Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for May 2020

Weight loss help

Hi, I am new to having pernicious anemia. I have been trying a diet of red meats,milk, and breakfast cereal( I can’t eat fish due to an allergic reaction). I...

Hi, I am new to having pernicious anemia. I have been trying a diet of red meats...

mcginnmx

•4 years ago

5 Replies

Starting over

Well had my B12 injection went to surgery with my mask and gloves on . The nurse I spoke to was loverly.. .told her how bad my symtoms have worsend due to...

Well had my B12 injection went to surgery with my mask and gloves on . The nurse...

Mozza127

•4 years ago

3 Replies

Insisted that i got my b12 injection !

Just want to encourage people not to give up and you sometimes have to educate health professionals about pa . Also i didn't know that you can have this...

Just want to encourage people not to give up and you sometimes have to educate h...

Donnadancer

•4 years ago

9 Replies

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How often do people SI for PA?

Just wondering how often people SI? I was having mine every 10 weeks for PA but the Doctors are no longer doing B12 appointments. I have received my supply...

Just wondering how often people SI? I was having mine every 10 weeks for PA but ...

FlorencePocket-Owl

•4 years ago

16 Replies

Homocysteine Test

Hi all, I’m going having a Homocysteine test, I started taking b12 oral about two months ago, will it affect the test and should I stop taking it. Thanks

Hi all, I’m going having a Homocysteine test, I started taking b12 oral about t...

flfair

•4 years ago

12 Replies

Dont understand why...

Why is it that everytime i go to the lab to do blood work I feel light headed? Today I went to a lab to do bloodwork my doctor had ordered and I felt a little...

Why is it that everytime i go to the lab to do blood work I feel light headed? ...

Autumn11

•4 years ago

1 Reply

Restless legs

Hi, does anyone suffer with restless legs in bed? Sometimes it can keep me awake for hours.

Hi, does anyone suffer with restless legs in bed? Sometimes it can keep me awak...

lpmsjrb

•4 years ago

15 Replies

High doseB12 patches

Has anyone tried these? My GP has refused injection at the moment, was thinking of trying these as I have PA

Has anyone tried these? My GP has refused injection at the moment, was thinki...

Frankieluca

•4 years ago

10 Replies

At last they listen

After nearly 8 weeks of trying to get my B12 injections restarted my GPS Surgery is finally listening to me .got my first injection tomorrow. ..thank you.

After nearly 8 weeks of trying to get my B12 injections restarted my GPS Surgery...

Mozza127

•4 years ago

4 Replies

Cyanocobalamin 50 mcg

Hi there, got a prescription for cyanocobalamin from doctors on Friday last week but have been told that it is cheapest and lowest quality form of b12 and that...

Hi there, got a prescription for cyanocobalamin from doctors on Friday last week...

sobs1962

•4 years ago

4 Replies

So, no B12 injections until further? notice.

Just had a phone call from my Dr surgery telling me I'm not going to get my b12 injection due this month as they want to limit people attending the surgery,...

Just had a phone call from my Dr surgery telling me I'm not going to get my b12 ...

Mewsmom

•4 years ago

54 Replies

B12 Deficiency

I was diagnosed with B12 deficiency last September and given loading doses but nothing since. I don't want to go to the GP's surgery during lock-down as I am...

I was diagnosed with B12 deficiency last September and given loading doses but n...

marlathome

•4 years ago

2 Replies

B12 tablets prescribed by doctor

My practice is not giving u jections but prescribing high dose b12 tablets 50ugs I think to be taken twice a day then a blood test in three months to see if my...

My practice is not giving u jections but prescribing high dose b12 tablets 50ugs...

Alfabeta

•4 years ago

9 Replies

B12 Lozenges

I was unable to have my B12 jab in April and had started to feel unwell. I looked on PA site and it recommended a few alternatives. I’m not sure if I can...

I was unable to have my B12 jab in April and had started to feel unwell. I looke...

Sound01

•4 years ago

1 Reply

B12 injection

My injection is due today but my go says I cannot have it due to Covid 19 situation and my surgery is closed to visitors. As I don’t absorb vitamins the...

My injection is due today but my go says I cannot have it due to Covid 19 situat...

