Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for May 2020

Help needed with Pernicious Anemia.

Hi. I would like some help regarding pernicious anaemia. History on my diagnosis: In 2011 in May I started feeling numbness in my feet which gradually moved up...

Hi. I would like some help regarding pernicious anaemia. History on my diagnosis...

Zeday

•4 years ago

4 Replies

Side effects of b12?

I started b12 yesterday sublingual and today I feel flushed and burn all over. My heart rate feels increased and I feel shaky. This is after 1 small tablet. Is...

I started b12 yesterday sublingual and today I feel flushed and burn all over. M...

Eva256

•4 years ago

3 Replies

B12 clinic in Netherlands

If anyone knows the fees Dr. Hajo Auwerda charges can you please message me.

Coonass1

•4 years ago

4 Replies

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Intrinsic Factor at top of range

My intrinsic factor antibody test came back at 1.1 (normal range 0-1.1). I was told that because my number is trending upward it should be considered...

My intrinsic factor antibody test came back at 1.1 (normal range 0-1.1). I was ...

walbright

•4 years ago

15 Replies

What types of food and teas can I drink?

You guys help me out so much thank you in advance! Okay I am going back to work, but my body is not taking it well. I am HIGHLY allergic to any type of fish....

You guys help me out so much thank you in advance! Okay I am going back to work,...

mcginnmx

•4 years ago

6 Replies

What's next do I stay on tabs or go back to GP?

I have been having b12 injections for a number of years I do not know whether it's for pa or a deficiency. A few years ago I had to have a stomach resection...

I have been having b12 injections for a number of years I do not know whether ...

Doolallytap

•4 years ago

8 Replies

B12

I recently had the MMA Urine test done and it came back normal. My B12 serum was at 264 pmol/L, i have lots of neurological symptoms. Does the normal mma test...

I recently had the MMA Urine test done and it came back normal. My B12 serum was...

Belalf

•4 years ago

6 Replies

Snakes and Ladders

I've started a new regime of 10 day injections. Sc... sc... IM. I used to get a headache after every injection . Thankfully not as often as not as bad if I do....

I've started a new regime of 10 day injections. Sc... sc... IM. I used to get a ...

Nackapan

•4 years ago

17 Replies

Drawing back air?

After having si for a year now (every other day) today when I have injected I have drawn back air for about 6 times. No air bubbles are going in, so could...

After having si for a year now (every other day) today when I have injected I ha...

nightingale-56

•4 years ago

40 Replies

Stomach acid confusion

Hi all, Im confused, this is easily achieved! As a PA sufferer am I most likely to suffer high or low stomach symptoms. I have an array of symptoms: gas,up and...

Hi all, Im confused, this is easily achieved! As a PA sufferer am I most likely ...

lesley12

•4 years ago

11 Replies

Concern about my B12 levels

I was diagnosed with low b12 in January and received an injection then. I felt better for about a month but then started having symptoms again so I went to a...

I was diagnosed with low b12 in January and received an injection then. I felt b...

merpit349

•4 years ago

6 Replies

CYANOCOBALAMIN injection?

Hi, I have just ordered vitamin B22 injections from Vitamin B12 Online because if difficulties getting my usual one from the Dr. I dont know what I am give by...

Hi, I have just ordered vitamin B22 injections from Vitamin B12 Online because i...

Wellington1

•4 years ago

12 Replies

Recent bmj article - flow chart

Also interesting that the recent bmj article defines a pathway for non-antibody PA for those with b12 levels lower than 200ng/l where no other cause is found.

Also interesting that the recent bmj article defines a pathway for non-antibody ...

Dexy123

•4 years ago

9 Replies

Recent bmj article - patient preferences

Interesting that the recent bmj article on PA indicates that oral versus injection of b12 should be considered based on patient preference and context of...

Interesting that the recent bmj article on PA indicates that oral versus injecti...

Dexy123

•4 years ago

18 Replies

Tablets vs injections

I have been given tablets for every day and prefer them to the injections. I feel great and have asked to stay on them rather than the bi monthly injections....

I have been given tablets for every day and prefer them to the injections. I fee...

valsilverjames

•4 years ago

11 Replies

Please could someone help me understand my blood test results?

Hi all, Apologies if this is inappropriate. I have had some blood tests done yesterday morning and received my results later the same day. The tests were...

Hi all, Apologies if this is inappropriate. I have had some blood tests done ye...

bluetuesday1

•4 years ago

9 Replies

Well, at least I've tried.

Hi All, an update to my previous posts about B12 injections being stopped/ my writing to GP/ phone calls to surgery. I wrote an email to my local MP explaining...

