Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for July 2020

Which blood tests are most helpful when cost is an issue please?

I've been pricing up the IF, MMA and homocysteine tests and can only really afford one, maybe two if absolutely essential. I previously had an active B12...

I've been pricing up the IF, MMA and homocysteine tests and can only really affo...

Bunny12345678

•4 years ago

16 Replies

I'm new here. I have PA and notice when I walk in high temps I dehydrate easily and get shaky. Is this related to PA? Thanks!

New PA sufferer

walkinglady

•4 years ago

3 Replies

Anyone notice a link between B12 and insect bites?

I was just wondering if anyone else gets eaten alive by insects or has noticed that they get bitten more or less once their B12 is optimised. I must admit to...

I was just wondering if anyone else gets eaten alive by insects or has noticed t...

Hidden

•4 years ago

6 Replies

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Loading shots and worse hand issues

Anyone else experience their hands getting tight and almost cramping up. I did my 3rd injection today and I noticed it some this morning but now it’s way...

Anyone else experience their hands getting tight and almost cramping up. I did m...

JBCADR

•4 years ago

10 Replies

5000mcg B12

I have been self injecting methylcobalamin subcutaneously with prefilled 1ml syringes that I purchase from a local naturopath. It recently came to my attention...

I have been self injecting methylcobalamin subcutaneously with prefilled 1ml syr...

Themaid

•4 years ago

4 Replies

B12 deficiency symptoms waiting on blood results. Scared.

Hi to whoever is taking the time to read. I’ve got some strange scary symptoms going on. It started about three weeks ago with a slight tingle on the top of my...

Hi to whoever is taking the time to read. I’ve got some strange scary symptoms g...

Cajswansea

•4 years ago

46 Replies

Severe facial pain

Has anyone had a similar reaction -- severe facial pain -- as I have from cyano cobalamin, methylcobalamin, hydroxocobalamin in all forms (oral, sublingual,...

Has anyone had a similar reaction -- severe facial pain -- as I have from cyano ...

Hidden

•4 years ago

4 Replies

Niacinamide?

I have b12 deficiency and possibly epi (no diagnoses have been made) and I ordered some multi minerals and vits for daily use along with oregano oil to take...

I have b12 deficiency and possibly epi (no diagnoses have been made) and I order...

Luac

•4 years ago

2 Replies

Coeliac, IBS or something else?

Hello, I've always experienced bloating/stomach pain and cramps after eating (for about 10 years). I put on weight quite easily and feel self conscious when...

Hello, I've always experienced bloating/stomach pain and cramps after eating (fo...

KAMorris

•4 years ago

5 Replies

Progress at last

I went to my gp yesterday,still no appointments it’s like trying to get into Fort Knox,ring the bell and stay outside till nurse comes.They had text me to come...

I went to my gp yesterday,still no appointments it’s like trying to get into For...

Hidden

•4 years ago

15 Replies

Neurologist says there is no scientific reason to inject more frequently

Many of you know that a few of my symptoms started returning about 5-6 weeks into injection treatment. I saw my Neuro today and I asked why I can’t change my...

Many of you know that a few of my symptoms started returning about 5-6 weeks int...

HopetoB12better

•4 years ago

40 Replies

SIBO

I am wondering if anyone had any experience with SIBO? I recently received the diagnosis. Did you find something that worked? That didn't work? How did you...

I am wondering if anyone had any experience with SIBO? I recently received the ...

KittyKitten

•4 years ago

25 Replies

Advice on blood results appreciated please?

Finally I have my blood results, I think my mcv is high...does this suggest b12 issue please?

Finally I have my blood results, I think my mcv is high...does this suggest b12 ...

Bunny12345678

•4 years ago

14 Replies

Advice

Ok I start getting symtoms around 6 weeks after injections and are pritty bad.. .I managed to get them clover together from 12 to 8 weeks but even waiting 2...

Ok I start getting symtoms around 6 weeks after injections and are pritty bad.. ...

Mozza127

•4 years ago

1 Reply

Dry tongue back pain

Just me again. 😩 I keep waking up with dry mouth in the middle of the night. My tongue is red irritated and slightly swollen. I’m worried this is a sign of...

Just me again. 😩 I keep waking up with dry mouth in the middle of the night. My...

JBCADR

•4 years ago

10 Replies

Negativity/concern

Yesterday . Usual decision of di u need a b12 Injection today? Decided no this pain is from tooth. Akso trying t8 stick to 5- 6 days. (Soon crept from weekly)...

Yesterday . Usual decision of di u need a b12 Injection today? Decided no this p...

Nackapan

•4 years ago

6 Replies

Swollen sore tongue

I was just diagnosed on Thursday with b12 deficiency. I had a my first shot on Saturday and I’ve been supplementing in between. The supplements are doing...

I was just diagnosed on Thursday with b12 deficiency. I had a my first shot on S...

