Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for May 2019

IF, H pylori, parietal cell antibody, vitamin b12 deficiency

Hi All, I am new to this group. I am miss diagnosed of not having any issues with various blood tests. I have PA diagnosed my self and cyanocobalamin and...

Hi All, I am new to this group. I am miss diagnosed of not having any issues wit...

Thulasi1

•5 years ago

8 Replies

Oral Sups Vs Injections. Strange Differences

Hey everybody, I'm new here and have a quick question. I'm 31 years old and a 7 year vegan who took proton pump inhibitors (Prilosec) prior to going vegan. I...

Hey everybody, I'm new here and have a quick question. I'm 31 years old and a 7...

lownskater52

•5 years ago

9 Replies

B12 injection

Can anyone help me with some advice I've been having b12 injections every 3 month for the past 18 or so months at the time I had folic acid as that was low the...

Can anyone help me with some advice I've been having b12 injections every 3 mont...

Deborah1961

•5 years ago

10 Replies

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Expiry date July 2019

Hi I have ampoules of hyroxocobalamin that expire July 2019.Does that mean they can be used until the end of the month.Just want to be sure. Thanks in advance.

Hi I have ampoules of hyroxocobalamin that expire July 2019.Does that mean they ...

Chocolate41

•5 years ago

4 Replies

Quickfire questions for those diagnosed with PA

Apologises for all the questions folks but I am loving this community and talking with you all, I have learnt so much in such a short space of time. Curious to...

Apologises for all the questions folks but I am loving this community and talkin...

Lollyloo1978

•5 years ago

9 Replies

Brick wall syndrome

I find it difficult to focus my thoughts on studies or anything important what is this?

I find it difficult to focus my thoughts on studies or anything important what i...

Lurlz

•5 years ago

3 Replies

High levels of active b12

Hi, I’ve recently had a blood test for thyroid issues and the results have come back showing elevated levels of active vitamin b12 (269pmol/L). I’ve never...

Hi, I’ve recently had a blood test for thyroid issues and the results have come...

BorderCollieDex

•5 years ago

6 Replies

Folates sky high

OK so I've been injecting for some 6 months now (my doctors know) as functional B12 deficiency is suspected due to my PA. At first I injected 3 times a week...

OK so I've been injecting for some 6 months now (my doctors know) as functional ...

expatkerry

•5 years ago

7 Replies

Can you have too much B12?

Hi all I'm new to this site. I have PA, diagnosed 2008, but did not start treatment until 2017, because my levels were always good. I also have...

Hi all I'm new to this site. I have PA, diagnosed 2008, but did not start treat...

Mannequin18

•5 years ago

25 Replies

At last l have plucked up courage

I am new here and found a wealth of information from you all as I have lots of problems and having tests which started in 2015 l have Shogrens Syndrome and...

I am new here and found a wealth of information from you all as I have lots of p...

71jp

•5 years ago

2 Replies

Where to b12 ampules

Hi every one who is awake, I have been buying my medication from Goldpharma in Germany but when I went to purchase my usual order B 12 Depot-Rotexmedica 10...

Hi every one who is awake, I have been buying my medication from Goldpharma in ...

MISSNEATS

•5 years ago

12 Replies

INTERPRETATION OF RESULTS

Good afternoon all, now that I am taking the time to actually face reality with my recent diagnosis I wanted your feedback on my results as outlined below. I...

Good afternoon all, now that I am taking the time to actually face reality with ...

Lollyloo1978

•5 years ago

26 Replies

I have been through hell for 5 days with extreme breathlessness and nobody would listen

This is my first post so please be gentle! I can't believe it that two doctors in three separate appointments this week, plus two paramedics, all of whom were...

This is my first post so please be gentle! I can't believe it that two doctors ...

VamboMarbleEye

•5 years ago

6 Replies

When to stop B12 injections ...?

Is there ever a time when to discontinue B12 injections? If no perceived benefit being obtained, what is a reasonable time to give the treatment to work -...

Is there ever a time when to discontinue B12 injections? If no perceived benefi...

cHi13

•5 years ago

13 Replies

b12 shot in arm

hi i’m on my second loading b12 injection which was given in my arms my question Is... Is it normal for them still to be hurting days after i had my first...

hi i’m on my second loading b12 injection which was given in my arms my question...

rr1993

•5 years ago

16 Replies

New Diagnosis

Hi, I have been diagnosed with Pernicious Anaemia B12 deficiency and had my first injection yesterday, gotta go back to docs over the next 2 weeks for 5 more....

Hi, I have been diagnosed with Pernicious Anaemia B12 deficiency and had my firs...

Mazimoo65

•5 years ago

3 Replies

Why is this so difficult to figure out

I’m reading a lot about first symptoms of b12 deficiency and it’s so confusing because it seems like everyone presents with different symptoms. Like it talks...

I’m reading a lot about first symptoms of b12 deficiency and it’s so confusing b...