Londone16

•4 years ago

13 Replies

Purchasing B12 online - suggestions?

Hello everyone! My doctor has prescribed B12 for my PA and my insurance won't cover it. Does anyone have suggestions where to purchase online? I'm in the US. I...

Hello everyone! My doctor has prescribed B12 for my PA and my insurance won't co...

KristinCC

•4 years ago

9 Replies

B12

Does anyone else start to feel so ill when they are nearly due a b12 injection? My injection is the end of may and I’ve already started to feel so poorly and...

Does anyone else start to feel so ill when they are nearly due a b12 injection? ...

Elleeee

•4 years ago

49 Replies

Depleted B12 after surgery

Hi All I had surgery in July 2018 - a long operation with lots of antibiotics (mainly removal of a breast lump - thankfully benign). I have since struggled...

Hi All I had surgery in July 2018 - a long operation with lots of antibiotics (m...

LizWilsonpa

•4 years ago

9 Replies

Vitamins

Still trying to get functioning. I'm trying g a new multivit aimed at post menopausal women. I got it as only multi vit I could find with a low folic acid of...

Still trying to get functioning. I'm trying g a new multivit aimed at post meno...

Nackapan

•4 years ago

12 Replies

B12 ampules from Gold Pharma?

Hi all Hope you’re as well as can be at this time. I have monthly b12 injections via NHS. I’ve been supplementing in between SI using ampules from Gold...

Hi all Hope you’re as well as can be at this time. I have monthly b12 injection...

Sharon75

•4 years ago

22 Replies

B12 injection

I appreciate these are difficult times, so they stop B12 injections as they don't want you at the surgery. Now they're urging parents to get their children...

I appreciate these are difficult times, so they stop B12 injections as they don'...

jenny1106

•4 years ago

3 Replies

Need to get my ferritin levels up, can anyone help me?

Could anyone tell me a very good iron supplement to take that comes without all the nasty side effects. My ferritin is at 20 ngml pretty low and im feeling...

Could anyone tell me a very good iron supplement to take that comes without all ...

Belalf

•4 years ago

10 Replies

B12 RECEIVED

Maybe a silver lining for others but having told me yesterday that my b12 couldn't be done at this time due to covid, and my explanation of being tired and...

Maybe a silver lining for others but having told me yesterday that my b12 couldn...

22Monkey22

•4 years ago

6 Replies

Want to hear from others with lactose intolerant

Ok so my 15 year old daughter had low b12 stores few years back and tested positive to parietal cell antibodies, was put on b12 loading injections then 3...

Ok so my 15 year old daughter had low b12 stores few years back and tested posit...

sbadd

•4 years ago

10 Replies

Vitamin D / covid 19

Hi I have been reading I recently tested for low vitamin D levels... Dose that make you more high risk for covid 19 dose anyone know as I'm worried as I work...

Hi I have been reading I recently tested for low vitamin D levels... Dose that m...

Pippa76

•4 years ago

13 Replies

Terms of Licence??

I know the details are on PA site somewhere but I want to be absolutely up to date with my evidence please. Today I was refused my 8weekky injection because I...

I know the details are on PA site somewhere but I want to be absolutely up to da...

lesley12

•4 years ago

13 Replies

No life

My gp stopped my b12 injections a yr ago because readings where high this is after being on them for 11yrs ,since then my life is sleeping 18-20hr most days...

My gp stopped my b12 injections a yr ago because readings where high this is af...

Libbylou04

•4 years ago

18 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2020

Weight loss help

Starting over

Insisted that i got my b12 injection !

How often do people SI for PA?

Homocysteine Test

Dont understand why...

Restless legs

High doseB12 patches

At last they listen

Cyanocobalamin 50 mcg

So, no B12 injections until further? notice.

B12 Deficiency

B12 tablets prescribed by doctor

B12 Lozenges

B12 injection

Purchasing B12 online - suggestions?

B12

Depleted B12 after surgery

Vitamins

B12 ampules from Gold Pharma?

B12 injection

Need to get my ferritin levels up, can anyone help me?

B12 RECEIVED

Want to hear from others with lactose intolerant

Vitamin D / covid 19

Terms of Licence??

No life

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive