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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for January 2020

How long do ampules take to come from Germany?

I finally managed to order 100 hydroxocombalamin ampules from versandapo.de in Germany a couple of days ago after receiving helpful advice on how to from this...

I finally managed to order 100 hydroxocombalamin ampules from versandapo.de in G...

timmysmom

•4 years ago

16 Replies

Low Reticulocyte count?

I've been having symptoms for a while now and a few months ago they led me to believe I may have had a B12 deficiency. I was tested and my B12 levels were 270...

I've been having symptoms for a while now and a few months ago they led me to be...

Harpssss

•4 years ago

8 Replies

Leaving the EU

Will leaving the EU affect the legality of bringing B12 ampules into the UK? I currently purchase it at a high st chemist in Germany when I visit and bring...

Will leaving the EU affect the legality of bringing B12 ampules into the UK? I...

lesley12

•4 years ago

13 Replies

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Cant find supplier that ships to uk!

Tried to purchase b12 from bodfeld & they wont ship to uk- neither will vesandpo

Tried to purchase b12 from bodfeld & they wont ship to uk- neither will vesandpo...

Mogwa

•4 years ago

12 Replies

Hair thinning and bruising.

Hello all. I’ve been on injections (now weekly) for the past 9 months. Lots of my neurological symptoms are nearly gone with my current regime. That said, the...

Hello all. I’ve been on injections (now weekly) for the past 9 months. Lots of m...

tradkita

•4 years ago

12 Replies

aching thighs

hi im new to this condition ,awaiting my first jab on Mon the 6th then every two days for a fortnight .The question does this condition makes your thigh...

hi im new to this condition ,awaiting my first jab on Mon the 6th then every two...

gpw61

•4 years ago

11 Replies

Breathlessness

Does anyone else suffer from breathlessness as a symptom? I was hoping mine would ease with treatment starting, but it hasn’t, it hasn’t even eased. I also...

Does anyone else suffer from breathlessness as a symptom? I was hoping mine woul...

LuluCops

•4 years ago

8 Replies

Serum vs Active

Hello, I had bloods done via medichecks and came out as 89ng/l active b12 on 23/12/19. Spoke to GP had serum b12 2/1/20 result was 344 ng/L. Is the issue...

Hello, I had bloods done via medichecks and came out as 89ng/l active b12 on 23/...

ella2b

•4 years ago

4 Replies

Are b12 levels always high when a patient is on injections or not?

This article below has comments saying that b12 blood levels are always above the upper limit when a patient is receiving injections, and other comments say...

This article below has comments saying that b12 blood levels are always above th...

Roo32

•4 years ago

9 Replies

Itching on face

Hello, i was just diagnosis with pa and i have allready has 5 injections of cyanocobalamin. I am injecting every other day. It's been 2 days now that I am...

Hello, i was just diagnosis with pa and i have allready has 5 injections of cyan...

Azushn

•4 years ago

3 Replies

B12 self injections

Anyone have or used the Union Medico self injection kit Thinking of investing in one Thanks

Anyone have or used the Union Medico self injection kit Thinking of investing i...

Lasue

•4 years ago

2 Replies

Intrinsic factor antibody

Hi guys I’ve just had an intrinsic factor antibody blood test came back as 1.45U/ml with I think a reference range of 0.00-6.00 can anyone explain what that...

Hi guys I’ve just had an intrinsic factor antibody blood test came back as 1.45U...

Pixielula

•4 years ago

6 Replies

B12 injections

Hi what part of the body do you get the b12 injections thanks

gpw61

•4 years ago

8 Replies

Post Xmas set back

I was just wondering if any of you are suffering after the holiday. I've been self injecting for 12 months now almost daily and I thought my breathlessness was...

I was just wondering if any of you are suffering after the holiday. I've been se...

expatkerry

•4 years ago

8 Replies

Dizziness and vertigo kind of feeling

Lately I am feeling very dizzy and sleepy, and when I try to switch my view I feel very short vertigo kind of feeling. Is it normal till the deficiency is...

Lately I am feeling very dizzy and sleepy, and when I try to switch my view I fe...

psawant

•4 years ago

16 Replies

PAS Conference Presentations

Hi All, PAS members can now view PAS conference presentations https://pernicious-anaemia-society.org/conference/watch-the-2019-pas-conference-presentations/...

Hi All, PAS members can now view PAS conference presentations https://pernicious...

