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scartgabe12 profile image
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where can i buy Hydroxocobalamin from ,two firms i have tried in Germany wont supply to England anymore.

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wedgewood profile image
wedgewood

You perhaps used the Rotexmedica B12 depot ampoules in the past . Well the small pharmaceutical company Rotexmedica has been taken over by Panpharma , a French company . They now market them under their own name , but they are the same ampoules and are made in the same laboratories in Germany .

German online pharmacies that will ship to U.K.

Brexit has caused problems for German online pharmacies that were supplying vitaminB12 ampoules to the U.K. They now have to register with U.K. customs and collect any VAT for them and have extra paper work , customs documents etc because we have voted to leave the single European market .So many of those pharmacies have given up shipping to U.K. . Some , thank goodness,still do

The following are the various brands that are supplied..

Panpharma have 1mg x1ml B12 depot ampoules

Hevert have 1mg x 2ml. B12 depot ampoules .

Pasco have 1.5 x 1ml B12 depot ampoules .

bodfeld-apotheke.de. A large and reliable pharmacy , but they now only accept payments from U.K. by Bank Transfer . Simple and free of charge if you have mobile/ internet banking.They supply the information you need to make a transfer . Otherwise it’s a trip to your bank and a charge of £25.00!

Courier costs €9.89

apotheke-marienbrunn.de Delivery €12.95

The drop-down list of countries on this site calls the U.K.

“Vereinigtes Königreich Grossbritanniens und Nord Irland”

( The United Kingdom of Great Britain and Northern Ireland in case you don’t recognise it !)

shop.apotal.de courier €19.95 takes PayPal and cards

apohealth.de. click on American flag for English(!)

Courier €14.90

pharma24.de

curavendi.de. Courier €19.34

Amazon.de ( German Amazon) Obtainable in English

At the moment they are not stocking Panpharma b12 Depot . They have Hevert B12 Depot , but they come in 1mg x 2ml ampoules . Panpharma come in 1mg x 1ml ampoules . Reasonable delivery charges . They still are not selling the 1mg x 1ml ampoules .

——————————————————————————

Search for Panpharma B12 depot ( Hydroxocobalamin)

These ampoules are 1mg x 1ml

But if you use the following reference numbers , you will get the ampoules you want.

For packets of 10 and multiples thereof — 16199653

For packets of 100 — not yet announced

This is correct for September 2021 . Can be out of stock sometimes , but only for a day or two "

If a site is only in German , use Google Chrome or a translation app.

Hevert also have B12 depot ( Hydroxocobalamin) ampoules They are 1mg x 2ml though -same strength but more saline Also more expensive

Pascoe make 1.5mg x 1 ml ampoules .

Needles, syringes ,swabs and yellow sharps disposal boxes are obtainable from-

medisave.co.uk

exchangesupplies.org. ( Needles and syringes)

Intra-muscular injection needles 25G x 1inch

Sub-cutaneous injection needles 30G x 1/2 inch

Withdrawing needles 21G x 1 1/2 inches.

Blunt ended needles with or without a filter are also obtainable.( to withdraw the solution out of the ampoule ) using the injection needle for this will make it blunt (Ouch!)

Capri2020 profile image
Capri2020 in reply towedgewood

Such an excellent post! May I ask which syringes do you recommend from exchangesupplies.org ? First time I'm ordering, got the yellow needles 1inch, disposal box..Also, have you managed to get the 100x 1ml ampoules recently? They don't seem to be in stock. Thanks a mil :)

wedgewood profile image
wedgewood in reply toCapri2020

I like the never share 2ml syringes , because the needle can be very securely screwed on to it . The 100 pack ampoules are not sold at the moment . You’ll just need to order 10 x 10 of the 10 packs . . Maybe the new company Panpharma are not going to offer them .

You can get 100 packs of Hevert 1mg x 2ml ampoules and also the Pascoe 1.5 mg x 1ml ampoules . But theses are all more expensive usually . I have seen the Rotexmedica 100 for sale , but I wouldn’t buy those because the use by date will be short ,as Rotexmedica have you been making them for several months .

Best wishes .

Capri2020 profile image
Capri2020 in reply towedgewood

So I placed an order last night on apotheke-marienbrunn.de, payment via bank transfer but haven't received any emails from the company etc. What happens now?

wedgewood profile image
wedgewood in reply toCapri2020

i honestly don’t know . I don’t use that company. All i know is that that will deliver to U.K. . Now that versandapo.de have recently resumed shipping to U.K. , I find them really excellent people to deal with .But marienbrunn is a reputable online pharmacy in Munich — I’m sure that all will be well

Have you looked on your bank account to see if the transfer has gone through ? .

