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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for January 2020

Not so NICE guidelines.

The National Institute for Health and Care Excellence (NICE) has a page with "do not do recommendations". They recommend that b12 should not be tested unless a...

The National Institute for Health and Care Excellence (NICE) has a page with "do...

palmier

•4 years ago

15 Replies

B12 deficiency

New here as of today. I started 1000 mcg injections a week ago. I’ve had 5 injections so far but have felt worse than before injections. B12 levels were at...

New here as of today. I started 1000 mcg injections a week ago. I’ve had 5 inje...

crushing

•4 years ago

16 Replies

Allergic reaction or something else

I’m on my 7th injection and the next day I had a lump where I injected and it was a little itchy. Have I done something wrong this time or is it a reaction?...

I’m on my 7th injection and the next day I had a lump where I injected and it wa...

Buttercup1283

•4 years ago

2 Replies

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Update from Martyn Hooper, chair of PAS

Hi All, PAS website has an update from Martyn Hooper about all the things the PAS is doing. It includes 1) talking about PAS helpline and PAS support groups 2)...

Hi All, PAS website has an update from Martyn Hooper about all the things the PA...

Sleepybunny

•4 years ago

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PAS plea for more PAS support groups

PAS news item about PAS wanting more PAS support groups. https://pernicious-anaemia-society.org/support-group/our-member-support-groups/

PAS news item about PAS wanting more PAS support groups. https://pernicious-anae...

Sleepybunny

•4 years ago

3 Replies

To high B12

Hi, I got results and shows that my 7 year old son has a higher level B12 - 1125 ( he don't take any supplement) . Next week I'll be going to gp, but...

Hi, I got results and shows that my 7 year old son has a higher level B12 - 112...

Dahlia88

•4 years ago

20 Replies

DNA RESULTS - out of options ?

I have had my DNA results after a 2-year wait. Only two variants found, of uncertain significance: - MTRR (1102G>A): heterozygous - so considered as...

I have had my DNA results after a 2-year wait. Only two variants found, of unc...

Cherylclaire

Forum Support•4 years ago

6 Replies

folic acid deficiency, already have B-12 deficiency.

I am hoping some one can help me. 48 year old female had B-12 deficiency for 19 years on injections every 10 weeks. This last year i am struggling with...

I am hoping some one can help me. 48 year old female had B-12 deficiency for 19...

Sfaye

•4 years ago

2 Replies

Differences in B12 supplements

Can anyone explain (in simple terms) the difference between Hydroxycolbalamin and Adenosylcobalamin B12 supplements. Is there a ‘better’ one to take or does it...

Can anyone explain (in simple terms) the difference between Hydroxycolbalamin an...

katrina100

•4 years ago

5 Replies

Symptoms not improving

I was having a b12 deficiency so my gp gave me methylcobalamin 500mcg/ml every alternate days(total 10 injections) but i still have some symptoms like...

I was having a b12 deficiency so my gp gave me methylcobalamin 500mcg/ml every a...

utsavjari

•4 years ago

12 Replies

Do I need to treat folate now, or when my b12 levels are ‘normal’?

Hi there! I have finally managed to get my doctor to give me loading doses (after treating me with just one b12 injection as a loading dose). My b12 is 121 and...

Hi there! I have finally managed to get my doctor to give me loading doses (afte...

Misha-

•4 years ago

23 Replies

Difficult to swallow and pressure

Hi there I’m 17 years old and after going to my GP with suspected iron deficiency, my b12 levels came back as very low at 92. After pre loading doses and...

Hi there I’m 17 years old and after going to my GP with suspected iron deficien...

SAM2608

•4 years ago

27 Replies

B12 sublingual spray

Is vitamin B12 taken as a sublingual spray more effective than B12 taken orally

Gsmandin

•4 years ago

9 Replies

3rd

3rd dose of vitamin B12 injection i pray to god that this is gonna make a difference to mylife ? Mind you it couldn’t get much worse or can it ??

3rd dose of vitamin B12 injection i pray to god that this is gonna make a differ...

Queeniz

•4 years ago

6 Replies

Injectable b12

Where can I buy injectable methycolbaminin

coletony54

•4 years ago

6 Replies

Set back/symptoms

I don't have PA, but had low B12 and high homosysteine (which might be caused by certain mutations I now know I have). Was on B12+B6+B1 injection and figured...

I don't have PA, but had low B12 and high homosysteine (which might be caused by...

Justiina

•4 years ago

21 Replies

Tinnitus

Do some painkillers make tinnitus worse? I've had it since ivd been b12 deficient again ths Gp has never given a possible reason for this. I've not been able...

Do some painkillers make tinnitus worse? I've had it since ivd been b12 deficien...

Nackapan

•4 years ago

6 Replies

Received email and concerned about their statement re Vitamin B9 and B12

Hi (I certainly do not want to cause anyone to worry, and admins please delete if necessary.) I received this email from ForefrontHealth which advertises...

Hi (I certainly do not want to cause anyone to worry, and admins please delet...

lucylocks

•4 years ago

18 Replies

Anyone experienced vocal cords palsy due to B12 deficiency?

Hi, Has anyone experienced any vocal cords issues? Google gives only one unique case history. Need to know this very urgently. Thanks in advance.

Hi, Has anyone experienced any vocal cords issues? Google gives only one unique...

nkindia

•4 years ago

9 Replies

Vitamin B12 injections

Ive just done my first B12 injection (fingers crossed) it goes okay. Im not sure how many im meant to take & how often ??

Ive just done my first B12 injection (fingers crossed) it goes okay. Im not sur...

Queeniz

•4 years ago

15 Replies

Regained Sensitivity to Heat

I think just had a surprising development in my recovery from B12 deficiency. For the past 5 years or so I seemed to have lost much of my ability to feel hot...

I think just had a surprising development in my recovery from B12 deficiency. F...

MoKayD

•4 years ago

8 Replies

Confused about symptoms B12 deficiency or menopause?

Hi All I went to the GP with symptoms such as crippling fatigue, low mood, loss of memory and fuzziness and other general menopausal symptoms including what...

Hi All I went to the GP with symptoms such as crippling fatigue, low mood, loss ...

Bella2000

•4 years ago

10 Replies

Trying to order B12 from Germany

I am trying to order injectable B12 for the first time from versandapo. When I get to checkout it is telling me that the address must be in Germany? Is that...

I am trying to order injectable B12 for the first time from versandapo. When I g...

sea55red

•4 years ago

8 Replies

Injections no side effects but the chewable b12 I break out in spots hours later. Is the injections not working?

Here are the ampules and chewable b12 I have been using. The injections I have no side effects whatsoever but the vitamins I breakout in more spots than my...

Here are the ampules and chewable b12 I have been using. The injections I have n...

Buttercup1283

•4 years ago

6 Replies

What can a neurologist do?

I have P.A. and have for a long time been experiencing neurological problems. Most specifically with my balance, dizziness and foot cramps. I visited a...

I have P.A. and have for a long time been experiencing neurological problems. Mo...

Themaid

•4 years ago

12 Replies

Is it all B12d??

Hi there I have been reading through all the posts and I have noticed that when people are diagnosed with B12d they then put every symptom down to this, for...

Hi there I have been reading through all the posts and I have noticed that when ...

Sasical

•4 years ago

41 Replies

Severe Itching of Hands and Feet After Injecting

Hi All After being diagnosed with PA a year ago and completing loading doses, I began IM injecting when GP would only move from 12 weekly to 10 weekly. This...

Hi All After being diagnosed with PA a year ago and completing loading doses, I ...

Awakeshattered

•4 years ago

3 Replies

Cannabis

I am currently SI cyanocobalamin 2x monthly. I understand that if you smoke you should not use this form of injectable. My question .... I vape cannabis in the...

I am currently SI cyanocobalamin 2x monthly. I understand that if you smoke you ...

Freezeframe

•4 years ago

7 Replies

Vitamins

On a recent post we all discussed v0itamin supplements.I dont understand why or how you can get toxicity from vitamin B6 . I've looked at my multivitamin I...

On a recent post we all discussed v0itamin supplements.I dont understand why or ...

Nackapan

•4 years ago

22 Replies

Having Ear pressure, tinnitus, loud noise sensitivity and dizziness from last few days

Its been two months i am injecting, did anyone have the above symptoms. And what can i do for them.

Its been two months i am injecting, did anyone have the above symptoms. And what...

psawant

•4 years ago

12 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2020

Not so NICE guidelines.

B12 deficiency

Allergic reaction or something else

Update from Martyn Hooper, chair of PAS

PAS plea for more PAS support groups

To high B12

DNA RESULTS - out of options ?

folic acid deficiency, already have B-12 deficiency.

Differences in B12 supplements

Symptoms not improving

Do I need to treat folate now, or when my b12 levels are ‘normal’?

Difficult to swallow and pressure

B12 sublingual spray

3rd

Injectable b12

Set back/symptoms

Tinnitus

Received email and concerned about their statement re Vitamin B9 and B12

Anyone experienced vocal cords palsy due to B12 deficiency?

Vitamin B12 injections

Regained Sensitivity to Heat

Confused about symptoms B12 deficiency or menopause?

Trying to order B12 from Germany

Injections no side effects but the chewable b12 I break out in spots hours later. Is the injections not working?

What can a neurologist do?

Is it all B12d??

Severe Itching of Hands and Feet After Injecting

Cannabis

Vitamins

Having Ear pressure, tinnitus, loud noise sensitivity and dizziness from last few days

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive