Please help Why I got new symptoms after six months injection and seven months taking pills before that?

[Hamayeshguy]

Before injection I took seven months pills and improved my symptoms which was started from megaloblastic RBC. But soon after I started injection everyday I had new symptoms. Now These symptoms bare getting worse. At beginning of injection my frequency was ten days then gradually I reduced it to every three days then stopped for twenty days and got back to every other day injection but now my symptoms that I never had are extreme fatigue, severe muscle weakness, severe muscle pain, sweating alot Evan at sleep, numbness in hands, and my blurry and double vision which I had before injection. Before megaloblastic experience I could run everyday. But now I can't even stand on my feet. My mental situation is so bad. I have no idea why these things happening. I'm also losing weight fast. My ferritin was also dropped now I'm going to ask my GP for taking Iron. I just followed everything on BNF guideline but looks like everything is going south if me.

What I'm doing wrong? I can't move out if my bed. For how long I have to inject at least this new symptoms get improved and why this new symptoms started that I never had? I now injecting make symptoms worse at the beginning but not after fourthy injection. Maybe every other day is too much for me. Really I don't know what to do because my GP doesn't know I do srof administer B12 shots. Fir how long I have to wait at least these new symptoms get improved. Now even I can't go out for buying groceries. Just crying why these things happening to me? In pills I didn't have these problems. Now I take B12 pills everyday too to see what happens. And also going to take iron pills and do whatever I can.

In the meantime are BNF guideline approved by UK health ministry or BNF is non-governmental organization.

In the other hand after reading many posts of previous years I found iron pills should be taken along with injection which maybe my symptoms started due to not taking iron pills.

I'm just wondering why at the time if just taking pills I didn't have these symptoms? The worst part is it's mental downgrade. I can't stop crying.

[Nackapan]

Sorry you have got worse.You only need iron if deficient or prescribed by your doctor so don't worry about that.

Go by your blood results.

Have other things been ruled out?

Try a different frequency of b12 injections and make a symptom diary.

We all seem to have dips abd it is a rollercoaster with not much guidance.

Depression is quite common with debilitating ongoing chronic illness

Get referrals if needed.

I was told no quick fix

How true .

Hopefully yiu will improve soon.

Take care

[Hamayeshguy in reply to Nackapan]

Thank you so much . I visit psychiatrist but really I'm scared to take depression medication and get worse. I have referral for internist and my GP also sent my blood work to lab for iron. I bought Iron supplement but waiting for lab result. I have also bought b complex with methyl folate to try other ways. I'm going to try methylcobalamine instead of cyanocobalamin. But exercise caused my problems. After starting exercise in very mild way but I don't know what happened that affected me so bad. In the last three weeks I lost 17 pounds after I stopped exercise. I'm going to switch to pills along with less frequency injection. But I was seen improvement in my eyes and my dizziness was also improved. But these muscle severe weakness and muscle severe pain and as well as far beyond extreme fatigue is unique in some ways like I'm melting down when stand in my feet and also new because even shoulders and feet can't keep itself which was developing by exercise . As soon as I stopped those new symptoms a little bit receded. But I'm not sure it's related to low iron because my iron was still in range but low bottom. I'm so scared and don't know what's wrong.

[VellBlue in reply to Hamayeshguy]

It's good you have a referral and the doctors are investigating. All the best!

[Nackapan in reply to Hamayeshguy]

Hang in there. I've felt ljje tgsg on many occasions. It's very difficult with no clear diagnosis.

Write a list of questions

[Hamayeshguy in reply to Nackapan]

Thank you. Is BNF guideline approved by UK ministry of health? Because really I don't know what organization is really approved this guideline.

[VellBlue in reply to Hamayeshguy]

en.m.wikipedia.org/wiki/Bri...

en.m.wikipedia.org/wiki/Nat...

[Hamayeshguy in reply to VellBlue]

Thank you so fir sharing link much it was a relief. At least I know everything is on right way.

[VellBlue in reply to Hamayeshguy]

No probs.😊🌼