Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for January 2021

Hydroxocobalamin 1mg/1ml Ampoules

Can someone kindly provide a link where I can purchase Hydroxocobalamin 1mg/1ml Ampoules from the uk. Many thanks.

Can someone kindly provide a link where I can purchase Hydroxocobalamin 1mg/1ml ...

SallyRees

•4 years ago

36 Replies

Help!!!! Need to order B12

Has anyone been successful with ordering B12? I’m struggling to find anyone who will send to the UK 😫 I’m hoping the paperwork etc to send to us is resolved...

Has anyone been successful with ordering B12? I’m struggling to find anyone who ...

Bamboo71

•4 years ago

4 Replies

What would be the best way to raise ferritin levels?

Would appreciate some advice on how to safely raise ferritin levels. My GP states that my iron is great, but I’ve been experiencing increased shortness of...

Would appreciate some advice on how to safely raise ferritin levels. My GP state...

Dolansan

•4 years ago

3 Replies

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Blog post about Long Covid and B12 treatment

New blog post from B12 Deficiency |Info website...

Sleepybunny

•4 years ago

2 Replies

Safe Folate Level With 5-MTHF?

When supplementing folate in 5-MTHF form, is a high blood Folate reading still considered high as far as the cancer dangers - or, is it sort of a...

When supplementing folate in 5-MTHF form, is a high blood Folate reading still c...

deepocean

•4 years ago

26 Replies

Pernicious Anaemia and Covid vaccinations

Hi. Is there a preference for a certain type of vaccination for Covid if we suffer from PA? As PA is an immune deficiency disorder, which of the vaccines is...

Hi. Is there a preference for a certain type of vaccination for Covid if we suff...

barrysteel

•4 years ago

2 Replies

B12 and electrolyte imbalance

Hi folks I have been struggling with low sodium due to laxative use, (I have severe IBS). In the process of trying to correct the sodium I changed meds to...

Hi folks I have been struggling with low sodium due to laxative use, (I have sev...

Sita505USA

•4 years ago

1 Reply

Confused about my B12 levels

My B12 was 180 in May and 398 in September at follow up after taking daily supplements (1000). Does this mean I'm absorbing it and should therefore continue...

My B12 was 180 in May and 398 in September at follow up after taking daily suppl...

unamariececilia

•4 years ago

4 Replies

Post Brexit

Hi guys can we still purchase vitamin B12 and have them posted to the uk post brexit? .i’m sure someone will have asked and answered this already

Hi guys can we still purchase vitamin B12 and have them posted to the uk post b...

Pixielula

•4 years ago

9 Replies

Confusing change of decision about self injection after injections have stopped at GP surgery

Hi, I have 6 weekly injections at my doctors as I have PA. This works well for me and has done for several years. During the first UK lockdown injections...

Hi, I have 6 weekly injections at my doctors as I have PA. This works well fo...

TG108

•4 years ago

10 Replies

Neuro at last

Hi all.well I’ve finally got my neuro appointment,Monday at oxford,private of course,gp was bloody useless couldn’t wait to pass me back to my professor,he was...

Hi all.well I’ve finally got my neuro appointment,Monday at oxford,private of co...

Hidden

•4 years ago

22 Replies

Response to my letter to GP regarding my b12 injections.

Thank you everyone who gave me advice on writing to my GP. I wrote a firm, detailed but non confrontational letter and he phoned me up and agreed to let me...

Thank you everyone who gave me advice on writing to my GP. I wrote a firm, detai...

Showgem

•4 years ago

8 Replies

Intrinsic Factor Ant Test

Hi again I've been chasing up the result of an IFA test taken in early December. The GP has replied to say she has now chased this with the lab herself and...

Hi again I've been chasing up the result of an IFA test taken in early Decembe...

mbb323

•4 years ago

2 Replies

Anyone recognise this pattern of insomnia?

Hello again everyone, Another symptom question. Insomnia! Always a tricky one to work out what is underlying cause and what helps. I am no stranger since being...

Hello again everyone, Another symptom question. Insomnia! Always a tricky one to...

Greypaws

•4 years ago

22 Replies

Magnesium at 2,3

Hi guys! happy new year! I got my blood test results and my magnesium level is at 2,3. I am an athlete ( weight lifting) and prior to the blood test results ,...

Hi guys! happy new year! I got my blood test results and my magnesium level is a...

TomPlatz

•4 years ago

3 Replies

Experience with PA and Long Covid

I had long Covid and also have PA. I believe that my long Covid was an auto-immune problem (I am not speaking for long Covid patients who continue to have...

I had long Covid and also have PA. I believe that my long Covid was an auto-immu...

akanari

•4 years ago

1 Reply

www.apohealth.de are still supplying B12 ampoules - Hydroxocobalamin— Rotexmedica and Hevert .

