Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for August 2021

D-dimer

Has anyone ordered and done a home d dimer test? If so where do you reccomend in the uk?

Has anyone ordered and done a home d dimer test? If so where do you reccomend i...

Darcey14

•3 years ago

3 Replies

Given Pernicious Anaemia diagnosis today

Hi I have had a phone call today, telling me that I have this condition. I have to repeat the blood test tomorrow (for levels?) and start a course of 6 initial...

Hi I have had a phone call today, telling me that I have this condition. I have ...

emmjay77

•3 years ago

36 Replies

Injections being stopped

I am writing to ask if anyone has had there injections stopped I have pernicious anemia and because my b12 levels are high they want to stop me having...

I am writing to ask if anyone has had there injections stopped I have pernicious...

Louisaw

•3 years ago

45 Replies

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Problems with a sore and poisonous tasting mouth.

Any advise for my mother who is U.K. based would be much appreciated. For more than 15 years she has complained about a sore tongue and mouth and in her words...

Any advise for my mother who is U.K. based would be much appreciated. For more t...

Hidden

•3 years ago

11 Replies

Shortness of breath

I get really bad breathlessness too been self injecting under the skin methylcobolamin for over a year tried sublingual and oral still get bad symptoms if I...

I get really bad breathlessness too been self injecting under the skin methylcob...

accord

•3 years ago

5 Replies

Very High Serum B12/Folate, Symptoms of Deficiency?

Hi Everyone! I'm new here. This is my first post. I hope someone who knows more than I do can help. I'm at my wits' end. Since about 1990, when I was 19,...

Hi Everyone! I'm new here. This is my first post. I hope someone who knows mo...

PurpleBoy

•3 years ago

11 Replies

Curious - injection frequency

Hi everyone I know many of you on here have been injecting B12 for years and have figured much out from trial and error. Honestly I am just curious, how...

Hi everyone I know many of you on here have been injecting B12 for years and ha...

Ctadds1

•3 years ago

18 Replies

This is so familiar

Another interesting article. https://www.washingtonpost.com/archive/lifestyle/wellness/2000/02/22/pernicious-anemia/2689734f-8d2d-4c95-84ce-6246557878a3/

Another interesting article. https://www.washingtonpost.com/archive/lifestyle/w...

Ninagreen

•3 years ago

14 Replies

Help

Can someone please tell me what German numbers correspond with what in a bank transfer for Bodfield Apotheke please. My payment didn’t go through on PayPal and...

Can someone please tell me what German numbers correspond with what in a bank tr...

Parlay

•3 years ago

6 Replies

Potassium recs

How do you get enough potassium a day without too much sugar? Coconut water and tomato paste are both so high in sugar. What does a day of potassium look...

How do you get enough potassium a day without too much sugar? Coconut water and...

SickNessa

•3 years ago

8 Replies

B12 & OSA

Hi all Anybody else have sleep apnoea as well as PA/B12 def.? I can’t work out what is causing the fatigue. Injections help a bit (SI approx once/month) but...

Hi all Anybody else have sleep apnoea as well as PA/B12 def.? I can’t work out w...

Csl1

•3 years ago

6 Replies

Where in the world are you?

It would help enormously if contributors and posters declared which part of the world they are in. Obviously we are in different countries where health...

It would help enormously if contributors and posters declared which part of the ...

Barneyboy48

•3 years ago

72 Replies

Loading dose

Hi everyone, I hear a lot of you say that when you first started your B12 injections you started with a loading dose, can you tell me what you mean by this! I...

Hi everyone, I hear a lot of you say that when you first started your B12 injec...

Hidden

•3 years ago

4 Replies

Throat infections?

Hey there - wondering if anyone has had accompanying throat infections with their other symptoms? I've had these recurring throat infections which usually...

Hey there - wondering if anyone has had accompanying throat infections with thei...

b12curious

•3 years ago

3 Replies

Active B12 testing

Hi all, I have held off SI this month as I was trying to work out what might be causing skin flushing that I’ve been having. My neuro symptoms and stiff and...

Hi all, I have held off SI this month as I was trying to work out what might be...

Alpaca24

•3 years ago

4 Replies

Article about strange symptoms of B12 deficiency

Hi, Just came across this article and wondered what you all thought of it......

Sleepybunny

•3 years ago

19 Replies

Could my keto diet have lessened my need for b12?

So I’ve been on a ketogenic diet for the last 3 weeks to get healthier and feel healthier (losing some weight is a bonus). I have to say that I have less...

So I’ve been on a ketogenic diet for the last 3 weeks to get healthier and feel ...

Plucky1976

•3 years ago

7 Replies

Low BMI, fatigue, and PA?

