Neuro pain seems worse

Good morning all.

I’ve had my loading doses, 6 over two weeks,then it’s supposed to be one every three months.private endo said functional b12 deficiency guided by the private blood tests results I had given him so asked my new gp to give me loading doses then every three months shot, which credit to gp ,he has acted on the endos advice.

Unfortunately like so many other people by day 3 of loading shots my symtoms had all returned and I did tell the nurses this but they just said never mind by end of loading doses you will feel so much better.

I decided to self inject every other day because I have so many other things going on I can’t cope with confrontation just now and I’m trying to work my way through the worst of things because I can’t get the further testing the endo has recommended because of lockdown,mainly cortisol issues.

I’m finding that the self injecting has increased the burning in my feet and especially my right leg from knee down to ankle and soles of feet.Like everyone I think the guilt of self injecting has made me worry that I’m doing something wrong but my logic tells me I’m not and this is a natural progression.

I think I just need some reassurance at this stage and for someone to tell me yes this is normal.

I’m also supplementing as advised along with the injections,

I can’t wait to have my bloods checked again but unfortunately no sign of Superdrug nurse services reopening to take the blood samples as yet so I’m stuck,I can’t do the finger prick ones I need venous draw.

I just found an old post saying too high folate could cause this type of burning in feet and legs so I think it might be an idea to stop the folate,I’ve been supplementing folate for around 3 months now as it was low and dropping at each blood test so that’s why I supplemented it,ive also read that starting folate supplements too soon if deficient in b12 then starting injections can be bad,it’s very confusing I don’t know if I’m doing things right or not.

Any comments welcome please as always. X

[Nackapan]

Yes keep foinf with the injections. I've felt the same many times.

Tou e reminded me my feet okay now!!

400mcg folic acid is a maintenance dose.

Even that dose took me above range. I think thars unusual though.

Ferritin had been my battle.

Give a certain vitamin regime a peope trial of a few weeks.

If insure have a break.

It is confusing

Bloods like you say a good guidance.

I hope it starts turning round for you .

[Hidden in reply to Nackapan]

My folate shot up quickly after supplementation too and is over range. I have stopped it for a month and will get tested after a 2 month break to see where I am at. Have stopped iron supplements too as after about 2 years and an iron infusion I’m finally there!

[Nackapan in reply to Hidden]

Oh that's good. So maintenance now

[Hidden]

Thanks so much beginner1 and I’m sorry about your balance issues that’s a huge problem to carry,as soon as my b12 shot wears off thats one of the first things I get back with nausea so I really do sympathise with you.

I’ll keep plodding away because mentally I’m having more good days than bad days now I guess like everyone I just doubt my own abilities and need reassurance every now and again so thank you again,fbirder is so clever I enjoy reading his posts.take care stay well xx