Refused

[Coachlady11]

So I am due my usual B12 jab on Monday next week and as per usual I called to week before (today) to find out what was going to happen. I was told that they are not doing them at all and to call in a couple of weeks I was also told that they are not seeing patients at the surgery at all. I didn’t argue with the receptionist on the phone but I will be writing to the surgery and I was hoping all you lovely people would advise me how best to word it.

I do self inject in between sanctioned jabs unbeknownst to my gp as they point blank refused to let me have it more often so I’m capable of getting my b12 but I do think it’s a little irresponsible of them as they didn’t even offer b12 tablets just to call in a couple of weeks.

[Nackapan]

I agree. They dint k ow toh have your own supply.

There are posts about letters .

Just be sussinct

You need them . Give a list of symptoms.

Say you are not prepared to get I'll with possibly permanent t nerve damage

Offer to self Inject.

I am getting my b12 at the surgery also like yoh but very recently bought my own as thought the be stopped and want to try them more often.

I finally got go to prescribe 'off licence ' b12 to have subcutaneously.

Not collected or yet.

Will still get IM at the surgery .

That took from February.

So push for what yoh need. K think the fight tk keep them will be better than the fight to get them back.

Write but also get a telephone consult.

How often do you have them at the surgery?

[Sleepybunny]

Hi,

Sorry to hear your injection has been cancelled.

Sadly you are not alone.

There are many recent threads on this forum started by people whose B12 injections have been cancelled/delayed/frequency reduced or swapped for oral tablets.

I left a long reply in this next thread with info on impact of pandemic on treatment.

healthunlocked.com/pasoc/po.....

It includes links to recent PAS news items and blog posts from B12 Deficiency Info which have suggestions on how to cope if injections stopped.

I wrote a very detailed reply on another forum thread with links to symptoms lists, causes of b12 deficiency, info about PA tests, B12 books, B12 websites, UK B12 documents, letters to GP about B12 deficiency and other B12 info which you might find helpful.

healthunlocked.com/pasoc/po...

I am not medically trained.

[Coachlady11 in reply to Sleepybunny]

Thank you x

[Emmapemma]

Most GP surgeries are working in zones at present to keep staff and patients safe. If your go surgery is not an amber zone but a blue zone they will not be seeing patients. They should however have amber zone appointments to their disposal somewhere else but obviously they are sometimes more sought after. Have you asked your go if they can give you stuff to self inject during this time?

[Ghound in reply to Emmapemma]

I'm really disappointed with GP's in this Covid crisis !

If wearing PPE, the risk to doctors and their patients is negligible.

Statistics yesterday showed that bus drivers have been at the greatest risk, doctors and nurses are statistically no more at risk than the general public .

This is either because PPE is effective, or maybe because they've been hiding away from everyone !!😠

My friend who is a GP knows there are GP's who haven't seen even ONE patient in six weeks !

She is disgusted with her colleagues and is thinking of resigning from the Royal College of General Practitioners.

I was a nurse, when you sign up you expect to treat ALL patients including infectious ones !

[helvella in reply to Ghound]

Have been thinking that a few sheets of cheapest shuttering ply, a bit of plastic sheet and you could make something not a million miles away from a phone box. Patient gets to surgery car park, goes into kiosk, sticks arm through a hole, nurse (or whoever) injects. Patient leaves. Quick spray with whatever is appropriate and ready for next patient.

[Coachlady11 in reply to helvella]

Haha I love this

[helvella in reply to Coachlady11]

Casualty/Holby sent a working ventilator to the NHS. Perhaps Dr Who could send a phone box?

[Emmapemma in reply to Ghound]

I think we are all more concerned with the health of our patients then our own health so I think that is a bit unfair. Most patients I see are the most vulnerable and we need to protect them that is why we are all doing this isolation in the first place. I'm sure there are some GP'S avoiding work but they might be trying to work and do homeschooling at the same time. We are just doing the best we can, not all gp practices are bad.