Meblue

•5 years ago

10 Replies

Gambit62

The post put on to Victoria 1000 was to say it did appear on here so wasn't private. I like to stay on the open forum. I tried to reply to you in norma way...

The post put on to Victoria 1000 was to say it did appear on here so wasn't pri...

Nackapan

•5 years ago

6 Replies

New symptoms

Hi everyone. Diagnosed b12 def Nov. Had the loading 6 doses then every 3 months but I si instead. Every 2 weeks. My question is...is it possible for new things...

Hi everyone. Diagnosed b12 def Nov. Had the loading 6 doses then every 3 months ...

Quigley2005

•5 years ago

6 Replies

Shortness of breath w/exertion - pls help.

Looking for answers to shortness of breath w/little exertion for my mom. She was diagnosed in 2016 with Hashimotos. No longer has it. I think she is still...

Looking for answers to shortness of breath w/little exertion for my mom. She wa...

Africangrey

•5 years ago

2 Replies

How much b12 should be taken in a day?

I got to know from a member of this forum named fbrider that the body can only absorb a limited amount of b12 at a time and it is useless to take enormous...

I got to know from a member of this forum named fbrider that the body can only a...

JhonnyBoy

•5 years ago

8 Replies

How much to supplement to repair neuro damage

So my level was 560 and I realize no doctor is going to think I need shots, but I’m still convinced my problems are b12. How would I get my levels up with...

So my level was 560 and I realize no doctor is going to think I need shots, but ...

Meblue

•5 years ago

7 Replies

Doctors refused any more B12 injections after 5 years

My previous doctor who was dealing with B12 has recently gone on maternity leave and my file has been passed to another doctor. I have been on injections for 5...

My previous doctor who was dealing with B12 has recently gone on maternity leave...

Saraha90

•5 years ago

12 Replies

Where did I go from here - if anywhere. High b12

Hello again everybody. Quick re-cap - b12 deficiency approx 5 years ago no diagnosis but b12 injections started. Gp stopped injections September 2017 because...

Hello again everybody. Quick re-cap - b12 deficiency approx 5 years ago no diag...

Irismay

•5 years ago

5 Replies

Wrong diagnosis

new Here,just wondering if anyone was diagnosed for something else and then it turned out to be a bit b12 defiency?

new Here,just wondering if anyone was diagnosed for something else and then it t...

Mollieharry

•5 years ago

17 Replies

High RBC, low WBC

Hi I’ve been having b12 shots for about a year now due to constantly low b12 that wouldn’t respond to diet or oral supplements. Had a blood test for unrelated...

Hi I’ve been having b12 shots for about a year now due to constantly low b12 tha...

Thisgirl1973

•5 years ago

1 Reply

Diagnosed with B-12 deficiency. Levels normal but still experiencing symptoms. Sound familiar?

I've been diagnosed with a B-12 deficiency. However, my levels are all normal but I'm still experiencing the symptoms. My GP won't prescribe more frequent...

I've been diagnosed with a B-12 deficiency. However, my levels are all normal bu...

RachaelWright1997

•5 years ago

11 Replies

Biolabs

Has anyone used here for blood tests and do they know what ranges they use for active b12 and folate ? Asking for a relative

Has anyone used here for blood tests and do they know what ranges they use for a...

Andypandy30

•5 years ago

1 Reply

Victoria 1000

Hello your message was posted on here. Thank you for vitamin tips. Not heard of the make viridian. Do take solgar iron.my diet is good. Infact the Lamberts...

Hello your message was posted on here. Thank you for vitamin tips. Not heard of ...

Nackapan

•5 years ago

1 Reply

Cocoa

Thank you for tour reply. I think I will try a fixed landline telephone. I will use it on speaker ..only way to tolerate for very short important calls. MobI...

Thank you for tour reply. I think I will try a fixed landline telephone. I will...

Nackapan

•5 years ago

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2019

IF, H pylori, parietal cell antibody, vitamin b12 deficiency

Oral Sups Vs Injections. Strange Differences

B12 injection

Expiry date July 2019

Quickfire questions for those diagnosed with PA

Brick wall syndrome

High levels of active b12

Folates sky high

Can you have too much B12?

At last l have plucked up courage

Where to b12 ampules

INTERPRETATION OF RESULTS

I have been through hell for 5 days with extreme breathlessness and nobody would listen

When to stop B12 injections ...?

b12 shot in arm

New Diagnosis

Why is this so difficult to figure out

Gambit62

New symptoms

Shortness of breath w/exertion - pls help.

How much b12 should be taken in a day?

How much to supplement to repair neuro damage

Doctors refused any more B12 injections after 5 years

Where did I go from here - if anywhere. High b12

Wrong diagnosis

High RBC, low WBC

Diagnosed with B-12 deficiency. Levels normal but still experiencing symptoms. Sound familiar?

Biolabs

Victoria 1000

Cocoa

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