Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for May 2020

Cancelled appointments

I just wanted to share that I have had my B12 at the surgery this morning without too much of a fight. I spoke to the Gp on the telephone who put me in touch...

I just wanted to share that I have had my B12 at the surgery this morning withou...

Kapat1

•4 years ago

2 Replies

Ugh now diabetes

Hi again. I have now been diagnosed with type 2 diabetes. I have been put on insulin injections plus Metaformin at night. I am not over weight and have never...

Hi again. I have now been diagnosed with type 2 diabetes. I have been put on ins...

Goaliegirl

•4 years ago

10 Replies

How do you know how often to self inject?

Ok, so I think this may be a daft question, but ... should I inject as soon as I notice a symptom, or should I aim to increase the frequency so I don't get...

Ok, so I think this may be a daft question, but ... should I inject as soon as I...

spacey1

•4 years ago

6 Replies

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Still exhausted

I am on injections every 3 weeks and all my symptoms are gone except for occasional stomach issues, fatigue and insomnia. I am no where near as exhausted as I...

I am on injections every 3 weeks and all my symptoms are gone except for occasio...

Nanc72

•4 years ago

15 Replies

It wasn't my GP.....

It wasn't my GP that told me my injections were being stopped(due I was told to keep people attending the surgery to a bare minimum),I read so many posts...

It wasn't my GP that told me my injections were being stopped(due I was told to ...

Mewsmom

•4 years ago

8 Replies

Refused

So I am due my usual B12 jab on Monday next week and as per usual I called to week before (today) to find out what was going to happen. I was told that they...

So I am due my usual B12 jab on Monday next week and as per usual I called to we...

Coachlady11

•4 years ago

20 Replies

An introduction.

Thank you for my addition to the group. I live with PsA, PA and Osteoporosis. I am in my 60’s and am blessed with beautiful Grandchildren. It is to spend time...

Thank you for my addition to the group. I live with PsA, PA and Osteoporosis. I ...

Twaddletop

•4 years ago

22 Replies

Suffering symptoms of b12 deficiency whilst not getting b12 injections

I'm suffering with extreme tiredness aches all over and pins and needles in fingers and toes. I'm going for b12 blood test next week full blood count and...

I'm suffering with extreme tiredness aches all over and pins and needles in fing...

Fedup2020

•4 years ago

6 Replies

High Ferritin?

Hi everyone, Got recent blood test results from GP who said my ferritin was high and she wants to do a tranferrin saturation test to make sure its not iron...

Hi everyone, Got recent blood test results from GP who said my ferritin was hig...

GladsGirlBlue

•4 years ago

5 Replies

Gauge needle and separate syringe

I am very overweight and need to order longer needle can anyone tell me exactly what gauge needle to use and separate syringe and also from where can I order...

I am very overweight and need to order longer needle can anyone tell me exactly ...

wagthedog

•4 years ago

3 Replies

Acupuncture

Hi there I wondered if anyone has tried acupuncture for their symptoms before, and if so was it helpful? I’m trying to explore every avenue I can to help...

Hi there I wondered if anyone has tried acupuncture for their symptoms before, a...

SAM2608

•4 years ago

14 Replies

I'm new here - does anyone else take sublingual B12 tablets as a treatment for PA?

I had a nasty reaction to B12 injection recently and have opted to take Hydroxocobalamin 1mg per day under doctor observation (although GP only wanted to...

I had a nasty reaction to B12 injection recently and have opted to take Hydroxoc...

WildflowerCarole

•4 years ago

10 Replies

New blog post - More about Making B12 OTC in UK

Hi, Another new blog post with more about campaign to make B12 available over the counter in UK....

Hi, Another new blog post with more about campaign to make B12 available over th...

Sleepybunny

•4 years ago

4 Replies

B12 100 Ampoules for €57.98

For those who maybe considering self injecting in these trying times due to the many posts I'm reading about clueless surgeries stopping their much needed...

For those who maybe considering self injecting in these trying times due to the ...

Ritchie1268

•4 years ago

36 Replies

GPS not allowing more regular injections or stopping them altogether, Why?

I have had problems with my gp with my B12 injections and not taking into my account my symptoms or evidence I have given. Is there a reason why gps are...

I have had problems with my gp with my B12 injections and not taking into my acc...

LittleA

•4 years ago

3 Replies

PA and Alcohol

Hello, I am relatively young at the age of 21 and I was diagnosed with PA around 6 months ago, and I self inject once a week. I was wondering if anyone has...

Hello, I am relatively young at the age of 21 and I was diagnosed with PA around...

Dakota17777

•4 years ago

15 Replies

B12 or Prenious Anemia

I had my b12 tested and it was 152 low. I started my methycobal inj 12 days ago(7 inj till nw then will have one every week for a month) Also got anti...

