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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for October 2021

MHRA launches public consultation on future of medical device regulation

I strongly encourage you to consider replying to this invitation to submit your views. I suspect a lot of members use one or more devices and would likely...

I strongly encourage you to consider replying to this invitation to submit your ...

helvella

•3 years ago

8 Replies

Symptoms increase following b12 injections

I was diagnosed with b12 deficiency 143 low. In have had sever debilitating neuropathy, wide spread pain,fatigue, joint pain, night sweats, and brain fog for...

I was diagnosed with b12 deficiency 143 low. In have had sever debilitating neu...

Lnorris232

•3 years ago

5 Replies

Still trembling and being shocked internally. Could it be a side effect of gadolinium?

I am still trembling and being shocked internally. Could it be from eight doses of gadolinium injected over two years? I am a MBC patient and have scans...

I am still trembling and being shocked internally. Could it be from eight doses...

jersey-jazz

•3 years ago

17 Replies

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Has anyone used CBD vape in order to decrease B12 deficiency anxiety?

There is a new finding that CBD iil can help lung cancer patients and also decrease rumors size. In the meantime it helps anxiety. The most bioavailable form...

There is a new finding that CBD iil can help lung cancer patients and also dec...

Hamayeshguy

•3 years ago

1 Reply

www.versandapo.de seem to be delivering to U.K. again.

I just tried to order Panpharma VitaminB12 depot from versandapo.de, just to see if they would deliver to U.K. again . It seems that they do . It’s always good...

I just tried to order Panpharma VitaminB12 depot from versandapo.de, just to see...

wedgewood

•3 years ago

31 Replies

Using Bodfeld Apotheke web site for B12

I'm having trouble using Bodfeld's web site with Google translate. When I enter my mail and password, it switches to German and says my entries are invalid....

I'm having trouble using Bodfeld's web site with Google translate. When I enter ...

Cetus

•3 years ago

3 Replies

So dizzy after b12 jab

Hi I had my b12 jab today after a 6 month wait (usually every 3 months but my levels were ok)- I have pernicious anaemia. And I feel so dizzy and sick. Has...

Hi I had my b12 jab today after a 6 month wait (usually every 3 months but my le...

MoonkidL

•3 years ago

3 Replies

Hydroxy -V - Cyano

For the last 6 years or so I have been self injecting B12 (Hydroxycobalamin version). The results have been very positive. Brain fog gone, extreme fatigue and...

For the last 6 years or so I have been self injecting B12 (Hydroxycobalamin ver...

roddogsbody

•3 years ago

5 Replies

Exercising with PA

As recently diagnosed earlier this year after going to the docs feeling exhausted heavy legs brain fog and tinnitus I haven’t been able to exercise as I used...

As recently diagnosed earlier this year after going to the docs feeling exhauste...

WYLass

•3 years ago

27 Replies

Gezabel

Is possible my body is not absorbing B12 feel no difference at al after injections never have! Still fatigued

Is possible my body is not absorbing B12 feel no difference at al after injectio...

Gezabelle

•3 years ago

8 Replies

Blood or Hydroxocobalamin?

Hi all 👋 A urgent question please help if you can.🙏 How long after a intro injection of Hydro would it take to wee out any excess? Thank you. Ps I SI once...

Hi all 👋 A urgent question please help if you can.🙏 How long after a intro in...

Onlyme75

•3 years ago

6 Replies

B12 and Folic acid

Last year I had loading injections of B12 then went onto B12 tablets at my 6month blood test my B12 levels were good but my folate levels low so I took folate...

Last year I had loading injections of B12 then went onto B12 tablets at my 6mont...

tantoller

•3 years ago

3 Replies

Please help Why I got new symptoms after six months injection and seven months taking pills before that?

Before injection I took seven months pills and improved my symptoms which was started from megaloblastic RBC. But soon after I started injection everyday I had...

Before injection I took seven months pills and improved my symptoms which was st...

Hamayeshguy

•3 years ago

8 Replies

Very helpful to me

Just wanted to share what someone in the medical field that has Pernicious Anaemia herself for 11 years gave me. This list has been EXTREMELY HELPFUL being...

Just wanted to share what someone in the medical field that has Pernicious Anae...

25092

•3 years ago

24 Replies

Can this be due to B12 I.

My daughter has been having loading B12 for the last week. Her bloods showed B12 169 and Hb 10, ferritin 15 and other tests all skewed. Prior to this being...

My daughter has been having loading B12 for the last week. Her bloods showed B12...

Lunadoo

•3 years ago

9 Replies

B12 and neuropathy

In 2016 I was given b12 injections every 3 months due to low b12 and trigeminal neuralgia, I was not tested for PA. after 2 years I changes to sublinguals as I...

In 2016 I was given b12 injections every 3 months due to low b12 and trigeminal ...

Auntyp62

•3 years ago

8 Replies

B12

Blood tests

Hotpool23

•3 years ago

21 Replies

This article claims High dose if B12 doubles lung cancer in men

An article in daily express claiming lung cancer doubles in30 percent of men after ten years of high dose of vitamin B12 and 49 percent in men who take high...

An article in daily express claiming lung cancer doubles in30 percent of men af...

Hamayeshguy

•3 years ago

17 Replies

Folic acid dosage

Can anyone advise me on the dosage of folic acid please.Should 1tablet a day be necessary throughout life when having PA and on B12.Many thanks .

Can anyone advise me on the dosage of folic acid please.Should 1tablet a day be ...

Mrsannabbott

•3 years ago

5 Replies

Head hurts ...

https://healthunlocked.com/pasoc/posts/146861777/more-advice-needed. So, after hitting a brick wall with my previous GP, i had my first phone consult with new...

https://healthunlocked.com/pasoc/posts/146861777/more-advice-needed. So, after h...

Calypsoplus

•3 years ago

5 Replies

b12

where can i buy Hydroxocobalamin from ,two firms i have tried in Germany wont supply to England anymore.

where can i buy Hydroxocobalamin from ,two firms i have tried in Germany wont su...

scartgabe12

•3 years ago

16 Replies

Sharps for self-injecting

I am lucky enough to be getting everything I need to self-inject from the NHS, but my husband, whose levels are quite a bit higher (159) and who does not (yet)...

I am lucky enough to be getting everything I need to self-inject from the NHS, b...

Maisiethedog

•3 years ago

3 Replies

Can B12 deficiency cause abdominal nerve entrapment?

My first symptom of B12 deficiency started with weak stomach muscle almost six years ago and ended to severe abdomen muscle weakness and umbilical hernia. But...

My first symptom of B12 deficiency started with weak stomach muscle almost six y...

Hamayeshguy

•3 years ago

Be the first to reply

Intro post+needing guidance!

Hello all, new here and excited to learn and share and find answers. Hope everyone is doing well today xxx Keeping it short as I can, about me: from the U.K.,...

Hello all, new here and excited to learn and share and find answers. Hope everyo...

a-wonderful-seed

•3 years ago

28 Replies

GP is finally giving me the treatment I need!

In spite of very low B-12 levels (95), macrocytosis and neurological symptoms, the GP only gave me 5 loading doses. This was a concession as he wanted me to...

In spite of very low B-12 levels (95), macrocytosis and neurological symptoms, t...

Maisiethedog

•3 years ago

20 Replies

WHEN PURCHASING FROM AMAZON,PLEASE USE “AMAZON SMILE” , AND SELECT THE PERNICIOUS ANAEMIA SOCIETY AS YOUR CHARITY .AT NO COST TO YOURSELF.

If you do this , you contribute valuable funds to the society . Sorry to bore you once again , but I do put out this message from time to time , to inform new...

If you do this , you contribute valuable funds to the society . Sorry to bore yo...

wedgewood

•3 years ago

8 Replies

Hives from Injections?

I've noticed over the past month that I keep getting what I thought were mosquito bites. Very itchy red welts with a yellowish center. After yesterday's...

I've noticed over the past month that I keep getting what I thought were mosquit...

Soulquest

•3 years ago

14 Replies

Can my extreme body and muscle pain also be due to Pernicious Anaemia and B12 deficiency?

Thanks for all the informative replies regarding the availability of Schilling test. I have now requested some of the recommended tests from my GP.

Thanks for all the informative replies regarding the availability of Schilling ...

Garrillee

•3 years ago

17 Replies

My friend is going downhill fast

Hi everyone, my friend is doing everything right. B12 shots, eating healthy. No dairy, no gluten. Is with one if the top doctors in NYC. She was doing fine but...

Hi everyone, my friend is doing everything right. B12 shots, eating healthy. No ...

rescuedogs

•3 years ago

18 Replies

Feeling worse after loading dose.

Hi everyone. I posted the other week about my loading dose and feeling unwell. Quick cover of what’s happened. I had covid in Jan. Felt unwell after....

Hi everyone. I posted the other week about my loading dose and feeling unwell. ...

Moobear2

•3 years ago

16 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2021

MHRA launches public consultation on future of medical device regulation

Symptoms increase following b12 injections

Still trembling and being shocked internally. Could it be a side effect of gadolinium?

Has anyone used CBD vape in order to decrease B12 deficiency anxiety?

www.versandapo.de seem to be delivering to U.K. again.

Using Bodfeld Apotheke web site for B12

So dizzy after b12 jab

Hydroxy -V - Cyano

Exercising with PA

Gezabel

Blood or Hydroxocobalamin?

B12 and Folic acid

Please help Why I got new symptoms after six months injection and seven months taking pills before that?

Very helpful to me

Can this be due to B12 I.

B12 and neuropathy

B12

This article claims High dose if B12 doubles lung cancer in men

Folic acid dosage

Head hurts ...

b12

Sharps for self-injecting

Can B12 deficiency cause abdominal nerve entrapment?

Intro post+needing guidance!

GP is finally giving me the treatment I need!

WHEN PURCHASING FROM AMAZON,PLEASE USE “AMAZON SMILE” , AND SELECT THE PERNICIOUS ANAEMIA SOCIETY AS YOUR CHARITY .AT NO COST TO YOURSELF.

Hives from Injections?

Can my extreme body and muscle pain also be due to Pernicious Anaemia and B12 deficiency?

My friend is going downhill fast

Feeling worse after loading dose.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive