Long Covid symptoms

[Cliffh]

Reading about long covid, I immediately thought that it sounded like low B12 symptoms. Knowing how poor GP's and our medical community are at diagnosing low B12, has anyone seen anything that discusses this possible link?

[clivealive Forum Support]

Having had P;A for almost fifty years I did have similar thoughts about the "long covid" symptoms and wondered if the B12 is made deficient in the process.

[Marz]

bmj.com/content/370/bmj.m30...

Letter to the BMJ

[wedgewood in reply to Marz]

A really interesting letter, with valid comments . Exactly as the letter writer says — B12 is such a cheap injection . I wonder if the suggestion will be followed up .

[Marz in reply to wedgewood]

I wonder too !

[Curlygal]

If I was hospitalised with Covid, I would be worried about potentially becoming very unwell (or more unwell!) from low B12 due to not being able to self inject while in there (unless well enough to do it covertly, and actually remember to take supplies when admitted). If I was in a coma I could potentially go many weeks without an injection, and I usually inject weekly.

Any suggestions? Or am I just catastrophising?

[deniseinmilden in reply to Curlygal]

I have to inject daily and always have a "jabs kit" of supplies with me that I tell people must go with me in an emergency in the hope I can stay alive in hospital!

[Megwar2106]

If admitted you would receive all medicine needed from the hospital, while I was in giving birth to my daughter (was in for 2 weeks) I received all my injections and other medication I needed and what I took in with me they sent home with my partner as what I needed they had their pharmacy prescribe me it

[Bonjourtristesse in reply to Megwar2106]

I think that's assuming that you have your b12 on record as required. Many of us have been dismissed by medical services and told there is nothing wrong with us.

[Curlygal in reply to Megwar2106]

Officially, I need a B12 injection once every 12 weeks. In reality I need one every week. They're not going to give me one every week just because I say I need it!

[deniseinmilden]

There's a remarkable resemblance isn't there.

In both cases the symptoms are the result of the cells of the body not being able to get and use the nutrients they need.

It would be extremely interesting to know what the pathways and causative factors are.

Maybe there will be research into long covid that will help with other deficiency and metabolism problems? 🤞

[Janma123]

Long Covid sounds very similar to post viral syndrome or ME too.

[helvella]

There is a new paper which in its limited way attempts to summarise the main issues of Long Covid. Read the preprint warning! And the limitations the authors explain.

COVID-19 severity impacts on long-term neurological manifestation after hospitalisation

Andrea Pilotto, Viviana Cristillo, Stefano Cotti Piccinelli, Nicola Zoppi, Giulio Bonzi, Davide Sattin, Silvia Schiavolin, Alberto Raggi, Antonio Canale, Stefano Gipponi, Ilenia Libri, Martina Frigerio, Michela Bezzi, Matilde Leonardi, Alessandro Padovani

medRxiv 2020.12.27.20248903; doi: doi.org/10.1101/2020.12.27....

This article is a preprint and has not been certified by peer review [what does this mean?]. It reports new medical research that has yet to be evaluated and so should not be used to guide clinical practice.

medrxiv.org/content/10.1101...

I think comments on similarities to, and differences from, B12 issues might be interesting.

[TFH1]

I have had long Covid and I have PA and am reliant on monthly injections. The monthly b12 jab made no difference to the Covid fatigue (infact this is how I distinguished between the two as the symptoms are extremely similar, if the jab didn't pick me up, not a b12 issue). I should quantify this by stating I was not tested for Covid as it was during the early period when they would not test unless you'd returned from a specific list of countries. However I am pretty certain that I had it and my sister who is a front line worker did have the positive test at the same time. This was in March and the bouts of fatigue lasted until end of October.