Head hurts ...

[Calypsoplus]

healthunlocked.com/pasoc/po....

So, after hitting a brick wall with my previous GP, i had my first phone consult with new GP at a new practice. Why do they make us jump through hoops to feel well ? She doesnt think i have a b12 problem as my level was 187 ( 115 -1000 ). I came to this forum as my level on my portal said 138 ! I even wrote down all my blood results for quick reference, it was definitely 138 , but i cant prove its been altered. She said my symptoms could be from lots of things and when i asked such as, she couldn't say anything specific, maybe it because my thyroid level was out of range in may TSH was 130, i told her all my levels are now optimal its def not that. She said to keep taking the oral b12 i was given but to take 3 a day , so 150mcg, and she will re test in 6 weeks, if my symptoms have not improved then its not b12, ( i kid you not.) I am so done with doctors and their shameful lack of knowledge when there is enough info out there for them to read, i am sick of guideline driven doctors, that cant think outside the box. I have ordered some b12 for my self, 1000mcg methyl/adenos as i feel like ive hit another brick wall .

[Cb1963]

Oh boy! Yet more nonsense being spouted off, you need to lay your symptoms more heavily on the line than what they are, a wee fib perhaps, just like what your doctor is telling you, you have my utmost sympathy, I stood my ground, and the first port of call was with the receptionist telling me that my liver could store B12, i said " excuse me are qualified to give this information out?" Yeah but yeah, I said please don't insult my intelligence" , and that's how the conversation got back to the doctor, he then tried to give me the same story, I told him, a few weeks ago you were looking in my ears for wax,!when I've ended up with tinnitus because of the lack of B12 injections, oh!!Yes, erm, okay we'll keep these going, and I'll tell the receptionist to write you up for further injections, even during lockdown perseverance, and let's hope you have an airbag for that brickwall 🤣 I know how you feel, best of luck for the future 😀

[Nackapan]

Put thr facts jn writing to your gp.Symptoms. History as brief as possible. It has to be scanned on your notes.

What treatment were you getting?

[Calypsoplus in reply to Nackapan]

Ive been given 50mcg cyanocobalamin, i went through all my symptoms with her, told her the pins n needles and pain then numbness in my feet, the fizzing hands, awful tinnitus ive had for around 3 years, the breathlessness and fatigue ( not thyroid fatigue) became more acute 7 months ago, my clumsiness and muscle weakness have got worse over the last couple of years. I know how to control my hashis really well i know its not that.she did admit that in 2016 my level was 358 so it has gone down but said shes not concerned. If i take the cyanocobalamin 3 a day like she said and my symptoms dont improve then its not a b12 issue like she claims, or is it because it just isnt enough ?

[Nackapan in reply to Calypsoplus]

I was told to take that dose orally. But inberween injections to try and space them out more.

I coukdnt absorb them as made no difference.

The doctor is assuming you will absorb them.

Have you had injections in the past?

Have yih tried tablets in the past?

If they don't do anything then ask fir a 'trial of b12 injections .

If they don't make any difference you know its in your system as straight onto your bloodstream.

Once o injections it does seem you need higher levels.

If you've not given oral takets a trial I would .

Keep a symptom diary.

Go by how you feel.

Then write in if you feel you have an absorbtion problem.

[Hedgehogs15]

Please don’t despair. I was 5 years being without my B12 but I’m back on my 4 weekly injections. Try to see a different doctor or even change practice if need be but hang in there. You will have advice from so many amazing caring people here too. Take care x