Hi again, everyone — It’s been almost a year since I received a positive IFAB test and started both B12 and iron supplementation. Since then, I’ve gone from...

Hi again, everyone — It’s been almost a year since I received a positive IFAB te...

still_elsewhere

•3 years ago

2 Replies

B12 from Germany

I put this post up the end of July 2021...as a few people are asking who is still supplying from Germany I decided to re-post....... Anyone looking to order...

I put this post up the end of July 2021...as a few people are asking who is stil...

WWWJAN

•3 years ago

6 Replies

NICE CKS - suspected B12 and folate deficiency -investigations

NICE CKS link about investigations doctors should order for those with suspected B12 or Folate deficiency...

NICE CKS link about investigations doctors should order for those with suspected...

Sleepybunny

•3 years ago

3 Replies

Crash after shot?

Does anyone crash and need to sleep a few hours after the shot? It only happens sometimes so I’m wondering if it happens when I miss the muscle?

Does anyone crash and need to sleep a few hours after the shot? It only happens...

b12curious

•3 years ago

16 Replies

Advice please

Hi, I was advised by someone over on the thyroid community to post my Vitamin b12 blood test results here for advice. I had a rest with Thriva while testing...

Hi, I was advised by someone over on the thyroid community to post my Vitamin b1...

Allyfin1

•3 years ago

5 Replies

Is it normal that your deficiency gets worse over time that you have to increase the frequency of B12 shots?

I just want to know how many of y’all have had to increase your b12 shot frequency? My b12 isn’t lasting long enough… and I don’t really understand why. I...

I just want to know how many of y’all have had to increase your b12 shot frequen...

Escher783

•3 years ago

14 Replies

What's the recommended dose of B12 for pernicious anemia associated with B12 deficiency.

B12 deficiency

Rocky213

•3 years ago

3 Replies

Acne caused by b12 injections. How long does it take to clear up?

Hi, I had 5 loaded doses of b12 injections which is stopped 2 weeks ago. My skin has broken out badly. I am aware this is a reaction caused by b12. But I want...

Hi, I had 5 loaded doses of b12 injections which is stopped 2 weeks ago. My skin...

Nish12

•3 years ago

27 Replies

GP & NURSE "Too much B12 can be dangerous"

After a fight I managed to get my B12 injections moved from 3 monthly intervals to two months. I book appointments at the 8 week mark. The surgery do it by the...

After a fight I managed to get my B12 injections moved from 3 monthly intervals ...

swimfitswim

•3 years ago

12 Replies

patent foramen ovale

I know heart palpatations are connected with B12 deficiency, but I wondered if anyone else in this forum knows if they have/had a patent foramen ovale AKA a...

I know heart palpatations are connected with B12 deficiency, but I wondered if a...

kngswim

•3 years ago

4 Replies

I am improving I hope

Hi, I don't have P.A. but neurological symptoms. It started as itching in upper feet alone for almost an year. I mistook it as dey skin. Then a slight tingling...

Hi, I don't have P.A. but neurological symptoms. It started as itching in upper ...

Gettingbette

•3 years ago

1 Reply

Confused about frequency and symptoms

Hi, I have P.A. and I have been injecting b12 every other day for a while now. This has caused many of my symptoms to improve. I would like to reduce the...

Hi, I have P.A. and I have been injecting b12 every other day for a while now. T...

Zeffy90

•3 years ago

9 Replies

Pain after Articlox injection

Hi all, I have been SI since the start of the pandemic.I sourced my B12 from Germany, all was going well but I can no longer get my vials from Germany due to...

Hi all, I have been SI since the start of the pandemic.I sourced my B12 from Ge...

Discodai1980

•3 years ago

3 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2021

D-dimer

Given Pernicious Anaemia diagnosis today

Injections being stopped

Problems with a sore and poisonous tasting mouth.

Shortness of breath

Very High Serum B12/Folate, Symptoms of Deficiency?

Curious - injection frequency

This is so familiar

Help

Potassium recs

B12 & OSA

Where in the world are you?

Loading dose

Throat infections?

Active B12 testing

Article about strange symptoms of B12 deficiency

Could my keto diet have lessened my need for b12?

Low BMI, fatigue, and PA?

B12 from Germany

NICE CKS - suspected B12 and folate deficiency -investigations

Crash after shot?

Advice please

Is it normal that your deficiency gets worse over time that you have to increase the frequency of B12 shots?

What's the recommended dose of B12 for pernicious anemia associated with B12 deficiency.

Acne caused by b12 injections. How long does it take to clear up?

GP & NURSE "Too much B12 can be dangerous"

patent foramen ovale

I am improving I hope

Confused about frequency and symptoms

Pain after Articlox injection

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