So it's been quite a journey trying to order more B12 ampoules . First I went back to Panpharma and accidentally ordered the cyanocobalamin which I am not brave enough to try using...yet...if things get worse I might. Then I tried a new to me one Apohealth (Apogesundheit) I ordered the goods, paid with my credit card, all was well. Two days later they cancelled the order and refunded my order.
I went back to the Bodfeldapothekie which I had used successfully before. They could not take my order. On Bodfelt and on Panpharma there is now advice in red letters at the bottom of the page saying not to self-inject.
I ordered Hevert ampoules (100, I was going to share with another B12 deficient self-injector locally) from Apohealth again two days ago. I thought all was well but once again they refunded my payment and said there was a technical issue. (Sad to say I had actually forgotten that I had been down that road before a couple of months ago after which I had the cyanocobalamin incident!) Yeah, don't order B12 when your brain isn't working properly.
The same red letter advice was on Versandepo.de but I was able to order Pascoe ampules today and the order seems to have gone through ok. I will hold my breath! I only ordered one pack of ten in case it was the size of the order which was the problem but that means I cannot share with my friend.
Meanwhile I saw the advanced nurse practitioner at our practice because of a urine infection. She had already prescribed antibiotics which didn't work. I had to see her before I could have more. She also checked for blood results which I hadn't been told about and found I was iron deficient (surprise surprise...not) . She asked if there was anything else, I took the plug because she was so nice about everything and told her that the doctor was insisting on a blood test before giving me back my B12 injections because it had been more than 2 years since I'd had one ....I told her I hadn't gone over to self-injecting when Covid stopped mine and that I though it was highly unfair that I would have to stop taking B12 for a long period in order to have the test and would not be able to function for work. She said that she ws happy to put me back on the bi-monthly injection I had had before. A minor miracle....but over the last two years I have been injecting monthly as that is what I need in order to function. By the 4th week I am unable to stay awake in the evening, losing my words, having a constant headache and becoming anxious and depressed as well as out of breath. I don't think I can go back to bi-monthly and I am not up for another round of fighting with our part-time docs who never follow up so it is always a different one you see. I am very grateful to the nurse practitioner but I don't want to push it until she knows me better (if she stays around ). So, I am back to pursuing B12 from Germany and wondering who is suddenly enforcing the "don't sell to the UK" rules.
I think we might be running into big trouble soon and should be working out what we can do about this. Without the supplies from Germany we will be at the mercy of the GPS who seem to treat us like drug addicts. Sorry for the big moan but I am seriously worried about the way things are going even though I am delighted that B12 is back on my prescription!
Come on government....give all the PA and B12 deficient patients a present from Santa....as much B12 as we need, when we need it....it's not a lot to ask. I'm sure we'll all go on doing it ourselves if you give us the prescription so we can buy B12 here like others buy paracetamol...a far more dangerous substance that can kill you!