[Ghound in reply to Emmapemma]

Of course not all GP's are bad, but their whole 'raison d'etre ' is to care for patients and most people on here are not receiving that care.

In fact nobody, whatever they're suffering from, seems to get to see a doctor.

At present I'm nursing a fractured wrist, having fallen due to the ataxia and vertigo I suffer as a result of PA.

I was shouted at for attending an A&E department which was so quiet I was the only patient and given the most cursory care, no advice and no proper follow up.

Then I was informed my injections were being stopped, so forgive me if I'm not feeling kindly disposed to doctors at present.

For the record, a family member is a very senior consultant in ICU and as I said, I know several GPs, so I am aware of the situation for doctors.

In my area, medical services are NOT under particular strain

From reading this forum , some contributors here also appear to be very vulnerable ...

WE are your patients too !

[Emmapemma in reply to Ghound]

I'm sorry you've had all that trouble and it's terrible that you got shouted at for going to a&e with a broken wrist, that is not right.

What I felt was a bit off in the first message I responded to was that this person was self injecting anyway so didn't really need to go to the GP but could get injections from GP to do at home. But was trying to somehow make things in to a battle with the GP. Anyway I don't want to argue with anyone, I know a lot of people are not getting the care they should at the moment and all staff at my surgery are really missing the patients and are equally frustrated with not being able to give the care they are used to give.

Look after yourself and hope the arm mends well.

[Ghound in reply to Emmapemma]

Thank you Emma, and please be assured that my rant was not in any way directed at you personally, I don't mean to get into arguments with anyone here.

I know that I and others on this forum are often being vociferous about treatment refused on behalf of others, probably elderly, who don't access the internet or challenge changes to their healthcare.

This applies to " normal " circumstances and not just during this pandemic.

I self inject, but if this problem with general under treatment of PA is not addressed now, I fear for the future if I no longer have the ability or the finances to do this.

I know we all have each others best interests at heart here,

- you take care too x

[helvella in reply to Emmapemma]

If your go surgery is not an amber zone but a blue zone they will not be seeing patients.

Am afraid I have no idea what you are talking about!

What are these zones? (Yes, I did quickly search and got overwhelmed by all the results of numerous coloured zones used for all manner of purposes.)

Is this a system across the whole UK?

[Emmapemma in reply to helvella]

Blue zone only telephone consultations, amber zone patients with no covid symptoms, red zone covid patients

[helvella in reply to Emmapemma]

How do you know what your surgery is?

[Emmapemma in reply to helvella]

I don't know if this is what all surgeries are doing but it's what we are doing in Worcestershire to help eachother out.

You still book in with your own clinic but they may tell you to go somewhere else to have your injection.

We give b12 injections, you just have to say you are symptomatic and you'll be booked in.

But we have been told to reduce all contact with patients which is why it might be more difficult to get your injections.

[helvella in reply to Emmapemma]

Thank you.

[Mariebruce]

Called surgrry today and I am getting my b12 injection next week

[margareta12321]

My surgery have made injections 6 monthly until further notice.No offer of tablets or anything else.Luckily I have my own to use meantime or I would be useless as I can't last more than a month without feeling terrible.

[Nackapan in reply to margareta12321]

Yrscthats the point.We are all struggling to get medics to recognise we are being under treated.

To 'accept' refusal of injections is basically saying you don't need

Fortunately lije yiu I had my own supplies.

Think of the stress abd consequences if we didn't.

I write ect and eventually got a prescription to self inject .

I was worried about getting them back on the NHS abd also wanting hit on my medical notes .

I think it's shameful how so many b12 injections were stopped.

Car parks were used for covid vaccinations

I realise this a very old post

Feels like yesterday though

Hope your surgery went backnto hivjbgbuiu the b12 you need .

All so very short sighted .

It's as though our treatment didn't matter !!