Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,244 members • 23,423 posts

All posts for December 2022

B12/B9 balance

Since diagnosis with PA last year, I have had bi-monthly B12 injections and take a daily supplement of folic acid (Boots, 2 tablets). I have noticed that for...

Since diagnosis with PA last year, I have had bi-monthly B12 injections and take...

ADDG

•2 years ago

3 Replies

shingles

good morning everyone I wonder if you can advice please. I have a bad dose of shingles and I have also had lots of stress since my last B12 injections. on...

good morning everyone I wonder if you can advice please. I have a bad dose of ...

Hedgehogs15

•2 years ago

8 Replies

Third highest cause of ‘poor patient outcomes’ is poor medical care….

I noticed the other day the BBC news had an article on the topic that a high proportion of deaths is caused by the medical community but I can’t find it. Along...

I noticed the other day the BBC news had an article on the topic that a high pro...

RoseFlowerDew

•2 years ago

26 Replies

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Can anyone recommend a good private pernicious anemia doctor anywhere in Scotland? Two NHS GPs ignored my symptoms they don't listen

Hello, I am desperately looking for a doctor who is competent about vitamin B12 deficiency and/or pernicious anemia. I am positive to gastric parietal cell...

Hello, I am desperately looking for a doctor who is competent about vitamin B12 ...

Patient300

•2 years ago

2 Replies

Can Someone Explain this Paper?

I'm always tweaking my sleep issues and have recently started taking glycine supplements at night. They really seem to help me stay asleep all night. Anyway,...

I'm always tweaking my sleep issues and have recently started taking glycine sup...

MoKayD

•2 years ago

9 Replies

VitaCoco for Potassium - where does the potassium go first?

Finally, due to remote living, I've got some VitaCoco for the potassium. What my curious mind wants to know is: How does the Potassium know which deficient...

Finally, due to remote living, I've got some VitaCoco for the potassium. What my...

TigerTea

•2 years ago

1 Reply

intrinsic factor test after starting IM injections help please

hi everyone not been on for awhile, hope your all ok, I just wanted to ask if you have autoimmune PA (intrinsic factor positive) would or could this test be...

hi everyone not been on for awhile, hope your all ok, I just wanted to ask if yo...

Steph0077

•2 years ago

6 Replies

Headache and dizziness

Hi, There is a post today about headaches and numbness. I have slowly, over time, increased my B12 shots and I am seeing some positive effects (starting...

Hi, There is a post today about headaches and numbness. I have slowly, over ti...

EiCa

•2 years ago

8 Replies

B-12 is Low (398), Folate is High, HCY is 55.6, uMMA is 1.7 , vitamin D and C and Magnesium are Low, all B vitamins are low.

Why is the GP not taking my labs seriously, I've been taking methylcobalamin tablets for a year and just began 5-MTHF because of Folate Deficiency found in my...

Why is the GP not taking my labs seriously, I've been taking methylcobalamin tab...

Hoyle

•2 years ago

9 Replies

Low B12 and headaches

I suffer with low iron and low b12. I had an iron infusion 10 days ago, prior that I and a persistent headache for a week. I had a b12 injection 2 days after...

I suffer with low iron and low b12. I had an iron infusion 10 days ago, prior th...

Beee2

•2 years ago

3 Replies

Sigh, GP knowledge...

A rant I suppose but any suggestions that might help... I also have SIBO (Small Intestine Bacterial Overgrowth) where bacteria from large bowel get in to...

A rant I suppose but any suggestions that might help... I also have SIBO (Small...

TigerTea

•2 years ago

6 Replies

NNitrofurantoin Help

aa Dr has prescribed me nitrofurantoin however I am still on my loadin doses an only been on folic acid for 10 days. Has anyone been ok on this. It says don't...

aa Dr has prescribed me nitrofurantoin however I am still on my loadin doses an ...

mabs79

•2 years ago

13 Replies

Bcomplex seems to have helped!

I added a bcomplex to my regime and instantly broke out in spots and got more stamina - have I turbo charged my B12 injections?!

I added a bcomplex to my regime and instantly broke out in spots and got more st...

MrsTuft

•2 years ago

4 Replies

German pharmacies and ordering

So it's been quite a journey trying to order more B12 ampoules . First I went back to Panpharma and accidentally ordered the cyanocobalamin which I am not...

So it's been quite a journey trying to order more B12 ampoules . First I went ba...

Frogit

•2 years ago

18 Replies

Newbie here, tests/symptoms suggest PA or AAG

Hi everyone. My medical adventures have been ongoing for years but, like many others, I have struggled to find a definitive diagnosis for my symptoms. My...

Hi everyone. My medical adventures have been ongoing for years but, like many ot...

Pante

•2 years ago

8 Replies

Headache & dizziness

Had my 4th loading dose of B12 earlier today, currently suffering with a bad headache this eve & numbness & tingling in my left hand, is this a normal reaction...

Had my 4th loading dose of B12 earlier today, currently suffering with a bad hea...

Electricblue22

•2 years ago

8 Replies

PA with iron deficiency

Hi all.I think I told you guys that my Iron is very low. Ferritin is 5, iron saturation is 4 and always low rbc. I finally got set up with an infusion center...

Hi all.I think I told you guys that my Iron is very low. Ferritin is 5, iron sat...

Wowo23

•2 years ago

11 Replies

Slight occasional cough

Does anyone with pernicious Anemia get a slight cough off and on?

25092

•2 years ago

6 Replies

Hi - I’m new here

Hi Everyone, I am new here. I was just diagnosed this week. I had been diagnosed with Hashimoto and then given iron infusions. Then blood tested and showed I...

Hi Everyone, I am new here. I was just diagnosed this week. I had been diagnose...

DiNL

•2 years ago

18 Replies

Prescription back!

I'd put a letter in thr surgery post box on Saturday.It was a 'strong' letter and I didn't want to dilute it which would probably have happened if not posted...

I'd put a letter in thr surgery post box on Saturday.It was a 'strong' letter an...

Nackapan

•2 years ago

12 Replies

high B12 without supplementation folate low

what tests should I request? I’ve been advised to use a folic acid supplement. But why are B12 and ferritin high?

what tests should I request? I’ve been advised to use a folic acid supplement. B...

PaulaG3

•2 years ago

5 Replies

Stock back in at apohealth!

after almost giving up trying I double checked my usual pharmacies for stock this morning and to my surprise tadah! Apohealth finally have stock back in. I...

after almost giving up trying I double checked my usual pharmacies for stock thi...

SallyRees

•2 years ago

11 Replies

B12 normal but folate low normal

I’ve posted my husband’s most recent bloods below. He’s been diagnosed with autoimmune thyroiditis and this blood result was from October before he was...

I’ve posted my husband’s most recent bloods below. He’s been diagnosed with auto...

Zmalp

•2 years ago

6 Replies

Needle Disposal

Hi Guys Now I am going to be self injecting can anyone advise how I go about disposing of the needles and empty B12 ampules? What does it cost? Thank you...

Hi Guys Now I am going to be self injecting can anyone advise how I go about di...

Wwwdot

•2 years ago

13 Replies

starting self injecting EOD .. have really bad stabbing pains in feet

hi everyone I’ve just started self injecting eod .. the stabbing pains in my feet are wicked !! In my head I feel that this means it’s starting to work ?...

hi everyone I’ve just started self injecting eod .. the stabbing pains in my ...

Lowblow

•2 years ago

5 Replies

Latest B12 Order from Germany

Hi All, Just a quick update to thank wedgewoodfor the advice to try Apotal pharmacy in Germany for PanPharma B12 1ml/mg Depot. They arrived via DHL in...

Hi All, Just a quick update to thank wedgewoodfor the advice to try Apotal phar...

KBird01

•2 years ago

3 Replies

can you have normal iron cells and not megablastic and still have pernicious anemia ?

I am curious to know if megablastic anemia whereby the bloodcells are larger in shape has to be present in PA patient. And my second question would be,...

I am curious to know if megablastic anemia whereby the bloodcells are larger in ...

Reembow

•2 years ago

7 Replies

Unbelievable.....

I've been using thd NHS app. For repeat prescriptions as nog taken ovef the phone now. B12 ampoules for self sc injection.A written request very slow. Only to...

I've been using thd NHS app. For repeat prescriptions as nog taken ovef the phon...

Nackapan

•2 years ago

11 Replies

bringing b12 back from Germany ?

hi everyone my friend is travelling to Germany to a Xmas market , is it legal for her to bring b12 back in her hand luggage ?

hi everyone my friend is travelling to Germany to a Xmas market , is it legal...

Lowblow

•2 years ago

10 Replies

bb11B12 absorption trststests

wwhat tests can Dr do to check my absorption of b12 and folate through my stomach. I am on loading doses 3 x a week for 2 weeks. I have neuro symptoms and...

wwhat tests can Dr do to check my absorption of b12 and folate through my stomac...

mabs79

•2 years ago

14 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2022

B12/B9 balance

shingles

Third highest cause of ‘poor patient outcomes’ is poor medical care….

Can anyone recommend a good private pernicious anemia doctor anywhere in Scotland? Two NHS GPs ignored my symptoms they don't listen

Can Someone Explain this Paper?

VitaCoco for Potassium - where does the potassium go first?

intrinsic factor test after starting IM injections help please

Headache and dizziness

B-12 is Low (398), Folate is High, HCY is 55.6, uMMA is 1.7 , vitamin D and C and Magnesium are Low, all B vitamins are low.

Low B12 and headaches

Sigh, GP knowledge...

NNitrofurantoin Help

Bcomplex seems to have helped!

German pharmacies and ordering

Newbie here, tests/symptoms suggest PA or AAG

Headache & dizziness

PA with iron deficiency

Slight occasional cough

Hi - I’m new here

Prescription back!

high B12 without supplementation folate low

Stock back in at apohealth!

B12 normal but folate low normal

Needle Disposal

starting self injecting EOD .. have really bad stabbing pains in feet

Latest B12 Order from Germany

can you have normal iron cells and not megablastic and still have pernicious anemia ?

Unbelievable.....

bringing b12 back from Germany ?

bb11B12 absorption trststests

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