Hi All, an update to my previous posts about B12 injections being stopped/ my wr...

Mewsmom

•4 years ago

40 Replies

B12 and covid

My practice nurse refuses to see me for my 8 weekly b12 saying not worth risk of attending surgery and I can wait for few months as liver stores it! I know...

My practice nurse refuses to see me for my 8 weekly b12 saying not worth risk of...

Blueeyes57

•4 years ago

7 Replies

HGB was low

Hi I’m new here so I just got told my HGB was low 8.4 and dr wants me to get more thorough blood test done and I’m nervous. She asked me if blood disorders in...

Hi I’m new here so I just got told my HGB was low 8.4 and dr wants me to get mor...

Glitterpink07

•4 years ago

6 Replies

Pregnancy

Hi. Daughter 14 weeks pregnant. B12 is 152. Ferritin folate all good. Doctor says not low so just use pregnacare and wont give her b12 tablets either. She had...

Hi. Daughter 14 weeks pregnant. B12 is 152. Ferritin folate all good. Doctor say...

Quigley2005

•4 years ago

9 Replies

Am I missing something?

As some of you will know I've posted on here saying my injections are being stopped to avoid people going into the surgery because of the covid 19 virus,...

As some of you will know I've posted on here saying my injections are being stop...

Mewsmom

•4 years ago

39 Replies

Injection reinstated😁

Just to give hope to others. My vit b12 injections were stopped recently due to covid19 and deemed non essential. After a couple of weeks I began having...

Just to give hope to others. My vit b12 injections were stopped recently due to...

Vitb

•4 years ago

3 Replies

Dizziness After Injection

Hi all I had my second si b12 injection first thing this morning before breakfast, 5 minutes later I went dizzy also my blood pressure had gone high, is this a...

Hi all I had my second si b12 injection first thing this morning before breakfas...

flfair

•4 years ago

12 Replies

BMJ article 9/5/20

This month's BMJ has an interesting article about PA. Three pages of what it is, why it gets missed, why that matters and how to manage it! I was really...

This month's BMJ has an interesting article about PA. Three pages of what it is,...

spacey1

•4 years ago

9 Replies

NORD

IN US we have an organization call NORD (National Organization Of Rare Blood Disorders. Are you familia with org?

IN US we have an organization call NORD (National Organization Of Rare Blood Dis...

babylock

•4 years ago

Be the first to reply

B12 injection reinstated in my case

Hi A post to offer some hope to all of you who have had their B12 injections stopped recently.... I had mine stopped by my GP in light of Covid-19, and they...

Hi A post to offer some hope to all of you who have had their B12 injections st...

clapic

•4 years ago

11 Replies

Had my B12 injection yesterday.

My surgery are still giving B12 injections at the moment. Had mine yesterday, and another booked for August 4th. It's the first time I have been out since...

My surgery are still giving B12 injections at the moment. Had mine yesterday, an...

Mannequin18

•4 years ago

7 Replies

Econsult

Hi All, My GP surgery has decided to use Econsult, an online triage system in future. Link about Econsult. https://econsult.net/primary-care/ Just wondered if...

Hi All, My GP surgery has decided to use Econsult, an online triage system in fu...

Sleepybunny

•4 years ago

14 Replies

B12

Hi My husband as B12 deficiency along with PA and as been shielded by NHS has anyone else with this condition been shielded?

Hi My husband as B12 deficiency along with PA and as been shielded by NHS has a...

231952

•4 years ago

1 Reply

Physician advice for US/Texas

Does anyone have any recommendations of physicians that specifically specialize in b12 deficiency/PA in the United States. I live in Texas and been struggling...

Does anyone have any recommendations of physicians that specifically specialize ...

Coonass1

•4 years ago

1 Reply

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2020

Help needed with Pernicious Anemia.

Side effects of b12?

B12 clinic in Netherlands

Intrinsic Factor at top of range

What types of food and teas can I drink?

What's next do I stay on tabs or go back to GP?

B12

Snakes and Ladders

Drawing back air?

Stomach acid confusion

Concern about my B12 levels

CYANOCOBALAMIN injection?

Recent bmj article - flow chart

Recent bmj article - patient preferences

Tablets vs injections

Please could someone help me understand my blood test results?

Well, at least I've tried.

B12 and covid

HGB was low

Pregnancy

Am I missing something?

Injection reinstated😁

Dizziness After Injection

BMJ article 9/5/20

NORD

B12 injection reinstated in my case

Had my B12 injection yesterday.

Econsult

B12

Physician advice for US/Texas

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