Capri2020 profile image
Capri2020 in reply towedgewood

Thanks for your reassuring words, payment looks fine so I may just email the company I guess? Little bit nervous though as never ordered anything this way before so it'll be interesting to see the developments. You used them before though or not? I'm really puzzled by why we can't get the ampoules in a UK supplier? ?

Capri2020 profile image
Capri2020 in reply towedgewood

Just a quick update that may be helpful to others who are looking to order B12 from Germany. The order did go through, paid via bank transfer, order was dispatched a few days later on the 18th of Nov and I've just received it today 😀. Date on the boxes 11/2023 so it's great. Shipping is a stinger but still cheaper than getting private shots in the UK. I'm happy. Special thanks to Wedgwood for the pointers 👍your kindness goes a long way🌸

valley16 profile image
valley16 in reply towedgewood

Will i have to pay customs charges on an order from Germany? I've just ordered some from there with a DHL delivery and it slipped my mind til just now that we're not in the EU anymore so i guess i have to pay? The bill was about £35 but £20 of that was shipping. Thank you if anyone can help (my first post!)

wedgewood profile image
wedgewood in reply tovalley16

jNot to worry valley16 . You won’t have any customs duty to pay .Ive imported B12 ampoules worth over £150 , and there was nothing to pay . The limit for duty free is higher than that , But i don’t know exactly how much higher it is . Shocked to hear that you paid £20 for courier . The bigger German online pharmacies are much cheaper than that . Because of the greater amount of business they do , they can get a better deal with the courier companies .

versandapo.de charges €9.00

bodfeld-apotheke.de charges €9.89 no matter how many you buy . The use by date is usually about 2years hence . Best wishes .

valley16 profile image
valley16 in reply towedgewood

Thank you! Yes the shipping, i had first tried one of the cheaper ones you listed earlier but i panicked when i saw it was hydroxocobalaminacetat not hydroxocobalamin, so i closed it thinking it was a different thing.

I then used another from your list apotheke-marienbrunn.de/ and after spending forever translating and trying to fill it in it put the shipping as 19.99 which was dearer than on your list but by that point i'd spent so long trying to fill the page in i just carried on! I realisted that too is hydroxocobalaminacetat. Is it 100% the same as what we would have had on prescription?

I don't have PA, but was diagnosed as severe deficiancy about 20 years ago as i had had some numbness and nerve damage happening. And was on injections every 8 weeks for about 10 years. I was fine physically. Then they changed it to every 3 months. And then i started getting faced with the lectures that my blood s show normal so why don't i go 6 months without to see if i need it. I tried to protest. But they put me on every 6 months for the 2 years that lead up to March 2020, when of course they stopped doing injections altogether. I got put onto the tablets. Which i don't feel work. One GP was very put out to see i'd even been given a repeat prescription for tablets as "you can buy these on a shop".

In August i had what they thought was a mild stroke, where i had numbness and tingling in my left foot, left arm, etc. MRI showed it wasn't that, it showed central canal stenosis in my neck, with bone growing into my spinal cord. However, the spine expert said that he doesn't feel the current severity/mildness of the spine problem should be causing the amount of numbness and tingling and nerve damage i seem to be having.

I looked into things further and typed out a massive thing quoting nice guidelines etc about B12 and gave it my GP, begging for a reintroduction to injections, as it could, could be all from not having my injections. It might not be, i might have something like MND or something untreatable, but i typed out all the stuff that says how blood tests don't show the useable B12 they just show all of it, and that the tablets don't work the same etc, and that surely please could i have the injections again. Incase, just to see if there is any improvement.

I have had 6 months of worsening numbness, i'm a mum to a 5 year old, i can't run, my left leg from knee to toes in partially numb, prickly, i limp. My arms and my right leg have had it start too over the last 4 months.

So my GP actually agreed to give it a go on injections, but he wouldn't do a loading dose, he said 1 a week for 3 weeks, then 1 every 3 months. Every time i went for my single one the nurse would say no you need a loading dose, then she would look at teh screen and whatever it is he'd written clearly shut her up. I feel he's just agreed to give me some to give me hope - to humour me, i don't think he feels it will fix things.

I however felt surely i should be having teh loading does of 5 in 2 weeks. So, i used my brain, and i got a 2nd packet of ampoules from them on prescription by claiming my 5 year old had crushed them under the wheel of his indoor trike. So i have used those to self inject my own inbetween theirs! So i managed the loading dose of 5 in 2 weeks.

