Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for August 2021

B12

Hi, can somebody help please. Does anyone know the b12 range in ireland? Just back from my doctor, she said my b12 is 140 and 120 is considerd normal. She...

Hi, can somebody help please. Does anyone know the b12 range in ireland? Just b...

Gernod

•3 years ago

15 Replies

B12 injection

Morning from England. After 5 years of trying to get back on my B12 injections because of pernicious anaemia I had my first one on Friday. Expecting miracle...

Morning from England. After 5 years of trying to get back on my B12 injections ...

Hedgehogs15

•3 years ago

4 Replies

Out of Hope

I was caught very very late. My spine has demylination, I had dementia, I have terrible brain fog and I have mild POTs now. I have gut issues now too. I'm...

I was caught very very late. My spine has demylination, I had dementia, I have ...

SickNessa

•3 years ago

62 Replies

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With PA should you get coronavirus vaccine with all the other stuff going on with pernicious?

Should you get the vaccine with PA? Read this on CDC site just moments ago: COVID-19 Vaccine. GBS is a rare disorder where the body’s immune system damages...

Should you get the vaccine with PA? Read this on CDC site just moments ago: COV...

Hidden

•3 years ago

15 Replies

70% pre injection Wipes

I have been using these religiously now for months one before and a new one immediately after I SI with zero issues at all. Apparently now this is no longer...

I have been using these religiously now for months one before and a new one imme...

WorkingProgress

•3 years ago

11 Replies

any suggestions please

long story short - pins and needles in hand for a year, really bad, getting worse and traveling into my arms. Swollen feet and my joint ache all the time but...

long story short - pins and needles in hand for a year, really bad, getting wors...

Debwilson

•3 years ago

23 Replies

Buying Hydroxocobalamin from Germany.

Hi to you all, thanks to the advice I received on here a few months ago I was able to purchase Hydroxocobalamin quite easily from a German supplier, it's has...

Hi to you all, thanks to the advice I received on here a few months ago I was ab...

CyclingPete

•3 years ago

9 Replies

Suspected fibrous myopathy in legs after frequent B12 thigh injections

Has anyone had stiff legs/myopathy after frequent, daily injections into their thighs? Ive tried to rule everything else out but it seems like both thighs are...

Has anyone had stiff legs/myopathy after frequent, daily injections into their t...

PointOfReference

•3 years ago

4 Replies

Getting acne after covid vaccine

Did anyone get increased acne after getting their Covid vaccine?? If so which vaccine did you get??

Did anyone get increased acne after getting their Covid vaccine?? If so which va...

Hopeful11346

•3 years ago

5 Replies

Acne after covid vaccine???

Did anyone get acne after covid vaccine???? If u did which vaccine did you take?

Did anyone get acne after covid vaccine???? If u did which vaccine did you take?...

Hopeful11346

•3 years ago

1 Reply

Ongoing complaint Advice

Good morning, I slightly touched on this subject with a previous post but wanted to put a bit more detail on in regards to my complaint to my Dr. So after...

Good morning, I slightly touched on this subject with a previous post but wanted...

Purpleloulou27

•3 years ago

21 Replies

B12 Injections for PA

I have been having B12 injections every 3 months at my GP practice for the last 3 years for PA but about 10 days before my next injection I become very...

I have been having B12 injections every 3 months at my GP practice for the last ...

Xinnia53

•3 years ago

16 Replies

Low B12, MMA test

Hi In July I had my some blood tests with Medichecks my results show my Active B12 low at 41pmol/L range 25.1 165 Viapath advise checking MMA if level under...

Hi In July I had my some blood tests with Medichecks my results show my Active B...

lucylocks

•3 years ago

2 Replies

How healthy us you gut

Tonight channel 4 at 8.00pm Might be worth a look

Hidden

•3 years ago

15 Replies

Warfarin

Does anybody know if B12 levels / PA is effected by Warfarin? I take 3mg a day to maintain an INR of 2 - 3.

Does anybody know if B12 levels / PA is effected by Warfarin? I take 3mg a day t...

Tubbylardo

•3 years ago

4 Replies

Cognitive problems

Hi I'm on eod injections, exhaustion is easing very slowly, unfortunately my cognitive and other problems do not seem to be shifting I'm on jag 18.thanks

Hi I'm on eod injections, exhaustion is easing very slowly, unfortunately my cog...

Pink06

•3 years ago

8 Replies

A bit about me

I worked in a Haematology laboratory for over 40 years until retirement. In that time I saw the introduction of automation into Blood Counting, Coagulation...

I worked in a Haematology laboratory for over 40 years until retirement. In that...

FlipperTD

•3 years ago

23 Replies

When should I start to reduce B12 injections?

When should I start to reduce B12 injections? I get shot once a week and take sublingual every day except injection day. Is there some kind of guideline...

When should I start to reduce B12 injections? I get shot once a week and take...

Hidden

•3 years ago

22 Replies

Netherlands Journal of Medicine - B12 article

Hi All, Apologies if this article has been posted previously. Thought some of you might find it interesting. Article is in English....

Hi All, Apologies if this article has been posted previously. Thought some of yo...

Sleepybunny

•3 years ago

4 Replies

Diagnosis - Vitamin B12 or folate deficiency anaemia

The public-facing NHS England page about Diagnosis - Vitamin B12 or folate deficiency anaemia includes this: A particular drawback of...

The public-facing NHS England page about Diagnosis - Vitamin B12 or folate defic...

helvella

•3 years ago

8 Replies

Neurological pernicious anemia?

I have severe neurological symptoms and muscle atrophy. Cognitive issues. I have antiparietal cell antibodies and low copper iron and high b12. Normal MMA Can...

I have severe neurological symptoms and muscle atrophy. Cognitive issues. I have...

Abundant1s

•3 years ago

10 Replies

Prokinetics after SIBO treatment?

Has anyone used a prokinetic after taking Rifaximin for SIBO and was it helpful in preventing the SIBO recurrence?

Has anyone used a prokinetic after taking Rifaximin for SIBO and was it helpful ...

Pain12345

•3 years ago

6 Replies

Does b12 discolour urine

Hi someone has asked me this and Iv read that it does but just wanted advise from others. She injects Sc and for the week after injection. Urine is discoloured...

Hi someone has asked me this and Iv read that it does but just wanted advise fro...

Andypandy30

•3 years ago

11 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(76)

All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2021

B12

B12 injection

Out of Hope

With PA should you get coronavirus vaccine with all the other stuff going on with pernicious?

70% pre injection Wipes

any suggestions please

Buying Hydroxocobalamin from Germany.

Suspected fibrous myopathy in legs after frequent B12 thigh injections

Getting acne after covid vaccine

Acne after covid vaccine???

Ongoing complaint Advice

B12 Injections for PA

Low B12, MMA test

How healthy us you gut

Warfarin

Cognitive problems

A bit about me

When should I start to reduce B12 injections?

Netherlands Journal of Medicine - B12 article

Diagnosis - Vitamin B12 or folate deficiency anaemia

Neurological pernicious anemia?

Prokinetics after SIBO treatment?

Does b12 discolour urine

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive