Hi all, I am desperate for Hydroxocobalmin injections (unable to get via GP as not deemed an emergency)
I have tried ordering from Amazon germany as previous posters have advised however they are no longer allowed to post to the UK
Looking at private sites its around £600 which is just ridiculous!!
Any advice would be really appreciated- I know this is the age old problem as SO frustrating.
Have you tried with an amazon account so you dont have to type in tour address. ? Or use PayPal.
Look through the posts . There is a list of german pharmacies
Thanks, they all seem to have stopped delivery to the UK- not sure if this is CV related or not?
Did you try versandapo.de? I received a delivery from them a few weeks ago.
Look at their website via google and you’ll get the option to translate into English. If you use Amazon pay when you checkout it seems to go through easily.
Try versandapo.de login and pay using your UK amazon account.
Or, when you try amazon.de look at the alternative suppliers until you find one that does ship to the UK. It looks like CuraVendi have Rotexmedica B12 Depot in stock and ship to the UK.
Hi,
I copied the info below from a reply I wrote on another thread.
Injections stopped due to pandemic
Have a look at these two links which both have ideas on what to do if jabs cancelled because they are seen as non essential during pandemic.
From PAS website
pernicious-anaemia-society....
There are lots of comments under the posts as well.
From B12 Deficiency Info website
b12deficiency.info/blog/202...
Blog post below asks for people to leave comments if their injections have been stopped due to impact of pandemic.
b12deficiency.info/blog/202...
Most recent blog posts/news items about stopped injections
Published 1st April (sadly not an April Fool joke)
b12deficiency.info/blog/202...
PAS statement published 11th April
pernicious-anaemia-society....
Blog post from B12 Deficiency Info
18th April
b12deficiency.info/blog/202...
Blog post from B12 Deficiency Info
19th April
asks people to join an e-mail campaign
b12deficiency.info/blog/202...
BSH Advice
If you're in UK, be aware that the British Society of Haematology (BSH) has issued advice for doctors during pandemic.
b-s-h.org.uk/about-us/news/...
Click on General Haematology tab in link above
then
Click on BSH Advice on Supplements tab
I feel that some of the details in the BSH advice are concerning, there is a recent thread on forum which discusses this.
I think long term that some UK forum members will struggle to get their jabs reinstated after pandemic has ended.
Some people get injections from private GPs and some find that high strength oral b12 eg tablets, sub lingual lozenges, sprays, drops help a bit. I think most people on here find that injections are more effective than other methods. Some on forum source their own supplies and self inject.
Have you considered joining PAS?
PAS (Pernicious Anaemia Society)
Based in Wales, UK.
pernicious-anaemia-society....
There is a telephone helpline for PAS members to ring.
PAS support groups in UK
pernicious-anaemia-society....
Have you also considered putting any concerns about treatment into a brief, polite letter to GP?
In UK, letters to GP are supposed to be filed with medical notes. Letters could contain symptoms, test results, personal and family medical history, extracts from UK B12 documents/articles, info from PAS etc.
Keep copies of any letters written. It is useful to have a paper trail in case there is a need to complain in the future.
People whose injections have been stopped/delayed may want to think about drawing GPs attention to the potential for permanent neurological damage if a person is under treated.
If people start to suffer deterioration in symptoms due to injections being stopped/delayed/swapped for oral tablets I think it is important to keep GP informed.
If I need to do this I will be writing brief letters informing GP of any increase in/return of symptoms.
Neurological Consequences of B12 Deficiency
PAS news item
pernicious-anaemia-society....
PAS article about SACD, sub acute combined degeneration of the spinal cord, access to PAS members only.
pernicious-anaemia-society.... See Page 2.
At the moment, GP surgeries may argue that these are exceptional times and they cannot offer injections at the surgery. Some on forum have asked their GP surgery if they can be taught to self inject.
WHO (World Health Organisation) classifies B12 as an essential medicine so in my mind, people should not be denied treatment.
Unhappy with Treatment (UK info)?
Letters to GPs about B12 deficiency
b12deficiency.info/b12-writ...
Point 1 in above link is about under treatment of B12 deficiency with neuro symptoms.
CAB NHS Complaints
citizensadvice.org.uk/healt...
MPs
May be worth informing local MP of any difficulties in getting treatment and contacting AMs in Wales, MSPs in Scotland and MLAs in Northern Ireland.
B12 article from Mayo Clinic
ncbi.nlm.nih.gov/pmc/articl...
Suggests
1) No proof that oral b12 is a good at treating B12 deficiency as B12 injections
2) Many current diagnostic tests eg serum b12, active B12, MMA, Homocysteine, are not totally reliable
3) Successful treatment should not be stopped
Symptoms Diary
I think it's worth keeping a daily symptoms diary which tracks changes in symptoms over time and when any treatment is given. It could be useful evidence of deterioration ( or improvement) in symptoms that could be shown/copied to GP if necessary.
I wrote a very detailed reply on another forum thread with links to symptoms lists, causes of b12 deficiency, B12 books, B12 websites, UK B12 documents and other B12 info which you might find helpful.
healthunlocked.com/pasoc/po...
I am not medically trained.
Hi I have just receved an order from Amizon germany ot took 8 days
I ordered from Versandapo.de although the site was in German. If you open the website using Chrome it opens in English.
I paid by Amazon account.
It was a bit fiddly but I already had an account with them from 2 years back, I don’t know if that made a difference.
If you try using chrome and pay my Amazon it should work.
Good luck.
I ordered from vesandapo last week and it was delivered yesterday
B12 Injections 
B12 INJECTIONS
B12 Injections 
