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Pernicious Anaemia Society

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All posts for December 2022

B12 tablets not working on about 30% of patients - any reports?

I’ve had the figures that b12 tablets (cyanokobalamin) works for 70% and dont for 30%, but no source for the info. But recently I found that professor Ebba...

I’ve had the figures that b12 tablets (cyanokobalamin) works for 70% and dont fo...

Peder1962

•1 year ago

9 Replies

Below range Active B12, Increasing serum B12, Low folate

Hi My health board (in Scotland) doesn’t use the Active B12 test so they are unwilling to accept the Medichecks test I had done which showed a slightly below...

Hi My health board (in Scotland) doesn’t use the Active B12 test so they are un...

GW1000

•1 year ago

4 Replies

Hevert B12 ampoules

Hi. Just wondered if anyone uses Hevert B12. I always used Rotexmedica but it seems unavailable now. I had bought the Hevert ampoules some time ago but was...

Hi. Just wondered if anyone uses Hevert B12. I always used Rotexmedica but it se...

Misaya

•1 year ago

15 Replies

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B12 Reading

I found a couple of interesting articles about B12 deficiency https://lpi.oregonstate.edu/mic/vitamins/vitamin-B12 This article talks about a study the US...

I found a couple of interesting articles about B12 deficiency https://lpi.orego...

MoKayD

•1 year ago

6 Replies

Cyanocobalamin

Does anyone know of any contra indications for using CyanoC for SI rather than Hydroxoc? I understand that CC has a shorter life in the body than HC.

Does anyone know of any contra indications for using CyanoC for SI rather than H...

Orchard33

•1 year ago

5 Replies

What should be monitored if we have ongoing B12d and SI?

What should we be tracking in case of issues or to build a history? Since my GP denies I have a problem ("your B12 is through the roof") nobody watches my...

What should we be tracking in case of issues or to build a history? Since my GP ...

Mashie44

•1 year ago

19 Replies

ABC Juice for B12D

Hope everyone's all keeping well and warm as we head into the holiday season. I came across a video of a guy in India with B12 Deficiency whose Doctor...

Hope everyone's all keeping well and warm as we head into the holiday season. I...

Pickle500

•1 year ago

19 Replies

Symtoms got worse like fatigue Insomnia after cyanocobalamin injection

Hi all Recently i completed my 8th b12 injection after 5 loading doses each week i can see some symtoms getting worse anyone experienced like this i saw some...

Hi all Recently i completed my 8th b12 injection after 5 loading doses each week...

ack6959

•1 year ago

7 Replies

B12 INJECTIONS

DO YOU HAVE ANY CONNECTION TO BUY VITAMIN B12 FROM?

ldbutts

•1 year ago

6 Replies

Is my Hydroxocobalamin order to the USA about to be canceled?

I want to make a contingency plan in case it will likely be canceled. I ordered these:...

I want to make a contingency plan in case it will likely be canceled. I ordere...

lazynascar

•1 year ago

10 Replies

B12 deficiency side effects after drinking

Has anyone experienced symptoms returning from one alcohol drink for 2 days? I had a birthday weekend last Thurs and Fri and haven’t been drinking.Get weekly...

Has anyone experienced symptoms returning from one alcohol drink for 2 days? I h...

Dlj1213

•1 year ago

13 Replies

Research

Hi, I'm trying to write something with links to evidence based research with links to articles that actually work. I was told of a website that had articles...

Hi, I'm trying to write something with links to evidence based research with li...

thinkin

•1 year ago

4 Replies

Pernicious Anemia and Endicrine

I was diagnosed with B12 deficiency in the spring of 2021. I was initially placed on a regimen of B12 injections appropriate for patients with blood symptoms....

I was diagnosed with B12 deficiency in the spring of 2021. I was initially place...

WiscGuy

•1 year ago

3 Replies

Self-Injecting - rookie question

Hi Guys Managing my needle phobia and self injecting. 🥹 Odd emotions as I look forward to SI time to get it over with feel better whilst dreading it at the...

Hi Guys Managing my needle phobia and self injecting. 🥹 Odd emotions as I lo...

Wwwdot

•1 year ago

13 Replies

PA and my first iron infusion

Hi all,I had my first iron infusion on Tuesday. I'll have one a week for 10 weeks. They gave me IV benadryl before infusion started to combat any reactions. I...

Hi all,I had my first iron infusion on Tuesday. I'll have one a week for 10 week...

Wowo23

•1 year ago

1 Reply

Stomach pain

Hi. I have B12 deficiency and si every other day - never tested for PA. I have often had a grumbling stomach and some discomfort but it’s been manageable....

Hi. I have B12 deficiency and si every other day - never tested for PA. I have ...

LizWilsonpa

•1 year ago

18 Replies

Neuropathy and the Cold weather

I am having to wear carpel tunnel gloves to keep my hands warm along with fleece lined gloves. I live in England and recently had a heavy snow fall and its...

I am having to wear carpel tunnel gloves to keep my hands warm along with fleece...

dl56uk

•1 year ago

3 Replies

Muscle problems associated with long term daily IM injections

Unfortunately I seem to require a ridiculous amount of B12 in order to avoid my symptoms worsening - 2mg of hydroxocobalimin daily (I inject 2x1ml ampoules at...