I had my b12 tested and it was 152 low. I started my methycobal inj 12 days ag...

kashifiq

•4 years ago

11 Replies

Why We need B12. How it was discovered.

I have been doing some research and it all confirms what my Consultant told me 40 years ago. There were three men Minot, Whipple and Murphy who worked on this...

I have been doing some research and it all confirms what my Consultant told me 4...

briarhillcat

•4 years ago

33 Replies

Neuro pain seems worse

Good morning all. I’ve had my loading doses, 6 over two weeks,then it’s supposed to be one every three months.private endo said functional b12 deficiency...

Good morning all. I’ve had my loading doses, 6 over two weeks,then it’s supposed...

Hidden

•4 years ago

4 Replies

B12 cancelled

I had a letter through the post telling me they were cancelling my b12 due to all that is going on at the moment, the doctor gave me the tablets which i know...

I had a letter through the post telling me they were cancelling my b12 due to al...

louloubell121

•4 years ago

4 Replies

B12 refusal

Hi so like many of you I’ve had my b12 cancelled! I’ve put up a strong fight by A, referring them to my medical records during 2008/2009 as this showed them...

Hi so like many of you I’ve had my b12 cancelled! I’ve put up a strong fight by...

Zeldaxxx

•4 years ago

4 Replies

G.p call

Well as most know I tried to get Subcutaneous b12 I injections on prescription to do at home inbetween IM at the surgery. Since have got my own supplies as...

Well as most know I tried to get Subcutaneous b12 I injections on prescription t...

Nackapan

•4 years ago

32 Replies

General B12 Rant,May Be Familar To Many..

Hello all, Had my B12 injection stopped like many on here.It was more that they assume that the B12 in my body is being absorbed properly. which isn't always...

Hello all, Had my B12 injection stopped like many on here.It was more that they ...

dvanian22

•4 years ago

13 Replies

With interest

I am reading all the posts with interest and sorry to read of everyone's distress. I only just got my last injection as it was a Monday morning and they...

I am reading all the posts with interest and sorry to read of everyone's distres...

Sunny999

•4 years ago

2 Replies

lifechanger

Just been to docs for my b12 jab and he's told me it can now be taken orally, wow!!! I live in Italy but wondered if it's the same in the U. K.???

Just been to docs for my b12 jab and he's told me it can now be taken orally, wo...

Karenpa

•4 years ago

7 Replies

I was diagnosed with autoimmune chronic gastric and I’ve been suffering with a fast heart beat sometimes at night

Can anybody tell me what’s good for this I also have anemia I take iron and b12 and I take thyroid medicine someone told me that gastric cause the fast...

Can anybody tell me what’s good for this I also have anemia I take iron and b12 ...

Honey1978

•4 years ago

9 Replies

Folate, b12

Hi All, Last time I wrote about methycobalamin working for me than other forms. I need injections every alternate day and it’s Already two years. I Stil...

Hi All, Last time I wrote about methycobalamin working for me than other for...

Thulasi1

•4 years ago

4 Replies

B12 injections stopped by GP.

My GP has stopped my B12 injections altogether and is saying it has nothing to do with the pandemic, that this was going to happen anyway. I was having...

My GP has stopped my B12 injections altogether and is saying it has nothing to d...

amydemi

•4 years ago

42 Replies

B12 OTC in different countries?

I know it's legal in Germany, France and Spain but what about the Scandinavian countries and Belgium and Netherlands?

I know it's legal in Germany, France and Spain but what about the Scandinavian c...

Daniel286

•4 years ago

7 Replies

Pulsatile tinnitus

Hey, I am a 20 year old girl who has been suffering from Pulsatile tinnitus for over 5 years on the left side of my head/ear. The tinnitus tends to get worse...

Hey, I am a 20 year old girl who has been suffering from Pulsatile tinnitus for ...

Fatiguegirl

•4 years ago

19 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2020

Cancelled appointments

Ugh now diabetes

How do you know how often to self inject?

Still exhausted

It wasn't my GP.....

Refused

An introduction.

Suffering symptoms of b12 deficiency whilst not getting b12 injections

High Ferritin?

Gauge needle and separate syringe

Acupuncture

I'm new here - does anyone else take sublingual B12 tablets as a treatment for PA?

New blog post - More about Making B12 OTC in UK

B12 100 Ampoules for €57.98

GPS not allowing more regular injections or stopping them altogether, Why?

PA and Alcohol

B12 or Prenious Anemia

Why We need B12. How it was discovered.

Neuro pain seems worse

B12 cancelled

B12 refusal

G.p call

General B12 Rant,May Be Familar To Many..

With interest

lifechanger

I was diagnosed with autoimmune chronic gastric and I’ve been suffering with a fast heart beat sometimes at night

Folate, b12

B12 injections stopped by GP.

B12 OTC in different countries?

Pulsatile tinnitus

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