Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for August 2021

Shall I try injections?

After the advice I received 11 months ago on this forum I decided to try supplements (igennus super b) rather than MMA test which is expensive. After a few...

After the advice I received 11 months ago on this forum I decided to try supplem...

Sa-ja-ca

•3 years ago

2 Replies

Parkinsons

Does everyone have tremors with Parkinsons

Hedwina

•3 years ago

3 Replies

PA survey

Just completed the latest survey. Top 10 important things gor future research. The only thing i couldn't answer properly ad there wasn't an option. That is...

Just completed the latest survey. Top 10 important things gor future research. ...

Nackapan

•3 years ago

12 Replies

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Can anyone help advise for GP wanting to withdraw injections?

Hey everyone, I think this is probably a very common question but bear with me... I was diagnosed with low b12 in 2016 (level was 151) after years of...

Hey everyone, I think this is probably a very common question but bear with me....

libih

•3 years ago

34 Replies

Nerves are just raw

MRI came back good. Guess it's the Pernicious Anaemia. I am experiencing some numbness in my face again along with extreme sensitivity in my legs to the...

MRI came back good. Guess it's the Pernicious Anaemia. I am experiencing some ...

Hidden

•3 years ago

6 Replies

Self injecting B12

Has anyone used this site for purchasing B12? https://perniciousanemia.org/b12/injections/instructions It’s payment in dollars but it’s from a lab in England...

Has anyone used this site for purchasing B12? https://perniciousanemia.org/b12/i...

Babydoll123

•3 years ago

12 Replies

Confirmed PA and psoriasis arthritis - is methotrexate safe?

Hi fellow PA sufferers. I've been following this forum for a while now, but this is my first post so it's a rather long. I live in Switzerland and have had PA...

Hi fellow PA sufferers. I've been following this forum for a while now, but this...

flowerjuice

•3 years ago

11 Replies

How high fat diet and exercise can affect myelin sheaths production by oligodendrocytes while the person is on high dose of B12 vitamin l

I'm wondering how to get our damaged nerves get repaired faster by oligodendrocytes which are responsible in most vertebrates for production of damaged myelin...

I'm wondering how to get our damaged nerves get repaired faster by oligodendrocy...

Hamayeshguy

•3 years ago

20 Replies

What do I do now?!

I had to fight to get a loading dose of B12 after being diagnosed as deficient. I was told to come back in 12 weeks for my first "booster". I didn't push my...

I had to fight to get a loading dose of B12 after being diagnosed as deficient. ...

Ordinary39

•3 years ago

6 Replies

Can anyone tell me what these blood results mean

I have pernicious anaemia and have been suffering really badly with head shaking, arm shaking and weakness also im really tired. Could this be B12 related?...

I have pernicious anaemia and have been suffering really badly with head shaking...

Cultivate

•3 years ago

9 Replies

Has anyone experienced hair loss? I’ve been in injections for about 3 months now and I am experiencing hair loss.

I will be getting my hormone levels checked but in the meantime, Does anyone have suggestions on vitamins or products to use for female hair loss.

I will be getting my hormone levels checked but in the meantime, Does anyone hav...

kburrows

•3 years ago

13 Replies

Needle Size for Injecting B12

Can you please tell me what size needles you use for injecting B12 and where you buy them from. I've looked at Medisafe online. Thanks

Can you please tell me what size needles you use for injecting B12 and where you...

SweetpeaSoul

•3 years ago

4 Replies

POTs caused by B12d/Pernicious Anemia

Anyone else have POTs symptoms caused by your deficiency or along with your deficiency? Is it possible for it to heal? It's my hardest symptom and mine is...

Anyone else have POTs symptoms caused by your deficiency or along with your defi...

SickNessa

•3 years ago

12 Replies

Increased symptoms after injections

Hi all, I’ve run something of a trial over the last 4 weeks to try and work out what’s going on with my body and this PA condition and thought I’d share my...

Hi all, I’ve run something of a trial over the last 4 weeks to try and work out...

User2020-1

•3 years ago

27 Replies

Loss of height predicts total and cardiovascular mortality: a cohort study of northern European women

[I just posted this on Thyroid UK forum but as I specifically mention B12, and there have been several mentions of B12 together with bone here very recently,...

[I just posted this on Thyroid UK forum but as I specifically mention B12, and t...

helvella

•3 years ago

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What can a do to help with a very sore tongue?

I was diagnosed with anaemia a few years ago and have B12 injections every 10 weeks. My folate levels were also abnormal but I don’t take anything for this....

I was diagnosed with anaemia a few years ago and have B12 injections every 10 we...

Outinthesun

•3 years ago

29 Replies

Pregnancy and B12 injections

I am early in pregnancy and I receive 2-3 B12 injections per month. I am just wondering if anyone else has experience with this. It worries me. I’m afraid the...

I am early in pregnancy and I receive 2-3 B12 injections per month. I am just w...

Ctadds1

•3 years ago

4 Replies

My neurogical symptoms are new after injections

I was totally confused and afraid about the increased burning and numbness ( totally new for me) after starting B12 injections. My symptoms are light like...

I was totally confused and afraid about the increased burning and numbness ( tot...

Gettingbette

•3 years ago

2 Replies

Viapath now doing B12 with MMA test with home kits

Hi , I thought I’d start a new thread on this. I feel like I’ve learnt so much about all this and with your help I’ve now found out that Viapath do home test...

Hi , I thought I’d start a new thread on this. I feel like I’ve learnt so much a...

Blackpanther46

•3 years ago

11 Replies

Neuro Opthalmologist

Just wondered if anyone had seen one? If so did you get any help from it? I thought they offered vestibular rehabilitation or understood the brains part with...

Just wondered if anyone had seen one? If so did you get any help from it? I tho...

Nackapan

•3 years ago

4 Replies

Functional b12 deficiency despite normal tests? Issues of right calf wasting/myopathy?

Hello, I'm interested in finding out if anyone has similar symptoms or experiences to me as I'm trying to work out if b12 is the culprit of my issues or even a...

Hello, I'm interested in finding out if anyone has similar symptoms or experienc...

gemini4378

•3 years ago

29 Replies

Found new supplier

vitamin b124u took a while but back to what I was paying. Thanks for any response to my question.

vitamin b124u took a while but back to what I was paying. Thanks for any respons...

Yentil

•3 years ago

1 Reply

X-ray showed 'borderline/early stage' arthritis in my hip. Can this be caused by B12D, be 'reversed, is it worth pushing for rheumatology?

I had xrays of left hip & right shoulder, ordered by GP. Just found out that the left hip apparently showed borderline, early stage arthritis changes. I'm...

I had xrays of left hip & right shoulder, ordered by GP. Just found out that th...

eclilley

•3 years ago

4 Replies

B vitamins, B12 and multiple sclerosis symptoms

I read that there are many symptoms if b12 deficiency that are almost the same as Multiple Sclerosis. Does anyone have any information on this topic? I was...

I read that there are many symptoms if b12 deficiency that are almost the same a...

Goddess110

•3 years ago

20 Replies

I was a runner and I'm still trying to run. I just found this and thought it was interesting.

My symptoms started over 10 years ago when I first started running. https://www.womensrunning.com/health/b12-deficiency-dangers/

My symptoms started over 10 years ago when I first started running. https://w...

Ninagreen

•3 years ago

5 Replies

Help understanding PA lab result?

Hi! I had an antibody test for pernicious anemia and I can't read the lab results well... my antibody level says 2.15 and the comparison levels are NEGATIVE =...

Hi! I had an antibody test for pernicious anemia and I can't read the lab result...

hani0902

•3 years ago

4 Replies

What would cause serum B12 levels to rise without supplementation?

Hi Everyone, Hope someone can offer some insight? I'm wondering what could cause B12 blood levels to rise if a person isn't supplementing? I follow a vegan...

Hi Everyone, Hope someone can offer some insight? I'm wondering what could caus...

Hedgeree

•3 years ago

6 Replies

Doc says I’m ok ? Advice please?

Hi , I had my pernicious anaemia test at the GP and all negative but they didn’t test B12 as said I don’t need that as my full blood count was in normal to...

Hi , I had my pernicious anaemia test at the GP and all negative but they didn’t...

Blackpanther46

•3 years ago

62 Replies

Facebook group misinformation on folic acid again.

A member of a Facebook group for Osteoporosis was told that the reason for her osteoporosis could be that she has been having 3 monthly b12 injections without...

A member of a Facebook group for Osteoporosis was told that the reason for her o...

Showgem

•3 years ago

22 Replies

Chemotherapy and B12

Someone I know has some sort of brain tumour and has had his first (of three planned) rounds of chemotherapy. Not that I know what chemotherapy agent they...

Someone I know has some sort of brain tumour and has had his first (of three pla...

helvella

•3 years ago

4 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2021

Shall I try injections?

Parkinsons

PA survey

Can anyone help advise for GP wanting to withdraw injections?

Nerves are just raw

Self injecting B12

Confirmed PA and psoriasis arthritis - is methotrexate safe?

How high fat diet and exercise can affect myelin sheaths production by oligodendrocytes while the person is on high dose of B12 vitamin l

What do I do now?!

Can anyone tell me what these blood results mean

Has anyone experienced hair loss? I’ve been in injections for about 3 months now and I am experiencing hair loss.

Needle Size for Injecting B12

POTs caused by B12d/Pernicious Anemia

Increased symptoms after injections

Loss of height predicts total and cardiovascular mortality: a cohort study of northern European women

What can a do to help with a very sore tongue?

Pregnancy and B12 injections

My neurogical symptoms are new after injections

Viapath now doing B12 with MMA test with home kits

Neuro Opthalmologist

Functional b12 deficiency despite normal tests? Issues of right calf wasting/myopathy?

Found new supplier

X-ray showed 'borderline/early stage' arthritis in my hip. Can this be caused by B12D, be 'reversed, is it worth pushing for rheumatology?

B vitamins, B12 and multiple sclerosis symptoms

I was a runner and I'm still trying to run. I just found this and thought it was interesting.

Help understanding PA lab result?

What would cause serum B12 levels to rise without supplementation?

Doc says I’m ok ? Advice please?

Facebook group misinformation on folic acid again.

Chemotherapy and B12

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