Negativity/concern: Yesterday . Usual... - Pernicious Anaemi...

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Negativity/concern

Nackapan profile image
6 Replies

Yesterday . Usual decision of di u need a b12 Injection today? Decided no this pain is from tooth. Akso trying t8 stick to 5- 6 days. (Soon crept from weekly) Thought must try and get downstairs and moving. Within 19 minutes had purreed prunes ans porridge on a white t shirt. Fed the cara dropped a bowl and it went up the windows up the wall and splattered all over. me . Now dogs would clear it up. Cats looked ar me full of disdain waiting for their bowl in their place! Sat on the floor ( wondering if I could then get up as so stiff) wanted to cry but decided it would hurt too much. Then a headache all day.

Thus was all before 0800.Asked a specific question and got a generic answer.

I felt dismissed like an irritant fly thars landed on you. ..texting s friend of ? 38 years. He said to stop being so weird. The upset me. In your 20s weird and interesting is good. Not now. I then realised so many of us are suffering with lack of social contact. I.T test tiu can literally be switched off. Alot of misunderstandings. I realise like many I'm deoendant in body language. Fortunately I easnt ' switched off' my brain was then addled as suggestions of stopping b12 to see if I really need as much. Aksi is this forum actually helping . Does anyone get cured and stop injections??? Then he suddenly did help as said the antibiotics are making me over sensitive and analysing everything. Alsi I'm not able to eat enough. So I'm hoping all this negativity and really struggling to kero going is the antibiotics and nothing to do with needing more b12. Hope a better day for all .

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Nackapan
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6 Replies

Good morning Nackapan maybe your friend is just having an off day,we all get a bit short sometimes so just put it behind you and cherish the fact he’s been there for 38 years.

I think your just a bit fragile at the moment and no surprise after what you’ve just been through and definately yes! Those antibiotics can make you feel so low and defeated at times so recognise that’s what it is and dismiss those feelings because in time it will ease up.

If I was you during these stressful times I’d increase my b12 because you know the stress of all this is using up your reserves so just for a few weeks increase your frequency then when you feel a bit stronger reduce again.I hope you try and get a good rest today and I know what you mean about the cats as long as they get what they want they’re so loving but don’t you dare cross them or you get the killer looks lol.

Rest and enjoy your day take care.x

Nackapan profile image
Nackapan in reply to

Thank you for your prompt response. Much appreciated.

Hope your day goes well .

Cherylclaire profile image
CherylclaireForum Support

Don't like to hear you down, Nackapan .

Some days have a difficult start that feels like some sort of trial.

I remember watching the marathon "fun" runners at around 15/16 miles in: didn't look like fun at all, it looked like some sort of inner anger was fuelling their every step. Years later, when I was really ill, I think this was the kind of energy I had to employ to get through some days, as there wasn't anything else left to tap into. Would not recommend it, but I didn't seem to have any choice then and no other way to get through the day. A weird time .

Instead you just sound so sad: thinking this is just antibiotics, which can make you downhearted. Hope so. "Wanted to cry but decided it would hurt too much": you made me want to cry and laugh at the same time !

Nackapan profile image
Nackapan in reply to Cherylclaire

Yes it made my husband smile when I told him . I did find the funny side that's why I wrote it It was also true though.

Day 8 today. Post extraction.

I wasnt up in the night needing painkillers. Hurrah. Antibiotics finished. Took fluconazole .not bothering to wait. Body not as painful/ jarred. Stitches are tight in my mouth but the aching is the sort that is good now as fusing and healing.

Had semi solid food. Now food is a comfort to me . And for that to be reduced to slush for more than a few days affected me. I've never been overweight to the contrary but very food dependant.

I'm weak but in a post operative way. Not b12 way . Starting to distinguish at last.

I think like you and many many more it just felt like insult to injury.

I'm picking up slowly thankyou.

I think thars the lowest I've got since the start well actually at the start you are too ill to get down.

Mad dreams. One of which going to Gp and saying perhaps I will try the latest drug she suggested. (Duloxetine)

She smiled and said I told you, you are depressed!!

In the dream I felt too weary to explain I wasn't then bit maybe now. But then a 'Biddendon' pie appeared whatever that is. Food. Lol. So a solution .

It's the second lot of antibiotics sine May. after 16 years without them!! Like you they make me ill. I remember my late dad saying once he felt low and had no idea why. Antibiotics. Once a readin he perked up. Perhaps that's where the sadness note came in . I'd been thinking about late friends and family. Humour was in all those relationships big time.

It has set me back but got out the house for the first time today for a very short walk. B12 IM at the surgery tomorrow as I'm convinced on this occasion need it to go in quickly. Sc suiting me otherwise as definitely goes in slower. I'm starting to think I will need them as frequently to move / crawl forward.

Hope you are doing okay. Hope your project continuing.

Yes we all need a symptom free few hours/ day. Respite.

I got through many things but nothing as gone on for so long before .

When young I had to relearn to walk . How to use cutlery ect. Then relearn to run. Up and down the road until I conquered it. So we all have our 'marathons ' i dont dont personally think ever fun. Rewarding yes.

I dont actually 'get' competitive sport.

Yes all very confusing when the 'tools' you have learnt to use to get through dont work anymore.

We will all find a way.

Let's just hope the path gets smoother.

Take care

(Did the dentist love her portrait? )

Cherylclaire profile image
CherylclaireForum Support in reply to Nackapan

Glad you got out- although "skyless sky" a bit of a downer - even for a short while.

Yes, I never got competitive sport either - though I like to watch it. Love to walk for hours to explore areas properly when I get away anywhere- or even locally, but can't imagine jogging being fun or gyms.

Why did you have to relearn walking etc. as a child ?

(She seemed to be happy with it, Nackapan !)

Nackapan profile image
Nackapan in reply to Cherylclaire

Horse riding accident at 10yrs old. Concussion. Horse fell over! as hadnt been out of the yard for too long so got over excited.

Dod mention it to every neurolodist I've seen as I'd had a bad fall in August before collapse in Ovtober . Vertigo then b12 deficiency only thing found.

Only one out of 3 thought fall in August significant. None thought childhood concussion even though I've read it csn????

The one that thought last fall caused virtigo and light sensitivity and variant migraines even though collapse 5 weeks after. He was the one that said too much b12 dangerous and I was addicted and should get off it.

So with 3 days different things .who knows?

(Glad the portrait appreciated)

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