Sleepybunny

•4 years ago

2 Replies

Exposure to nitrous oxide

Hi , Came across this article about effects of nitrous oxide on health workers exposed to it. https://academic.oup.com/bja/article/99/6/812/247337 Interesting...

Hi , Came across this article about effects of nitrous oxide on health workers e...

Sleepybunny

•4 years ago

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Why is homocysteine low with B12 deficiency?

So I've had some testing.. My urine MMA is elevated but my homocysteine is low. Before these tests..I was taking methylcobalamin/hydroxy/adenosyl 5mg lozenges...

So I've had some testing.. My urine MMA is elevated but my homocysteine is low. ...

Kimme1029

•4 years ago

30 Replies

B12 methylcobal Shots side effects

Let me honestly admit, post B12 deficiency I was taking methylcobal 500mcg shots and intially had almost no side effects.. I also took 12 straight shots daily....

Let me honestly admit, post B12 deficiency I was taking methylcobal 500mcg shots...

Riseup01

•4 years ago

3 Replies

Starting off the new year Right!!! With a prescription for weekly b12

Just wanted to update that I switched doctors and he gave me a prescription for weekly b12 injection. My last doctor refused, my hemotologist refused but...

Just wanted to update that I switched doctors and he gave me a prescription for ...

CW12

•4 years ago

8 Replies

Low folate

Hello everyone and a happy, healthy, new year! I am posting for a question I have, in case there is someone who knows more than me. I had blood tests around 2...

Hello everyone and a happy, healthy, new year! I am posting for a question I hav...

Hashimoto123

•4 years ago

6 Replies

Why were my injections stopped and my surgical notes removed from my house, then I got iron tablets,I'm always tired and have painful feet,

B12, injection stopped without warning, notes removed, now I'm really ill

Burbank

•4 years ago

2 Replies

My injections were stopped and my notes removed from my house, no reason given and I have been ill and weak ever since. Say vitamin deficit

Ended up in hospital but still ill, wasn't this bad on b12.can hardly walk, feet painful and just want to sleep Given iron tablets,!

Ended up in hospital but still ill, wasn't this bad on b12.can hardly walk, feet...

Burbank

•4 years ago

1 Reply

Sussex UK doctor recommendation

Can anyone recommend a good doctor, nhs or private, for PA management, in West Sussex?

Can anyone recommend a good doctor, nhs or private, for PA management, in West S...

Roo32

•4 years ago

1 Reply

Happy new year

Hope 2020 is a better year for everyone. A fresh look perhaps at lifes challenges. A time to take stock and hopefully move forward in the best way for you. Be...

Hope 2020 is a better year for everyone. A fresh look perhaps at lifes challenge...

Nackapan

•4 years ago

2 Replies

Checking MMA

Would checking my MMA be a good guide, besides improvement of symptoms, as to whether my body was getting enough B12? My MMA was quite elevated at 0.88, when...

Would checking my MMA be a good guide, besides improvement of symptoms, as to wh...

Hidden

•4 years ago

7 Replies

Sameold sameold problem one dose suits all

My doctor seems to think a twelve week dose is sufficient, so now gone from 8 to 12 now suffering from continuing headaches, of course I will need to go back...

My doctor seems to think a twelve week dose is sufficient, so now gone from 8 to...

donpen

•4 years ago

7 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

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Providing advice on safe sources for self injection

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2020

How long do ampules take to come from Germany?

Low Reticulocyte count?

Leaving the EU

Cant find supplier that ships to uk!

Hair thinning and bruising.

aching thighs

Breathlessness

Serum vs Active

Are b12 levels always high when a patient is on injections or not?

Itching on face

B12 self injections

Intrinsic factor antibody

B12 injections

Post Xmas set back

Dizziness and vertigo kind of feeling

PAS Conference Presentations

Exposure to nitrous oxide

Why is homocysteine low with B12 deficiency?

B12 methylcobal Shots side effects

Starting off the new year Right!!! With a prescription for weekly b12

Low folate

Why were my injections stopped and my surgical notes removed from my house, then I got iron tablets,I'm always tired and have painful feet,

My injections were stopped and my notes removed from my house, no reason given and I have been ill and weak ever since. Say vitamin deficit

More questions

Sussex UK doctor recommendation

Happy new year

Checking MMA

Sameold sameold problem one dose suits all

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive