EBV

[JennaShi]

Havent been on here in a while and havent been feeling good. Just recently found out that I have chronic Epstein Barr Virus. This could he causing the low wbc, platelets and stomach problems and possibly caused my parietal cell antibodies to kick into gear. Will be seeing the functional med doctor soon :). Anyone else checked for EBV? It seems to be a common topic in other groups on Facebook. Vitamin B12 levels are staying strong due to supplementation. Not sure if and when to keep checking IF antibodies as last test was negative quite a months ago. Gastro doc doesnt seem to know what autoimmune atrophic gastritis is.

[Hidden]

I got tested for EBV today in an attempt to find out what’s going on with my aches and pains which are not improving with more B12. I have PA.

[JennaShi in reply to Hidden]

I hope you get some andwers out of the test! Have you by any chance tested for Parietal cell antibodies too?

[Hidden in reply to JennaShi]

Yes and was positive for those too

[loves-dogs]

From what I’ve been told by several doctors, EBV is really common. They say almost everybody has it, it’s just a matter of how much it affects your life that determines what you do to live with it.

[Sanders1]

Yes I show a past infection of EBV along with many others. My naturopath put me on Monolaurin (the pellets not capsules).

[LS2274]

Hi,

I became suddenly very ill two years ago. I had very severe symptoms and ended up bed ridden most days. I am a Nutritional Therapist and it was baffling me and my GP. I was tested for an adrenal tumour and when it wasn't that the docs gave up on me. I looked at B12 deficiency and demanded loading shots to see if they would improve my symptoms. My GP agreed even though my serum levels were fine and I found that my symptoms got better and I started self injecting every day. That worked for 6 months and then symptoms started to return. I contacted a London NT that I had worked with who is very experienced. He specialises in viruses and reducing viral load. He retested me (as I had been tested for Lyme) and I came up with HHV6 100% in my cells (Elispot test) and EBV and CMV less severely present.

This is what was causing my illness and the B12 was just palliatory and reducing the peroxynitrate in my system that viruses cause to rise (see the work of Marty Pall PhD and nitric oxide/peroxynitrate cycle)

I truly believe that this is the root cause of most peoples unexplained illnesses and not B12 deficiency as it really did not make sense to me that I needed all this B12.

I am glad that somebody has mentioned EBV and I do think that people need to be tested for viruses and treated.

It has taken a year of treatment and changing up protocols and working with this experienced NT to get any health back and I would say I am 90% better.

I truly empathise with anybody going through what I went through...it is horrendous and you basically lose your life and sometimes the will to live.

Get tested for viruses everybody....I believe its going to be discovered very soon that they are what are playing havoc with peoples health...just the docs aren't there yet.

[Polaris]

I have EBV and as loves-dogs says, I believe it's very common. Whether or not it's definitely connected to PA/B12def./ME/CFS, I wouldn't like to speculate, but it probably doesn't help - I had to SI after two viruses made all symptoms very much worse 🤔 but I continue to slowly improve with B12 treatment.

Anthony Williams in his book, 'Medical Medium', has a similar theory about EBV.

All I do know is that the compelling evidence of mine and my family's medical history, as well as seeing the eventual decline of many vegan and vegetarian friends over the years, convinces me that severe B12 deficiency is an underdiagnosed and serious neurological/psychological condition.

stichtingb12tekort.nl/weten...

[Ecf123]

I have been diagnosed with chronic ebv recently and have symptoms of pernicious anemia but normal instrinsic factor (this doesn’t seem to matter though). Wondering if any leads on this. Going to google Marty pall now

[JennaShi in reply to Ecf123]

Have you tested for Parietal cell antibodies and or had an upper Endoscopy? If you’re curious, I would start there to see if there is a relation. Viral is one thing, out of many, that can cause the immune system to go awry. I have Autoimmune Atrophic Gastritis (diagnosed with both antibodies and upper endoscopy, officially recently). My point for sharing this is that Parietal cells are located in the stomach and are responsible for making stomach acid and Intrinsic factor. Lack or destruction of these will ultimately result in PA as well

[Ecf123 in reply to JennaShi]

I have not had pareital yet. I will do that next. I can’t do an endoscopy, too scary. Let me get the parietal and check back thank you

[JennaShi in reply to Ecf123]

The nice thing about it is that they put you to sleep so you don’t know it’s going on unless you decided to stay awake which I wouldn’t recommend because of gagging (I have the same problem). Typically they say you wouldn’t know you have AIAG because there’s no symptoms unless your anemic but I started researching and talking to people because my stomach was hurting and experiencing chronic Iron anemia and other things. I’ve has the experience of not being taken seriously because of no official diagnosis (didn’t speak up when the first Gastro doc performed endoscopy and he didn’t look for it). I did for the second and they kind of didn’t take me seriously when I talked to the dr before going in but the still did thorough biopsies and caught it, yay!

As far as the gagging, do you get nauseous too? Have you looked into gerd? I think that’s what it’s called. I have frequent belching, gas and bloating too. Are you trying any fermented foods? Might help keep stomach bacteria down and maybe help with the gas. I carry ricola cough drops (regular) every where i go for nausea and upset stomach; gosh they’re great, I don’t know if that would help you but I’m sure others probably have tips and tricks you might find if you post a question about it.

[Ecf123 in reply to JennaShi]

Thanks yes never going under for this. Just had lunch and: coughing, gagging, gas, etc right after. Very scary. I have to get this sorted out. Don’t feel like dealing with doctors because they won’t diagnose it. I’ll just get the parietal and check back. Thank you.

[Ecf123]

I have impulse to gag every time I eat. And then the gas and bloating right after I eat. Im not sure how to deal with this