Bit of good news: I feel like I’ve had... - Pernicious Anaemi...

Pernicious Anaemia Society

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Bit of good news

6 Replies

I feel like I’ve had a wee lottery win today lol.

I’ve been plodding away with the s.injections and trying to optimise my vitamin levels by taking supplements as advised but feeling very frustrated because I feel so yuk,worse than I have for ages,and the not knowing if I’m doing the right things has been really testing me.

Today I found out that the private blood drawing that I need for testing can now be done again,The nurses are available again to do it it’s well worth it for me as I can’t bear the idea of pin prick system,I hate blood or needles and know I can’t do it anyway so long story short ive bought a 47 tests checking just about everything again ,really comprehensive and at a reduced cost of £120 I’ll finally get some feedback to tell me if I’m on the right track and what improvements if any have been made so I’m really happy tonight.ive got to wait on the kit coming then I take it to nurse on the 19th to do the venous draw then it’s a two or 3 day turnaround ,I can’t wait how sad is that 😂

Just thought I’d mention in case anyone else is waiting on this option because of lockdown.

Gps can’t and won’t provide anywhere near this in case anyone’s wondering why I’m going private.its just a personal choice for me.

6 Replies
Nackapan profile image
Nackapan

Good for you. 47 tests sounds thorough !

in reply to Nackapan

Hi Nackapan yes it’s the well woman ultra vit medichecks blood test it tests hormones vitamins minerals ,thyroid including t3,active b12 ,iron status All the important stuff that I need updates on the levels of so I can monitor and compare everything I’ve been doing and get some feedback.

It’s such a relief to be able to get this done I feel so knackered and hopefully this will explain where I’m at.x

Nackapan profile image
Nackapan in reply to

Yes you need something to work with.

I'm reading the side effects of amoxicillin. Hoping alot of my present symptoms are from that !!!

Aches all over. Hurts my head to walk to the bathroom. So weak and stiff.

Decided to try and walk round the block to get my body moving.

Went weak on getting back to the point I thought I was going to pass out. Loud tinnitus ect.

Intensified skull pain tinnitus.

I finished them today. For route canal work on tooth.

Hoping these extra debilitating symptoms are from amoxicillin . My tooth fine. Had a IM b12 on wednesday.

Hope you get some answers from your blood test. I also supplement according to bloods.

I'm due mine . Good to have that Information thanks incase cant have it. Normally 3 monthly but have purposely waited nearly 6 months because of the current crisis. I'm on iron and dont want to continue unless necessary. They also missed off vit d as a day before 3 months and labs refused!

Take care

.

in reply to Nackapan

Sorry to hear your having those horrible symptoms it could well be the antibiotic it could also be your system trying to flush out the toxins from the infected tooth ,that can be so debilitating ,my husband is a big strong man mentally and physically but if he gets a tooth or gum infection he drops like a brick,thankfully he rarely gets them now.

IVe felt so watery these last couple of weeks,my muscles are sore really heavy legs and so tired,wonder if it could be a summer virus doing the rounds that’s hitting us now.?

Stay safe and as well as you can be Xx

Nackapan profile image
Nackapan in reply to

Yes its relentless.

Lots of viruses around apart from the coronaviris.

Take care

HopetoB12better profile image
HopetoB12better

Wow how awful that you can’t get the help you need! Good for you that you are doing your own thing. You have to be your own advocate these days!! How long have you had this and how are you feeling and what are your symptoms?

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