Unfortunately I seem to require a ridiculous amount of B12 in order to avoid my ...

jeremycat_

•1 year ago

4 Replies

any suggestions have you hadsimilar symptoms

I live in Tenerife and broke my ankle in 3 places inMarch. I have two plates fitted. Very good movement but a nasty ulcer that took 12 plus weeks to heal. In...

I live in Tenerife and broke my ankle in 3 places inMarch. I have two plates fit...

Lizmcgarty

•1 year ago

4 Replies

Anyone else having problems with the cold weather?

This cold weather is very bad for me. My main remaining symptom of B12D is problems with my autonomic nervous system. For example I get very dizzy when I stand...

This cold weather is very bad for me. My main remaining symptom of B12D is probl...

charks

•1 year ago

3 Replies

Can anyone help 🤞🤗

Not sure if posting in the right bit 🤔🙈 My symptoms are Extreme tiredness Feel like I zone out almost into space Tiredness behind eyes Feel...

Not sure if posting in the right bit 🤔🙈 My symptoms are Extreme tiredness ...

Happyxx

•1 year ago

3 Replies

The Human Serum Metabolome of Vitamin B-12 Deficiency and Repletion, and Associations with Neurological Function in Elderly Adults

Just came across this paper from a few years ago. Thought it interesting as, so often, B12 seems to be though of as a one-trick pony - affecting erythropoiesis...

Just came across this paper from a few years ago. Thought it interesting as, so ...

helvella

•1 year ago

2 Replies

GP has finally agreed to giving me B12 injections but no loading doses ☹️

After over 8 years of battling various different GPs in wherever I happened to be living at the time (and in the meantime, self-medicating orally), I’ve...

After over 8 years of battling various different GPs in wherever I happened to b...

Edso57

•1 year ago

9 Replies

Cutaneous Sensory system

On reading the revised March 2022 NICE guidelineson B12/ folate deficiency. This was on the list: Had no idea what it meant Describes my Scalp impeccably....

On reading the revised March 2022 NICE guidelineson B12/ folate deficiency. This...

Nackapan

•1 year ago

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B12/B9 balance

Many thanks for your replies. I hadn't heard of the folate trap and I'll take a look at those articles. Thanks again.

Many thanks for your replies. I hadn't heard of the folate trap and I'll take a ...

ADDG

•1 year ago

2 Replies

Refused B12 Inj at Drs

I went for my 12 weekly b12 at the Drs this eve. I SI twice a week at the moment and had mentioned it to the nurse the last time I went there. Her Sister has...

I went for my 12 weekly b12 at the Drs this eve. I SI twice a week at the moment...

LJH50

•1 year ago

32 Replies

Hydroxocobalamin supplies.

It looks as though the new owners of Panpharma are now concentrating on selling by repackaging their B12 for local sales. In UK its Accord Healthcare. This is...

It looks as though the new owners of Panpharma are now concentrating on selling ...

Bellabab

•1 year ago

5 Replies

Could anyone help me with my results please

18/11/22 Serum iron 24 .4 range 5.8-34.5 Transferrin 2.34 range 2-3.6 Unsat binding capacity 59 range 50-90 % transf sat 41% range 16-40% Haemoglobin 138...

18/11/22 Serum iron 24 .4 range 5.8-34.5 Transferrin 2.34 range 2-3.6 Unsat bi...

Paula1710

•1 year ago

10 Replies

Iron deficiency and mental health

Hi Everyone,Just after some guidance. Back in September 2022, after months of weird symptoms (heart palpitations, tachycardia, breathlessness, fatigue, low...

Hi Everyone,Just after some guidance. Back in September 2022, after months of we...

Pheebs93

•1 year ago

5 Replies

Tracy Witty campaign update

Interesting update on the B12 deficiency blog. https://www.b12deficiency.info/b12-otc-petition-the-mhra-still-dragging-their-heels-and-passing-the-buck/ We...

Interesting update on the B12 deficiency blog. https://www.b12deficiency.info/...

Pickle500

•1 year ago

2 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2022

B12 tablets not working on about 30% of patients - any reports?

Below range Active B12, Increasing serum B12, Low folate

Hevert B12 ampoules

B12 Reading

Cyanocobalamin

What should be monitored if we have ongoing B12d and SI?

ABC Juice for B12D

Symtoms got worse like fatigue Insomnia after cyanocobalamin injection

B12 INJECTIONS

Is my Hydroxocobalamin order to the USA about to be canceled?

B12 deficiency side effects after drinking

Research

Pernicious Anemia and Endicrine

Self-Injecting - rookie question

PA and my first iron infusion

Stomach pain

Neuropathy and the Cold weather

Muscle problems associated with long term daily IM injections

any suggestions have you hadsimilar symptoms

Anyone else having problems with the cold weather?

Can anyone help 🤞🤗

The Human Serum Metabolome of Vitamin B-12 Deficiency and Repletion, and Associations with Neurological Function in Elderly Adults

GP has finally agreed to giving me B12 injections but no loading doses ☹️

Cutaneous Sensory system

B12/B9 balance

Refused B12 Inj at Drs

Hydroxocobalamin supplies.

Could anyone help me with my results please

Iron deficiency and mental health

Tracy Witty campaign update

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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