B12 injections

[Whitch]

Hi just phoned my doctors surgery - on hold for 31 minutes and when i tried to make appointment was told i have to email nurse who will check my records and see if I am eligible !!! I have been having them for many many years and now they are casting doubt on whether that was necessary !!! I had a lung operation and went into surgery to have stitches removed early in May and the nurse went to ask a doctor if I could have B12 injection a week early as it would save me coming to surgery again and doctor agreed that it was necessary and I had it then !!! Now have to wait for nurse to let m know !!!

Admin note:Edited to remove name

[Mewsmom]

This is like them! telling us we store B12 in the liver for a year so our injections can be stopped while virus is rife .....if that is true, why do we need injections several times a year. ...as I always say wouldn't it be great, a once a year injection that worked.... 🤔

[Gambit62 Administrator]

Whitch have removed your name from the end of the post to protect privacy.

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[Sleepybunny]

Hi,

Have you considered joining PAS who can offer support and info?

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

PAS support groups in UK

pernicious-anaemia-society....

No meetings during pandemic.

B12d.org has some online meetings during pandemic.

b12d.org/event

B12 Deficiency Info website has lots of useful info.

b12deficiency.info/

Check your GP surgery is using the BSH guidance published on 24/4/20. They may be using out of date BSH advice. See PAS news item below.

pernicious-anaemia-society....

Unhappy with Treatment (UK info)

Letters to GPs about B12 deficiency

b12deficiency.info/b12-writ...

CAB NHS Complaints

citizensadvice.org.uk/healt...

MPs and devolved representatives worth talking to as well.

I wrote very detailed replies on another forum thread with more info eg symptoms lists, causes of B12 deficiency, tests for PA, list of B12 books, list of B12 websites, more UK B12 documents, letters to GP about B12 deficiency and other B12 info including hints on dealing with unhelpful GPs, which you might find helpful.

healthunlocked.com/pasoc/po...

If you're in UK, be aware that the pandemic is impacting patients' B12 treatment.

I left a detailed reply about impact of pandemic on B12 treatment in UK in next link.

healthunlocked.com/pasoc/po.....

I am not medically trained.

[deniseinmilden]

It's bonkers and I'm so sorry for you. It's a scary position to be in, let alone when you have just had a major operation. Please keep making the effort to get yours. x