Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for July 2020

What can be done about foot pain/burning

It is waking me up at night and keeping me from resting well. I haven't posted in a while. I felt I was doing better with this foot problem, when I was...

It is waking me up at night and keeping me from resting well. I haven't posted i...

rosehill

•4 years ago

24 Replies

B12 injections

Hi just phoned my doctors surgery - on hold for 31 minutes and when i tried to make appointment was told i have to email nurse who will check my records and...

Hi just phoned my doctors surgery - on hold for 31 minutes and when i tried to m...

Whitch

•4 years ago

4 Replies

Can anyone help me please?

I'm looking for advice as I'm getting desperate, I've been unwell for 8 months now, at Christmas I kept feeling ghastly and faint, palpitations and shortness...

I'm looking for advice as I'm getting desperate, I've been unwell for 8 months n...

Bunny12345678

•4 years ago

21 Replies

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Update on Phone Consultation today.

Hi as promised I’ve just had my consult with a lovely professor endo. He was very kind and patient and knowledgeable.Yes he was private but I felt it was well...

Hi as promised I’ve just had my consult with a lovely professor endo. He was ver...

Hidden

•4 years ago

9 Replies

GP fully aware of NICE guidelines 🙂👍

Update - spoke to GP today by telephone to discuss my ongoing neurological symptoms following 5th B12 injection. I was fully prepared, expecting to have to...

Update - spoke to GP today by telephone to discuss my ongoing neurological sympt...

Divine1990

•4 years ago

3 Replies

New B12 Deficiency sufferer

I was diagnosed with a B12 Deficiency with a level of 145 and suspected Pernicious Anaemia. I had my first loading dose yesterday and apart from the...

I was diagnosed with a B12 Deficiency with a level of 145 and suspected Pernicio...

BellaPUG

•4 years ago

17 Replies

Advice please.

I'm worried about my daughter. In her late 30s, diagnosed about a year ago with injections every three months. Her next injection is due next week, so not...

I'm worried about my daughter. In her late 30s, diagnosed about a year ago with ...

beaton

•4 years ago

8 Replies

Worried Son

I'd like to know if other members have had B12 injections taken away from them by their GP? My Mum was diagnosed with Pernicious Anemia over 20 years ago and...

I'd like to know if other members have had B12 injections taken away from them b...

IPM1970

•4 years ago

7 Replies

Raymed needles arrived yesterday(monday)

seem same quality as bd and terumo-I got 29g half inch ones for subcut(previous ones were 27g)si went well so pleased with them,leaflet that came with order...

seem same quality as bd and terumo-I got 29g half inch ones for subcut(previous ...

flosslechops

•4 years ago

9 Replies

Keep loading?

Hi everyone One of the signs I have noticed that I’m ready for a new dose is that my bottom thumb joints become very sensitive and sore (as in not exactly...

Hi everyone One of the signs I have noticed that I’m ready for a new dose is tha...

Laundretta

•4 years ago

7 Replies

Travelling with B12 injections

When I finally get the opportunity to book an overseas holiday, as I am now SI weekly, I would like to take my ampoules and needles away, has anybody travelled...

When I finally get the opportunity to book an overseas holiday, as I am now SI w...

Hidden

•4 years ago

2 Replies

Tooth

Does anyone know if local anaesthesia used by dentists deplete b12? Ongoing saga of initially not fitting the criteria for emergency dental treatment in the...

Does anyone know if local anaesthesia used by dentists deplete b12? Ongoing saga...

Nackapan

•4 years ago

33 Replies

I am trying to figure out how often to self inject. Do I inject when I start to feel “off” or do I just put myself on some sort of schedule?

Self injection schedule

Themaid

•4 years ago

6 Replies

Thanks for replies - when will I feel any improvement after starting B12 injections

Thanks everyone for your replies they have been so helpful. It was just so reassuring to know that what I was experiencing was not unusual. I will be...

Thanks everyone for your replies they have been so helpful. It was just so rea...

Divine1990

•4 years ago

2 Replies

Is b12 deficiency and on injections classed as a disability in the uk

Hi I'm just wanting to ask do any of yous no is b12 deficiency classed as a disability? Thank you

Hi I'm just wanting to ask do any of yous no is b12 deficiency classed as a disa...

Jenny9

•4 years ago

8 Replies

Trying to find a Pediatrician who knows about B12/Folate Deficiency in the UK

Hi, I'm new on here! Hope you can help? I am a PA sufferer ( I was diagnosed approx 8 years ago & have injections every 4 weeks) and my daughter (13 yrs old)...

Hi, I'm new on here! Hope you can help? I am a PA sufferer ( I was diagnosed a...

NDEI

•4 years ago

8 Replies

Fungal infection and malabsorption.

Have any of you know of any correlation between systemic fungal infections and gastro issues? It was brought up in an epi facebook group which I follow....

Have any of you know of any correlation between systemic fungal infections and g...

Luac

•4 years ago

11 Replies

B12 deficiency query

Posted on pain concern site last week about various problems I had had over last 18 months (neurological musco skeletal etc which have by now covered most of...

Posted on pain concern site last week about various problems I had had over last...

Red1973

•4 years ago

4 Replies

Help please...

Does anyone know of an MD in Seattle or the pacific nw that has expertise in B12 deficiency and Pernicious Anemia. Have had horrible symptoms for past 6...

Does anyone know of an MD in Seattle or the pacific nw that has expertise in B12...

Baby1212

•4 years ago

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Blood test advice

I'm having private blood tests tomorrow in a desperate attempt to direct me where to get help next (as gp given up). I'm having active b12 done, calcium,...

I'm having private blood tests tomorrow in a desperate attempt to direct me wher...

Bunny12345678

•4 years ago

1 Reply

Pernicious anemia symptoms returned after loading dose of B12!

Hi Everyone, My last loading dose injection of B12 was on 10th June after testing (twice) for a positive intrinsic factor, and slowly my symptoms have return....

Hi Everyone, My last loading dose injection of B12 was on 10th June after testi...

Iheart_TS

•4 years ago

2 Replies

Long term propranolol side effects

So I’ve been on propranolol for 10 years. It’s been amazing for my anxiety. But over the last year I’ve been so lightheaded and fainting I can’t go out the...

So I’ve been on propranolol for 10 years. It’s been amazing for my anxiety. But ...

Lucyannhughes

•4 years ago

2 Replies

Powdered Methylcobalamin

I have seen ads for powdered Methylcobalamin twice this week. It claims one just adds saline to use. The advantage seems that it extends the expiration date....

I have seen ads for powdered Methylcobalamin twice this week. It claims one jus...

EiCa

•4 years ago

78 Replies

Raymed needles

Hi everyone,just wondering if anyone has used raymed needles and if they are any good?usually use bd microfine or terumo,these came up with a google search but...

Hi everyone,just wondering if anyone has used raymed needles and if they are any...

flosslechops

•4 years ago

16 Replies

B12 helping Restless Legs

My situations that I have been on Oxycodone for 18 months and It has been fantastic in masking my restless legs (and arms) since I developed Augmentation. I...

My situations that I have been on Oxycodone for 18 months and It has been fanta...

smilingjane

•4 years ago

56 Replies

Need advice on levels of B12, help!

Hi Everyone! I Hope your are all well. I am new here signed up this morning, I am 26 years old and was dialogised with Pernicious Anaemia back in early 2014....

Hi Everyone! I Hope your are all well. I am new here signed up this morning, I a...

RedVic22

•4 years ago

15 Replies

Help Please

Could someone help me make sense of these results please?

witchcat43

•4 years ago

3 Replies

B12 delayed by gp

I’m having an injection at surgery today ( have received two texts reminding me if want to cancel and a survey to fill in incase I have symptoms of covid) it...

I’m having an injection at surgery today ( have received two texts reminding me ...

Av42

•4 years ago

6 Replies

Folate levels very low

Hi could I ask some advice about folate levels. They still seem to be dropping despite supplementing With 400 once daily would this be caused by my husband...

Hi could I ask some advice about folate levels. They still seem to be dropping d...

Hidden

•4 years ago

8 Replies

Anhidrosis

Hi everyone, Hope you are all keeping safe and as well as possible in these challenging times. I have been experiencing burning 🥵 through my entire body (...

Hi everyone, Hope you are all keeping safe and as well as possible in these cha...

CarlaEP

•4 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2020

What can be done about foot pain/burning

B12 injections

Can anyone help me please?

Update on Phone Consultation today.

GP fully aware of NICE guidelines 🙂👍

New B12 Deficiency sufferer

Advice please.

Worried Son

Raymed needles arrived yesterday(monday)

Keep loading?

Travelling with B12 injections

Tooth

I am trying to figure out how often to self inject. Do I inject when I start to feel “off” or do I just put myself on some sort of schedule?

Thanks for replies - when will I feel any improvement after starting B12 injections

Is b12 deficiency and on injections classed as a disability in the uk

Trying to find a Pediatrician who knows about B12/Folate Deficiency in the UK

Fungal infection and malabsorption.

B12 deficiency query

Help please...

Blood test advice

Pernicious anemia symptoms returned after loading dose of B12!

Long term propranolol side effects

Powdered Methylcobalamin

Raymed needles

B12 helping Restless Legs

Need advice on levels of B12, help!

Help Please

B12 delayed by gp

Folate levels very low

Anhidrosis

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