Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,211 members • 23,381 posts

All posts for June 2020

Is it true that with PA you can’t store b12 in the liver?

Does anyone have any good research to read on this topic? Based on my experience, I’m inclined to believe this myself, but how could that be? I thought we just...

Does anyone have any good research to read on this topic? Based on my experience...

Xena2202

•4 years ago

14 Replies

So I did it, I injected my self. But the discomfort ?

So, I did it. I injected my self with b12 A mini victory Though I injected my thigh and feel some discomfort, is this normal? It didn’t bleed much at all no...

So, I did it. I injected my self with b12 A mini victory Though I injected my ...

LittleA

•4 years ago

23 Replies

PA B12 and H Pylori???

Hi all I haven't posted on here before but find the site really helpful. Sorry for the long post. I was diagnosed with PA about 1 year ago. I only know it's...

Hi all I haven't posted on here before but find the site really helpful. Sorry ...

Catrratt

•4 years ago

6 Replies

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Letter to GP to reinstate B12 injections

Hi all, I’ve finally composed a letter to my GP to discuss reinstating my injections (haven’t had much luck over the phone, basically I’m selfish, GP lack of...

Hi all, I’ve finally composed a letter to my GP to discuss reinstating my inject...

Kaceysimo

•4 years ago

18 Replies

Help needed due to work issues

Why is pernicious megloblastic anemia, b12 ,not on the government list ? And what if you have got folic acid ,with ostiopina as well as nerve damage ?

Why is pernicious megloblastic anemia, b12 ,not on the government list ? And wha...

1Bee

•4 years ago

3 Replies

Active B12 levels

What is the minimum level for Active B12? Does the usually quoted 150-200 odd, normally used in the UK NHS, refer to Total B12, or Active B12? I am waiting...

What is the minimum level for Active B12? Does the usually quoted 150-200 odd, n...

Ernest12

•4 years ago

13 Replies

B12 phone consultation

Following on from my previous post, I have a phone consultation this afternoon with the practice manager of my gp practice before I send a letter. I'm scared,...

Following on from my previous post, I have a phone consultation this afternoon w...

Hellywelly1980

•4 years ago

11 Replies

Delivery difficulties

Please be carefull ordering from Versandapo. They give two delivery methods. I have usually had DHL, but l have had great trouble getting my parcel. Long story...

Please be carefull ordering from Versandapo. They give two delivery methods. I h...

jaybirdxNHM

•4 years ago

17 Replies

Persistent cramp - legs/hands

What’s the best magnesium and amounts to take for persistent cramp in legs and hands, eg pills or powder? Thanking you.

What’s the best magnesium and amounts to take for persistent cramp in legs and h...

mfrie

•4 years ago

10 Replies

Info re B12 viles please 😊

Hello everybody I have just bee di*sed b12 deficiant and offered the 2 weeks loading shots and 3 monthly injections. I have been v. deficiant for a long time...

Hello everybody I have just bee di*sed b12 deficiant and offered the 2 weeks l...

smilingjane

•4 years ago

8 Replies

Where is the best place to buy Hydroxycobalamin ?

Where can I buy Hydroxycobalamin for injection

Jeddah0

•4 years ago

6 Replies

Lipoic acid

Had anyone tried this? If so does it help nerve pain at all? Most of mine in scalp

Had anyone tried this? If so does it help nerve pain at all? Most of mine in sc...

Nackapan

•4 years ago

6 Replies

Getting worse...

I’ve been feeling worse the last few weeks & 5 days ago my hands started swelling up & my wrists killing me, I can hardly move my hands I dunno what to do???

I’ve been feeling worse the last few weeks & 5 days ago my hands started swellin...

Queeniz

•4 years ago

5 Replies

I feel ashamed of myself..

My work is really understaffed and I am doing the work of three people. This is the point to that my left arm needs to be in a brace. I price tag about 1600 or...

My work is really understaffed and I am doing the work of three people. This is ...

mcginnmx

•4 years ago

3 Replies

Self injecting - tips please

Hi, I'm currently on loading injections of B12 until my neuro symptoms go away. There has been some improvement after a few months so that's encouraging - I...

Hi, I'm currently on loading injections of B12 until my neuro symptoms go away. ...

Hidden

•4 years ago

26 Replies

Advice please

I am doing a thyroid and vitamin test through one of the companies. My three monthly b12 injection is due on Wednesday and I am going to do the finger prick...

I am doing a thyroid and vitamin test through one of the companies. My three mon...

PamBow

•4 years ago

10 Replies

Help! Vomiting blood?

Hello - I felt a little queasy this morning from admittedly having a bit too much liquor. (I know, I know....) But, I vomited blood, which I have never done....