JBCADR

•4 years ago

19 Replies

position of b12 injections

When the nurse gives me my injection of B12 in my upper arm I almost cry with the pain. However, now I have a bad leg, a community nurse came and injected me...

When the nurse gives me my injection of B12 in my upper arm I almost cry with th...

jillc39

•4 years ago

11 Replies

Are b12 sublinguals working - and almost immediately?

So I just wrote earlier today that my injection schedule is changing to once monthly - and that I had that all-too-familiar “burning feet” feeling yesterday...

So I just wrote earlier today that my injection schedule is changing to once mon...

HopetoB12better

•4 years ago

3 Replies

As injection schedule decreases, symptoms are returning!

So as some of you know (Seth12345), I was diagnosed with b12d about 8 weeks ago. My loading doses were: once a day for 7 days, once a week for a month and...

So as some of you know (Seth12345), I was diagnosed with b12d about 8 weeks ago....

HopetoB12better

•4 years ago

7 Replies

How long are B12 serum levels affected by injections/sublingual

Hi everyone! It's been a long time since I posted here - long story short I eventually found out I have secondary hypothyrodism which was the cause of my...

Hi everyone! It's been a long time since I posted here - long story short I even...

liaratsoni

•4 years ago

2 Replies

Vitamin and minerals

Hello everyone, I'm a newbie here. I was diagnosed with PA about a year ago and now get injections every 10 weeks. I have been vegetarian for around 43...

Hello everyone, I'm a newbie here. I was diagnosed with PA about a year ago an...

3rdNettydoon

•4 years ago

4 Replies

Help?

Hello! Since march, I have many canker sore and glossitis. I am tired and I loose my hairs. I'm 24 yo. I have a megaloblastosis, my b12 and folates are very...

Hello! Since march, I have many canker sore and glossitis. I am tired and I loos...

friedax7

•4 years ago

18 Replies

Just diagnosed - shot or supplements?

I have been dealing with fatigue and forgetfulness for about 3 years and complained to my doctor at every visit. She’d check my thyroid but it was always fine....

I have been dealing with fatigue and forgetfulness for about 3 years and complai...

JBCADR

•4 years ago

28 Replies

Intrinsic factor antibody test

Hello, My GP has agreed to test this antibody. I have Hashimoto's/hypothyroidism and take 150 mcg levothyroxine along with low dose naltrexone (currently 1 ml...

Hello, My GP has agreed to test this antibody. I have Hashimoto's/hypothyroidism...

Zazbag

•4 years ago

11 Replies

Can’t Calm Down

Trigger Warning: CoVid19, venting, survivors guilt Okay we all know about Covid correct? Unfortunately I live in Florida where the cases are skyrocketing, yet...

Trigger Warning: CoVid19, venting, survivors guilt Okay we all know about Covid...

mcginnmx

•4 years ago

1 Reply

Blood results normal so why do I feel so bad?

Have just joined forum so hoping to learn from others. I have been having 3 monthly injections until lockdown. Now GP practice has decided no more injections...

Have just joined forum so hoping to learn from others. I have been having 3 mont...

Cauliflowercheese

•4 years ago

16 Replies

To enjoy

Thought I would add a rather lovely Sunflower to beginner1 s lovely flowers posted . My daughters rabbits love them once spent.

Thought I would add a rather lovely Sunflower to beginner1 s lovely flowers post...

Nackapan

•4 years ago

2 Replies

Difference between b12 injections from GP and to Capsules from German pharmacy

Is there a difference in the b12 that the gp prescribe to the b12 you can order from the German pharmacy? Such as the dosage being smaller from the doctors...

Is there a difference in the b12 that the gp prescribe to the b12 you can order ...

LittleA

•4 years ago

7 Replies

B12 query

Thanks to all who posted to my recent comment about deficiency. Probably going to get B12 active blood test via home kit Have had couple of feroglobin tablets...

Thanks to all who posted to my recent comment about deficiency. Probably going t...

Red1973

•4 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2020

Which blood tests are most helpful when cost is an issue please?

I'm new here. I have PA and notice when I walk in high temps I dehydrate easily and get shaky. Is this related to PA? Thanks!

Anyone notice a link between B12 and insect bites?

Loading shots and worse hand issues

5000mcg B12

B12 deficiency symptoms waiting on blood results. Scared.

Severe facial pain

Niacinamide?

Coeliac, IBS or something else?

Progress at last

Neurologist says there is no scientific reason to inject more frequently

SIBO

Advice on blood results appreciated please?

Advice

Dry tongue back pain

Negativity/concern

Swollen sore tongue

position of b12 injections

Are b12 sublinguals working - and almost immediately?

As injection schedule decreases, symptoms are returning!

How long are B12 serum levels affected by injections/sublingual

Vitamin and minerals

Help?

Just diagnosed - shot or supplements?

Intrinsic factor antibody test

Can’t Calm Down

Blood results normal so why do I feel so bad?

To enjoy

Difference between b12 injections from GP and to Capsules from German pharmacy

B12 query

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