for anyone who...

I haven’t posted in quite a few years. A little about me 51 yo self inject very ...

Joanne1971

•1 year ago

6 Replies

When will treatment for B12 catch up?

I feel that the medical personnel will start to apply the current science if and only if their confidence/arrogance in they know best is shaken. How, when or...

I feel that the medical personnel will start to apply the current science if and...

WIZARD6787

•1 year ago

10 Replies

Filter Straws

I hope all are managing life well with "the forgotten disease." Just received my first order of B12 from Apohealth. The ampoules are glass, and as such require...

I hope all are managing life well with "the forgotten disease." Just received my...

alamagpa

•1 year ago

6 Replies

diagnosis

can I ask has anyone else took a long time to diagnose b12 normal other tests normal My dad was diagnosed same age as me similar symptoms all tests normal...

can I ask has anyone else took a long time to diagnose b12 normal other tests no...

catbindy

•1 year ago

15 Replies

B12 & Folate Deficiency and tolerability of antibiotics (why I react badly to them)

I wanted to just share this in case anyone else has similar issues with reacting badly to some antibiotics (particularly Trimethoprim or Bactrim) after...

I wanted to just share this in case anyone else has similar issues with reacting...

Whoa182

•1 year ago

21 Replies

To brighten the day

Our late forum member beginner1 would post flowers to cheer .We wouid all try and name them. This one not taxing !!

Our late forum member beginner1 would post flowers to cheer .We wouid all try a...

Nackapan

•1 year ago

8 Replies

Looks Familiar??? When it walks like a duck, quacks like a duck …

Saw this … no mention of B12 … but if it looks like B12 and has an effect of B12 … is it B12?? https://apple.news/AGHljAoDmR8SvdQtuqX2Gfw Could this be a...

Saw this … no mention of B12 … but if it looks like B12 and has an effect of B12...

Wwwdot

•1 year ago

12 Replies

Neurological Systems not Accepted.

In my work as a consultant I often do a "Critical Flaw Study." when a client is considering pursuing a building project. It is a study to determine what a...

In my work as a consultant I often do a "Critical Flaw Study." when a client is ...

WIZARD6787

•1 year ago

7 Replies

So, why is B12 not available over the counter in the UK?

I am well aware that B12 (for injection) is not available over the counter in the UK, yet it is in many other countries. But what is the thinking behind it? Is...

I am well aware that B12 (for injection) is not available over the counter in th...

BeachArt

•1 year ago

33 Replies

What happened to Biermer's Disease?

Does anyone know why Pernicious Anemia lost its seemingly original title of Biermer's Disease?From a marketing and branding POV, it would seem to make alot...

Does anyone know why Pernicious Anemia lost its seemingly original title of Bier...

Pickle500

•1 year ago

30 Replies

Serious condition taken so lightly?

I was diagnosed with B12 deficiency in 2017, my physical health has deteriorated substantial over the years. Why in the UK, do the medical profession take it...

I was diagnosed with B12 deficiency in 2017, my physical health has deteriorated...

Brookey

•1 year ago

17 Replies

PAS Helpline

I've at last been able to make a call.(Telephone use difficulties) I was told by an automated voice I'd made an invalid selection. ?? It' gives 3 . I tried...

I've at last been able to make a call.(Telephone use difficulties) I was told by...

Nackapan

•1 year ago

5 Replies

Latest GP diagnosis is... I’m getting old! I'm 55! Help with next steps please… 😠

Hi everyone. So had my GP follow up since my previous posts. My ferritin is 26, which the GP informs me is the highest it’s been since they tested in 2017....

Hi everyone. So had my GP follow up since my previous posts. My ferritin is 26...

KBird01

•1 year ago

40 Replies

pulmonary embolism

good morning everyone. I’ve been poorly with a blood clot in my lung which after 4 doctors 1 paramedic 2 hospital visits they found on a chest X-ray. I had a...

good morning everyone. I’ve been poorly with a blood clot in my lung which afte...

Hedgehogs15

•1 year ago

18 Replies

First International b12 conference

I just spotted this; looks interesting: https://b12conference.nl/

Hidden

•1 year ago

Be the first to reply

"Tootle Loo"

An interesting article of B12...

clivealive

Forum Support•1 year ago

16 Replies

battling B12 deficiency/pernicious anemia

For years , I have been going through cycles of extreme exhaustion, brain fog , balance issues, and I have lived with ringing in my ears since youth. Three...

For years , I have been going through cycles of extreme exhaustion, brain fog , ...

soandsing

•1 year ago

11 Replies

Vit B12 too high?!!

Just had my vitamin B12 blood test results back and and it's way over what it should be apparently 2000 ng(200-900) could this be causing my double visionand...

Just had my vitamin B12 blood test results back and and it's way over what it sh...

PolyannaYorkshire

•1 year ago

41 Replies

Hematologist or Neurologist

Any opinions or even a guess would be helpful. In the UK which is more likely to give a correct diagnoses of B12 deficiency ? A Hematologist or a Neurologist....

Any opinions or even a guess would be helpful. In the UK which is more likely to...

WIZARD6787

•1 year ago

10 Replies

Blood tests woes….B12 included against my wishes

I’ve just been for my coeliac, rheumatological etc blood tests to see if if autoimmunity is causing seizures issues. Against all recommendations from...

I’ve just been for my coeliac, rheumatological etc blood tests to see if if auto...

RoseFlowerDew

•1 year ago

3 Replies

Horrible off balance feeling

Early January i went to see a few GP's as i was feeling very off balance. They thought it could be an inner ear infection. However 1 of the GP's arranged for...

Early January i went to see a few GP's as i was feeling very off balance. They t...

Cheetahsrmyfave

•1 year ago

15 Replies

List of Neurological Symptoms

Asking for help again. Working with a friend who is navigating the UK medical system. Tests for B12 were taken prior which showed B12 deficiency and GP did...

Asking for help again. Working with a friend who is navigating the UK medical ...

WIZARD6787

•1 year ago

25 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2023

LAST FYI ON shelf life of B12. Hope it helps.

More FYI from https://perniciousanemia.org/b12/injections/expiry/

FYI FAMILY

Backpain & tiredness and legs (from waist down)

Hit a vein while injecting

More curious ponderings - hypochlorhydria

Tongue pain and white tongue 🙁😥😢

B12 - advice on supplementing injections sought

HELP desperately needed….. 🤒

When will treatment for B12 catch up?

Filter Straws

diagnosis

B12 & Folate Deficiency and tolerability of antibiotics (why I react badly to them)

To brighten the day

Looks Familiar??? When it walks like a duck, quacks like a duck …

Neurological Systems not Accepted.

So, why is B12 not available over the counter in the UK?

What happened to Biermer's Disease?

Serious condition taken so lightly?

PAS Helpline

Latest GP diagnosis is... I’m getting old! I'm 55! Help with next steps please… 😠

pulmonary embolism

First International b12 conference

"Tootle Loo"

battling B12 deficiency/pernicious anemia

Vit B12 too high?!!

Hematologist or Neurologist

Blood tests woes….B12 included against my wishes

Horrible off balance feeling

List of Neurological Symptoms

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