Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,096 members • 23,248 posts

All posts for January 2020

How frequently do you get B12 injections?

Hi everyone, I've been reading around on here and it got me wondering how often people get their B12 injections? Some folks seem to get them quite frequently....

Hi everyone, I've been reading around on here and it got me wondering how often ...

LauraF1

•4 years ago

10 Replies

Failure to improve

I was diagnosed with PA last September with a B12 of 50. I had my 6 loading doses & initially felt a little better but that didn’t last. I checked the NICE...

I was diagnosed with PA last September with a B12 of 50. I had my 6 loading dose...

Hidden

•4 years ago

34 Replies

Struggle getting up

I’ve been self injecting for about 18 months now I don’t have a set pattern I just inject when I feel I need it sometimes it’s twice a week sometimes I can go...

I’ve been self injecting for about 18 months now I don’t have a set pattern I j...

Coachlady11

•4 years ago

7 Replies

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Scared

On 12/30 I had blood work done due to feeling so tired. I was sure my thyroid was off and it was (hypo) and was given Levothyroxine. But my CBC was really...

On 12/30 I had blood work done due to feeling so tired. I was sure my thyroid w...

linkays

•4 years ago

3 Replies

Colonoscopy and endoscopy

Hi All. I posted on here just before Christmas for some advice as I had blood in my stools. Had PA diagnosed 4years ago. Dr suggested endoscopy and colonoscopy...

Hi All. I posted on here just before Christmas for some advice as I had blood in...

lifegems

•4 years ago

10 Replies

Digestion /stomach symptoms

Those whose digestion was impacted by low b12, did this symptom continue to improve further after loading doses? Mine is much improved, but could be even...

Those whose digestion was impacted by low b12, did this symptom continue to impr...

Roo32

•4 years ago

9 Replies

B12 petition for UK pharmacy sales

Saw this petition on change.org I know it is really important to lots of us and would make a huge difference to many lives. Please sign....

Saw this petition on change.org I know it is really important to lots of us and...

PArunner

•4 years ago

2 Replies

Thyroid

I am new to this but I have thyroid problem where half was removed back in 1994 I have just had a review either I didn't listen properly but apparently it was...

I am new to this but I have thyroid problem where half was removed back in 1994 ...

Marfs

•4 years ago

1 Reply

Folate /b12

When i last wanted my folate level checked and it was added to the blood form the lab automatically did b12 with it. That wasnt on the form. As I dont want...

When i last wanted my folate level checked and it was added to the blood form th...

Nackapan

•4 years ago

25 Replies

Where can I buy Vitamin B complex for intramuscular injections

Hi, just wanting some advise please. I was ill whilst in South Africa last year and was given Vitamin B complex injections as part of my wellness plan. I was...

Hi, just wanting some advise please. I was ill whilst in South Africa last year ...

Volta

•4 years ago

3 Replies

Advice re altering regime

I could do with a little advice please. Around 10 months ago went to doc with leg pains mega tiredness, pins and needles, blurred vision, tinnitus etc etc and...

I could do with a little advice please. Around 10 months ago went to doc with le...

Lurcher-lady

•4 years ago

7 Replies

Whilst on loading doses of B12 which supplements are needed and at what doses?

Does it vary from person to person and what they are getting from their diet? Does the quality of the supplement matter? My husband has been on self...

Does it vary from person to person and what they are getting from their diet? Do...

timmysmom

•4 years ago

9 Replies

Anyone else seem to have some sort of “triggered” intrinsic factor blocking antibody?

I’m 21 years old, an athlete and up until a couple months ago completely healthy. Then I got mono and 12 weeks later the fatigue had not gone away and the dr...

I’m 21 years old, an athlete and up until a couple months ago completely healthy...

merpit349

•4 years ago

10 Replies

Iron specific anemia symptoms

I recently had my b12 loading doses and my understanding is that an iron test can test falsely high, or rather iron levels can suddenly become depleted after a...

I recently had my b12 loading doses and my understanding is that an iron test ca...

Roo32

•4 years ago

6 Replies

Terrible extra fatigue

Since before Christmas I've had crushing fatigue. Sleep 8 hours each night but usually fall asleep after breakfast. Then fall asleep after lunch but usually...

Since before Christmas I've had crushing fatigue. Sleep 8 hours each night but u...

Damseltree

•4 years ago

5 Replies

Painful Injections

Hey guys, I just want to share some info I got from my doctor recently. So normally the nurse gives me the b12 injections (in the upper arm area) and honestly...

Hey guys, I just want to share some info I got from my doctor recently. So norma...

LauraF1

•4 years ago

18 Replies

Restless legs

Hi I was feeling much better on b12 injections after one and half months but from last three days , I am feeling restless legs, is it because of deficiency in...