And i do feel a bit better, i have more energy yes, but my numbness and tingling and all of that is now only my left leg knee to toe, the rest of me has seemed better.

So i thought should i keep going and buy some?

If you guys were me, would you inject once a week and see how things go? As it's for "neurological" reasons, and the guidelines do say to keep going frequently. My GP will now be waiting 12 weeks til they do me again.

So i've bought some. I haven't told my partner as i know he thinks buying things online "could have anything in them". But do you guys 100% swear by it? It is the same isn't it?

Sorry for the life history there!

It;s just i've been so very ill. If there is a chance it is caused by having to drop to every 6 months 4 years ago and then 2 years ago switch to just the useless tablets, then i want to try and inject my own. Would you say weekly then for now til May when the doctors do their next one? I've had 5 so far - 3 by the doctors and i did my own 2 inbetween to give me the loading dose.

I haven't spell checked this sorry, my fingers go a little numb so my typing is iffy (though my hands have seems a little better since dose 4 and 5)

wedgewood profile image
wedgewood in reply tovalley16

I’m afraid that we patients with Pernicious Anaemia / b12 deficiency have to resign ourselves to the fact that the medical profession is very ignorant about our condition , and in many cases we just have to bite the bullet and treat ourselves . I had to do that 6 years ago , and you need to do that now. You have your child to consider . Those Panpharma ampoules are excellent , and the Hevert and Pascoe too . They are Made in Germany and have a first class reputation . You buy them from accredited online German Pharmacies. which are strictly controlled by the German health authorities . They are not just from “ somwhere on the Internet “ . You can have complete confidence in them . If you need to inject very often until you have got rid of those

Symptoms , I would buy 100 ( 10 x 10 packs) from one of the big pharmacies . You will find that the use-by date is just over 2years . I do that because I inject once a week . There is no danger whatsoever in very frequent injections. Yes it’s a good idea to give yourself loading injections, and then to inject every other day until there is no further improvement . Then as often as required to keep symptoms from returning . I’ll send you some further instructions . You will become expert in no time ! I inject into my thighs alternatively , I use the I,M. method . You can look up online to see exactly where the I M. injection should be placed . You could also inject sub-cutaneously with a shorter needle if you so wished .

valley16 profile image
valley16 in reply towedgewood

Thank you so much. I so very much appreciate it - both the pracitcal help and the encouragement. As i (at first) was only planning on using the extra pack of ampoules i tricked the doctors into giving me i'd ordered these needles medbasic.co.uk/b12-injectio... but i know they will work out quite dear if i do carry on using 2 injections a week for a long time. I bought 2 x 10 packs of the ampoules as again i hadn't really thought through if it would be 1 a week, 2 a week, or more, i just went for it last night and ordered anything for now! If it agrees with me (which i'm sure it will) i will order 100 like you say. I'm nervous about having to admit to any healthcare place that i'm doing this though - which when i get a follow up at the hospital over my neuro symptoms (i have nerve conduction studies in 2 weeks, and then a month or so after that i should get to speak to the expert again) maybe i should - esp if i feel a bit better with it. Or do i just keep schtum, as it's not as if the hospital will tell me GP to give it me weekly. Knowing the NHs i'd be expecting a telling off for self injecting! :( I found it telling that the nurse at me GP last week told me "you can buy these now at beauticians, about £40" - which seems to show to me she knows i need them despite them only handing it out sparingly. Anyway, yes, thank you again for help. I had been injecting into my upper arm.just below shoulder, the triangle of muscle that they use at the docs. I'd be nervous about my leg. I'm not sure what to do, other than maybe an injection one day, then leave a gap of 2 days, then do it all again on loop until i can tell if it's working on my neuro signs. It has felt a little better based just on the 6 in 2 weeks i've now had (3 by them, 3 by me). So i'm hopeful.

Capri2020 profile image
Capri2020

That's ace :) I like the syringe choice. What is/ how long usually is the expiration date on the For packets of 10 and multiples thereof — 16199653? Is delivery quick or customs slow things down? Many thanks :)

wedgewood profile image
wedgewood in reply toCapri2020

The panpharma ampoules should have about 18 months use by date , as they have only been operating under that name since quite recently .

Capri2020 profile image
Capri2020 in reply towedgewood

Good to know. Thanks 👍 a mil.

Capri2020 profile image
Capri2020

Just wondering how you got on getting your supply. Last night I placed an order with apotheke-marienbrunn.de, as per great pointers in Wedgewood's post..

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