Bonjourtristesse gave this information . I tried it out and yes , they are delivering to U.K. . You can get this site in English ( you need the US flag to get...

Bonjourtristesse gave this information . I tried it out and yes , they are deliv...

wedgewood

•4 years ago

24 Replies

Self injecting timelines

I’ve been SI every 10 days/12 days, depending on when symptoms reappear and this has worked great for a few months, however this last time it only seemed to...

I’ve been SI every 10 days/12 days, depending on when symptoms reappear and this...

Romany8

•4 years ago

12 Replies

Can’t believe this...??

My eye sight has started to get f**ked up & my GP doesn’t care!! He said “it’s probably nothing”?? Wtf 😲

My eye sight has started to get f**ked up & my GP doesn’t care!! He said “it’s ...

Queeniz

•4 years ago

28 Replies

B12 spray

I’ve been prescribed a nasal spray B12 - has anyone else had this? Did it work? Any side effects?

I’ve been prescribed a nasal spray B12 - has anyone else had this? Did it work? ...

PurpleThyroid

•4 years ago

13 Replies

Symptoms but “normal results”

Hello, Can anyone advise if these results are “normal”, I have been advised they’re within range but I have many symptoms: breathless upon walking and weak...

Hello, Can anyone advise if these results are “normal”, I have been advised they...

Pinky3

•4 years ago

17 Replies

Ordering B12 from Germany

Trying to order B12 injections from Germany but both sites do not accept my address, has anyone ordered successfully now we're out of e.u Thanks Nigel

Trying to order B12 injections from Germany but both sites do not accept my add...

nastynigel

•4 years ago

62 Replies

Long Covid symptoms

Reading about long covid, I immediately thought that it sounded like low B12 symptoms. Knowing how poor GP's and our medical community are at diagnosing low...

Reading about long covid, I immediately thought that it sounded like low B12 sym...

Cliffh

•4 years ago

13 Replies

Magnesium ?

Anyone else also have a magnesium deficiency along with B12? I just found out my magnesium levels are quite low.

Anyone else also have a magnesium deficiency along with B12? I just found out m...

Ctadds1

•4 years ago

7 Replies

Itching and burning skin all over

Hi there . I've been suffering from burning and itching skin all over for nearly 2 years. Been tested for everything. They gave now decided its fibromyalgia....

Hi there . I've been suffering from burning and itching skin all over for nearly...

Rebelpear1991

•4 years ago

4 Replies

Pins and Needles are now more pulsations?

Hi, I had very bad pins and needles before I got B12 injections (which I have had mostly daily since May) and although I still get them, I mostly feel a...

Hi, I had very bad pins and needles before I got B12 injections (which I have ha...

Jengastar

•4 years ago

12 Replies

hydroxocobalamin breathing issues

Hi I started having B12 shots last year I had one on Tuesday 29th December and I feel so unwell struggling to breathe headches rashes acid reflux mouth ulcers...

Hi I started having B12 shots last year I had one on Tuesday 29th December and I...

lucasussex

•4 years ago

30 Replies

Covid jab

Hi Guys, any thoughts on the Covid jab? there seems to be some uncertainty if people with an autoimmune disease should risk it.

Hi Guys, any thoughts on the Covid jab? there seems to be some uncertainty if pe...

12bars

•4 years ago

4 Replies

Gout

Had results back from doctors, all the trouble from my pain in hands is from slightly high uric acid levels which im now on tablets but no better out moment,...

Had results back from doctors, all the trouble from my pain in hands is from sli...

Mozza127

•4 years ago

6 Replies

Pains after b12 injection

Hi I'm new on here. I've just had my first b12 injection and now 3 days later my muscles really hurt. Is this normal?

Hi I'm new on here. I've just had my first b12 injection and now 3 days later my...

Jdoymc

•4 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2021

Hydroxocobalamin 1mg/1ml Ampoules

Help!!!! Need to order B12

What would be the best way to raise ferritin levels?

Blog post about Long Covid and B12 treatment

Safe Folate Level With 5-MTHF?

Pernicious Anaemia and Covid vaccinations

B12 and electrolyte imbalance

Confused about my B12 levels

Post Brexit

Confusing change of decision about self injection after injections have stopped at GP surgery

Neuro at last

Response to my letter to GP regarding my b12 injections.

Intrinsic Factor Ant Test

Anyone recognise this pattern of insomnia?

Magnesium at 2,3

Experience with PA and Long Covid

www.apohealth.de are still supplying B12 ampoules - Hydroxocobalamin— Rotexmedica and Hevert .

Self injecting timelines

Can’t believe this...??

B12 spray

Symptoms but “normal results”

Ordering B12 from Germany

Long Covid symptoms

Magnesium ?

Itching and burning skin all over

Pins and Needles are now more pulsations?

hydroxocobalamin breathing issues

Covid jab

Gout

Pains after b12 injection

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