Hi I was feeling much better on b12 injections after one and half months but fro...

psawant

•4 years ago

23 Replies

3rd time.

Hi folks hope ur coping well. 1st time had my doses I think 2 three times a week then 1 every 2 months I started to feel better then after 2 months it was...

Hi folks hope ur coping well. 1st time had my doses I think 2 three times a wee...

Chance15

•4 years ago

2 Replies

Is one type of b12 better than another?

I am now self injecting and my amazing new (to me)Dr asked what type of b12 I want. I was having cyancobolomin so that is what I went with. Any suggestions?

I am now self injecting and my amazing new (to me)Dr asked what type of b12 I wa...

CW12

•4 years ago

8 Replies

Bruise - after self injection

I posted recently about bleeding after an injection in the leg. Today I gave myself another injection in the leg and it caused some bleeding but after I had a...

I posted recently about bleeding after an injection in the leg. Today I gave my...

CW12

•4 years ago

2 Replies

Increased cancer risk?

I have low-normal (215 ng/L) non-anaemic B12 deficiency, with multiple neurological symptoms. When I queried a consultant about having alternate day B12...

I have low-normal (215 ng/L) non-anaemic B12 deficiency, with multiple neurolo...

Oundle

•4 years ago

34 Replies

3 down 3 to go

Hi had first weeks jabs all three seem to be suffering from a bit of upset stomach just asking does this happen sometimes ,thanks for any help

Hi had first weeks jabs all three seem to be suffering from a bit of upset stoma...

gpw61

•4 years ago

2 Replies

Really confused about b12

Hi all I found out my b12 was 181. The doctor said I would probably need injections. Anyway, time passed and I saw him again. He changed his tune and said he...

Hi all I found out my b12 was 181. The doctor said I would probably need injecti...

Marshmallow3

•4 years ago

3 Replies

Anxiety

Does. Anyone else really suffer with anxiety before their injection is due? I have suffered for almost two years now and it was starting to get better after my...

Does. Anyone else really suffer with anxiety before their injection is due? I ha...

Itchyislander

•4 years ago

1 Reply

Dizziness , tinnitus, blurry vision

How long did takes to get rid of those symptoms. I am having spells of those things once in every two-three days. Its been two months I have started the...

How long did takes to get rid of those symptoms. I am having spells of those thi...

psawant

•4 years ago

1 Reply

New Member

Hi I was diagnosed with pernicious anemia nearly 2 years ago. I get my injection every 12 weeks and take a folate tablet every day. Always around the week 10...

Hi I was diagnosed with pernicious anemia nearly 2 years ago. I get my injection...

Kelly1010

•4 years ago

8 Replies

B12 article in Waitrose Food magazine

Hi, The January edition of Waitrose Food magazine has an article about B12. The article mentioned that Folic acid treatment can mask symptoms of B12 deficiency...

Hi, The January edition of Waitrose Food magazine has an article about B12. The ...

Sleepybunny

•4 years ago

6 Replies

Active B12 levels

I’m currently loading IM fortnightly and have done so since November. My original total b12 level was 93... had loading doses and sent on my way.. someone at...

I’m currently loading IM fortnightly and have done so since November. My origina...

pepperpot99

•4 years ago

1 Reply

Mitochondria and our energy and health

Mitochondria 1,000,s in every cell (except blood cells) many more 1,000s in every cell in high energy requiring organs - Brain, Heart, Eye. Mitochondria...

Mitochondria 1,000,s in every cell (except blood cells) many more 1,000s in ev...

LynneG

•4 years ago

1 Reply

High Homocysteine Level / Folate & Phosphate Deficiency

Hi I am really concerned as my Plasma Homocysteine level is 30 (normal reference range is 0-15). In March 2019 it was flagged up as 17 but its rising! I have...

Hi I am really concerned as my Plasma Homocysteine level is 30 (normal reference...

Sparkle44

•4 years ago

24 Replies

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Various B12D/PA resources

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2020

How frequently do you get B12 injections?

Failure to improve

Struggle getting up

Scared

Colonoscopy and endoscopy

Digestion /stomach symptoms

B12 petition for UK pharmacy sales

Thyroid

Folate /b12

Where can I buy Vitamin B complex for intramuscular injections

Advice re altering regime

Whilst on loading doses of B12 which supplements are needed and at what doses?

Anyone else seem to have some sort of “triggered” intrinsic factor blocking antibody?

Iron specific anemia symptoms

Terrible extra fatigue

Painful Injections

Restless legs

3rd time.

Is one type of b12 better than another?

Bruise - after self injection

Increased cancer risk?

3 down 3 to go

Really confused about b12

Anxiety

Dizziness , tinnitus, blurry vision

New Member

B12 article in Waitrose Food magazine

Active B12 levels

Mitochondria and our energy and health

High Homocysteine Level / Folate & Phosphate Deficiency

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive