Loading shots and worse hand issues

[JBCADR]

Anyone else experience their hands getting tight and almost cramping up. I did my 3rd injection today and I noticed it some this morning but now it’s way worse. I also noticed that I tend to clench my fingers when just sitting here. It went from numb and tingly to this and still some numb and tingly 🥴. I knew it wouldn’t be rainbows and butterflies but seriously!

[Seth12345]

This exact thing happened to me... Although I never had the clamping.. my hands feel like I have a form of osteoarthritis... It got really bad after loading doses and it's continued for months... Although is finally starting to ease up.

[HopetoB12better in reply to Seth12345]

I had the same thing only in my feet. Horrible foot and toe cramps - would come on strong sometimes while I was asleep. Made me leap out of bed to try to relax them but it wasn’t easy. I also had bad muscle jerks in my arms and legs at this point too.

[Liyaelize in reply to HopetoB12better]

I have muscle jerks in my arms. They started with my use of Tirosint Thyroid meds. I switched to Synthroid and T3 Liothyronine about 4 months ago. What did you use for the muscle jerks? I had Levothyroxine injections whilst living in South Africa and Hong Kong. But here in the USA it is not known as a treatment. Injections works through a different pathway as with Celiac's anything by mouth is not absorbed well. Thanks for sharing.

Elize

[Sleepybunny]

Hi,

Before I got B12 treatment I would wake up with hands that were like claws and it would take a while before they uncurled. Thankfully in my case, B12 treatment stopped this symptom.

Has the GP checked your potassium and magnesium levels?

I am not medically trained.

[JBCADR in reply to Sleepybunny]

They were fine before treatment began. She had run some lab work on Monday but that was only after one shot. I’ve been eating bananas and forced myself to drink coconut water yesterday

[clivealive Forum Support]

Hi JBCADR

It is not uncommon for some symptoms to appear to get worse before they get better as the B12 you are having starts repairing the damage done to your nervous system and your brain starts getting multiple messages from part of the body it had "forgotten about" or lost contact with.

I sometimes liken it to a badly tuned radio on which you have turned the volume up high trying to catch the programme you want when all of a sudden the signal comes in loud and clear and the blast nearly deafens you.

A lot will depend on the severity and longevity of your B12 deficiency as to how long before there is no further improvement or recovery. Some symptoms will "disappear" quite quickly whereas others may take months or even years.

There is no set timescale as we are all different.

If you can get to see a doctor please also ask him/her to check your Folate level as this and B12 help your iron to make red blood cells and to function properly.

I am not a medically trained person but I've had Pernicious Anaemia (one of many causes of B12 deficiency) for more than 48 years.

I wish you well.

[Seth12345 in reply to clivealive]

Clive's classic message. I remember getting this one I also remember how I felt when I got this message and how far I've come in only 4 months

[JBCADR in reply to clivealive]

Thanks! I am feeling nausea again this morning and shakiness. I just feel like my body is achy. I have an EMG today. I’m afraid of what they will say. My hands still fell stiffness in my fingers. I’m just so ready to feel better.

[HopetoB12better in reply to clivealive]

I remember clivealive sent me this same post and it’s very true. My neurologist also said it’s the nerves going thru tiny “flare ups” during treatment because the body “remembers” the signals it used to send. Mine has lessened.

[JBCADR in reply to HopetoB12better]

This makes me feel better! My neurologist is having me do an EMG today and then depending on what it show an MRI of spine and brain scan. He hasn’t told me that I’d feel anything like this as I start shots. I’m glad to hear others tell me it’s normal.