Hello - I felt a little queasy this morning from admittedly having a bit too muc...

HopetoB12better

•4 years ago

6 Replies

Can’t sleep

My body was hot last night I don’t no if it was premenopausal but I could not sleep I finally doze off at 3:00 and woke up to heart racing at 5:00 I don’t...

My body was hot last night I don’t no if it was premenopausal but I could not sl...

Honey1978

•4 years ago

35 Replies

Fascinating read...

https://www.martynhooper.com/2020/06/03/reflections-on-treating-pernicious-anaemia/

https://www.martynhooper.com/2020/06/03/reflections-on-treating-pernicious-anaem...

Hidden

•4 years ago

4 Replies

B12 Shots & weight gain/swelling

I’m extremely frustrated and hoping to get some answers! I’m a very active 31 year old female with Hashimotos, fibromyalgia, colitis and an extreme B12...

I’m extremely frustrated and hoping to get some answers! I’m a very active 31 ye...

Hidden

•4 years ago

5 Replies

Gastroenterologist

My daughter had her appointment by telephone. She asked about having b12 injections 2 monthly rather than 3 monthly. His reply was some people seem to need...

My daughter had her appointment by telephone. She asked about having b12 injecti...

Nackapan

•4 years ago

8 Replies

Ugh! False B12 reading because of recent injections!

So I just stated b12 injections and my doc ordered an IF test and threw in another b12 test but this was three days after I had 3 injections. Normal range is...

So I just stated b12 injections and my doc ordered an IF test and threw in anoth...

HopetoB12better

•4 years ago

6 Replies

Thankful for this forum!!

I am so thankful to have found this wonderful community that provides information and support. About how many people are on here? I wish the whole world knew...

I am so thankful to have found this wonderful community that provides informatio...

HopetoB12better

•4 years ago

3 Replies

Continue supplementing for next blood tests?

I’ve arranged blood tests to see where I am with my levels now.Its been around 5 months since I first started so I’m thinking because I want to see if my...

I’ve arranged blood tests to see where I am with my levels now.Its been around 5...

Hidden

•4 years ago

17 Replies

Update and a giant thank you

Because of the help I received from a lot of the members on here I have now received my B12 injection, after 2 blood tests, ecg and a set of bloods that said...

Because of the help I received from a lot of the members on here I have now rece...

Davepolo

•4 years ago

8 Replies

B12 Deficiency is the worst experience of my life!

I’m a 50 year old female - have had random Neuro symptoms for over 3 years - tingling and numbness in hands and feet, numb thighs, numb knee caps, pins and...

I’m a 50 year old female - have had random Neuro symptoms for over 3 years - ti...

HopetoB12better

•4 years ago

61 Replies

New PAS news item and new PAS blog post

Hi All Apologies if this has already been posted. PAS news item from 30th May. More about Treatment of PA during pandemic...

Hi All Apologies if this has already been posted. PAS news item from 30th May. M...

Sleepybunny

•4 years ago

1 Reply

Bit of good news

I feel like I’ve had a wee lottery win today lol. I’ve been plodding away with the s.injections and trying to optimise my vitamin levels by taking supplements...

I feel like I’ve had a wee lottery win today lol. I’ve been plodding away with t...

Hidden

•4 years ago

6 Replies

Active B12

Morning All My results from medicheck says I'm in the normal range as my active B12 is over 150 pmol but less than 187 pmol. Not sure why 187 as it seems a...

Morning All My results from medicheck says I'm in the normal range as my active ...

Sunshine1932

•4 years ago

3 Replies

Getting your B12 injection during COVID

Dear members, I just wanted to highlight the current situation around getting B12 injections from your doctor during COVID. The guidance has changed and...

Dear members, I just wanted to highlight the current situation around getting B1...

Maxie902

•4 years ago

11 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2020

Is it true that with PA you can’t store b12 in the liver?

So I did it, I injected my self. But the discomfort ?

PA B12 and H Pylori???

Letter to GP to reinstate B12 injections

Help needed due to work issues

Active B12 levels

B12 phone consultation

Delivery difficulties

Persistent cramp - legs/hands

Info re B12 viles please 😊

Where is the best place to buy Hydroxycobalamin ?

Lipoic acid

Getting worse...

I feel ashamed of myself..

Self injecting - tips please

Advice please

Help! Vomiting blood?

Can’t sleep

Fascinating read...

B12 Shots & weight gain/swelling

Gastroenterologist

Ugh! False B12 reading because of recent injections!

Thankful for this forum!!

Continue supplementing for next blood tests?

Update and a giant thank you

B12 Deficiency is the worst experience of my life!

New PAS news item and new PAS blog post

Bit of good news

Active B12

Getting your B12 injection during COVID

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