B12 phone consultation

[Hellywelly1980]

Following on from my previous post, I have a phone consultation this afternoon with the practice manager of my gp practice before I send a letter.

I'm scared, I get so confused and come across as thick because I get things around my back side I can never think straight! The more I read the more worried I get because I live in Gloucestershire!

Borderline b12 177ng/L

Was told I can have b12 every 6 months for two years.

I'm having symptoms again so rang to query why not sooner and told the other gp was doing me a favour!

But could have them if I come in for a blood test and if the results come back low they would give me them 3 monthly.

But my concern surely I've had my loading doses 3 months ago my levels are going to be high?

So I've said that to the gp who said if they are high i would only have them every 6months as the previous gp authorised as the favour!

[Seth12345]

If you need injections, start self injecting or find someone to do it for you. Honestly, there is no reason to futz around with these stupid GPs that don't understand our illness and refuse to learn about it.

(Sorry, I'm just venting from personal experience and many months of suffering)

[Hellywelly1980 in reply to Seth12345]

Think it could lead to that.

Just so annoying all I was told is my b12 numbers. I asked why they could be low and was told some peoples are,could be nothing

[Nackapan]

Have your list of symptoms in front of you. Say you concerned about irreversible nerve damage.

Say it's the ongoing symptoms that are a worry.

Ask what else they can be caused by?

Say if you felt the b12 I jection helped you.

Stay calm. Say you've tried tablets

They are not getting absorbed.

Say what you want to trial.

Hope it goes well.

Say you've had guidance from PA .

Ask PA for help?

[Hellywelly1980 in reply to Nackapan]

Thank you, I hope it does

[Nackapan in reply to Hellywelly1980]

Let us know

[Hellywelly1980 in reply to Nackapan]

I will do looks like it will be tomorrow now as he's in a meeting.

My folate was fine. Could it be a one off my b12 was 177? Sorry if that sounds stupid

[Nackapan in reply to Hellywelly1980]

My folate always been fine. My ferritin levels dropped quite dramatically though. It could be a one off as testing not completely accurate either.

Some people do function at a lower level but you had symptoms so too low for you.

My first ever b12 was 106 but I had to collapse and get virtigo before it was finally tested.

My husbands wad 186 then on the lowest dose of b12 tablet raised to 356. Having seen me suffer. He takes a tablet every day. 10ug.

1000 does not work for me. We are all different with different reasons for b12 dropping and making us ill

Hope tomorrow goes well.

[Hellywelly1980 in reply to Nackapan]

Thank you again for your time. My levels tested previously was 250 and felt terrible then but not low enough to warrant injections. And that was 3 years ago. I have only had b12 and and folate tested .

My diet is good so not sure .

Thanks

[Nackapan in reply to Hellywelly1980]

I would ask for iron and vitamin d and ferritin .

My diet is really good and always has been. Love my food. So quits a shocjk ti find I've stopped absorbing properly.

[Hidden]

I seem to live in a permanent state of confusion regarding my low folate/B12. I am vegetarian, which my doctor says doesn't help. However, I would consider my diet healthy.

This lack of B12 seems to have dogged me my entire life. I demonstrate nearly all of the symptoms, the major one being a complete lack of energy which really impacts on my life. About three years ago my doctor suddenly 'discovered' that my B12 is very low. I had a series of injections followed up by folate tablets, which my GP then told me, after a few months, I didn't need any more, despite there being no blood test to check this. I saw little to no improvement following the injections and medication.

For some time, I have had numbness in my toes and it is now to the point where it is affecting my walking ability. Following a blood test my GP texted me today to say that I should have folate medication. Considering the long term affects of lack of B12, am I right in thinking this ailment seems to have a low profile as far as my GP is concerned. Should nothing change post the folate medication, what should be my next course of action.

[Nackapan]

Are you taking daily b12 supplements? If not an absorbtion problem but dietary hopefully you will absorb them. You need to take them daily . Aldo 400mcg folic acid daily as a maintenance when your levels up.