Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for October 2018

Vitamin D cofactors

Hi everyone. I'd appreciate any comments on whether it is necessary when using a vitamin D supplement to take supplements magnesium, vitamin K, zinc, boron and...

Hi everyone. I'd appreciate any comments on whether it is necessary when using a...

pj16

•6 years ago

5 Replies

Feeling ill after first injection

Hi all, I just want to find out if these feelings I'm having post injection are normal. The GP told me last week that my B12 level is really low (I don't...

Hi all, I just want to find out if these feelings I'm having post injection are...

ruth1988

•6 years ago

8 Replies

Gastroenterology results: need help interpreting please

Got sent a large amount of final Gastroenterology results, and there are some things on it that I need help with, if anyone can read through it, I'd be...

Got sent a large amount of final Gastroenterology results, and there are some th...

Cherylclaire

Forum Support•6 years ago

5 Replies

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Help with results please

Hi I have just had some private blood tests done to check my thyroid. However, it has shown up that my folate is very low. I have made an appointment with my...

Hi I have just had some private blood tests done to check my thyroid. However, ...

Justliloldme

•6 years ago

2 Replies

Self injecting with B12

I have decided, having just come out of yet another fatigue episode with attendant symptoms! that I will try a course of self injected B12 ! i have zero...

I have decided, having just come out of yet another fatigue episode with attenda...

Vonni7

•6 years ago

59 Replies

PAS fundraising and Ileum damage

Hi All, Latest PAS news item, about PAS member entering a marathon. Post mentions that part of her ileum was removed, affecting ability to absorb B12....

Hi All, Latest PAS news item, about PAS member entering a marathon. Post mention...

Sleepybunny

•6 years ago

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No benefit

Just about to finish B12 loading ( basically 3 injections once a week for two weeks ) here in the UK. Do not feel remotely more energetic and just as tired as...

Just about to finish B12 loading ( basically 3 injections once a week for two we...

ITM69

•6 years ago

8 Replies

Should I take Potassium?

I self-inject monthly for PA identified by intrinsic factor antibodies, even though my B12 was still in the normal low range at the time the IFAs were...

I self-inject monthly for PA identified by intrinsic factor antibodies, even tho...

gnnmi

•6 years ago

11 Replies

RE-POSTED: Prolific Spammer STILL Active Across HU Platform. Communicating via Private Message. Do Not Reply. Report to Administrator

All. Re-posting just to let you know that this spammer is still active across multiple HU fora. HU are banning as soon as reported but unfortunately they then...

All. Re-posting just to let you know that this spammer is still active across mu...

Foggyme

Administrator•6 years ago

8 Replies

Gastritis and PA Question

As far as pernicious anemia goes, don't gastritis and autoimmune gastritis both result in the same problems? I realize pernicious anemia specifically refers to...

As far as pernicious anemia goes, don't gastritis and autoimmune gastritis both ...

Galixie

•6 years ago

7 Replies

Wanting to find out what is wrong with me

Elevated anion Gap, GFR low 56, B12 elevated 1701, hemoglobin high, haematocrit high and MCH High. My doctor doesn't seem to think any of this is abnormal

Elevated anion Gap, GFR low 56, B12 elevated 1701, hemoglobin high, haematocrit ...

Kat421

•6 years ago

3 Replies

Prebiotic 'could help banish IBS'

Article in the 'i' yesterday : https://www.pressreader.com/uk/i-newspaper/20181010/281702615669710 Bimuno, the prebiotic has good reviews on Amazon and,...

Article in the 'i' yesterday : https://www.pressreader.com/uk/i-newspaper/20181...

Polaris

•6 years ago

2 Replies

Do my lab results look normal?

I've just got my lab results back from my full blood count and B12 test and am wondering whether they look normal? They appear to fall within the normal ranges...

I've just got my lab results back from my full blood count and B12 test and am w...

Ck12232

•6 years ago

3 Replies

HU users: Warning about scam on the chat line.

I have had a message on the chat line of HU which is clearly a con, regarding the chasing of someone else's fortune through a bank. I don't know who to...

I have had a message on the chat line of HU which is clearly a con, regarding th...

Cherylclaire

Forum Support•6 years ago

11 Replies

Buying B12 injections

Hi there, I'm battling to get a vitamin B12 folate deficiency diagnosis as seems horribly common in the UK and intend to buy B12 injections and all the...

Hi there, I'm battling to get a vitamin B12 folate deficiency diagnosis as seems...

0406

•6 years ago

26 Replies

How often should I self-inject?

I've been self injecting hydroxocobalamin since April 2018. I was diagnosed with B12 deficiency in October 2017, had my six/seven loading doses and then given...

I've been self injecting hydroxocobalamin since April 2018. I was diagnosed with...

Sofiihorrell

•6 years ago

9 Replies

Where to purchase b12 injections online in US?

I live in Illinois. Please help?

cdh027

•6 years ago

9 Replies

Help with converting MMA result

Hi, I just got the test result for methylmalonic acid in urine: Creatinine: 1.78 g/l MMA: 2.6 mg/g creatinine Since I only see MMA mentioned in nmol/l...

Hi, I just got the test result for methylmalonic acid in urine: Creatinine: 1.78...

AmelieV12

•6 years ago

5 Replies

Please I need your help vitamin b12 results High

Hi there please help me with those results . I started to supplement vitamin b12 complex biocare liquid drops 12 drops a day could my vitamin b12 gone so high...

Hi there please help me with those results . I started to supplement vitamin b12...

Ari3

•6 years ago

26 Replies

Where can I order the best b-12 ampules without a script/prescription?

Looking to find a source for b-12 ampules

LadyBanfaith

•6 years ago

1 Reply

Dismissive g.p.’s!

I was diagnosed with PA six years ago. I struggled badly working every day, with colleagues that really didn’t understand the condition- or want to. I’ve now...

I was diagnosed with PA six years ago. I struggled badly working every day, wit...

Frankieluca

•6 years ago

23 Replies

Blood tests/advice

Hi can anyone recommend somewhere to get full blood tests carried out privately? My b12 levels were at 237, I was highly symptomatic.. now they're saying my...

Hi can anyone recommend somewhere to get full blood tests carried out privately?...

Lyndsay80

•6 years ago

9 Replies

Thalassemia

Hi to the community ,i am a female in my 30’s of SE Asian origin living in the UK ,i would like some help in my results i am having difficulty interpreting my...

Hi to the community ,i am a female in my 30’s of SE Asian origin living in the U...

Advice1

•6 years ago

5 Replies

Newbie with questions

Hi I'm new here. I have paritel antibodies present, had further blood tests but everything is low but in range. I have got extensive hair loss and it's gone...

Hi I'm new here. I have paritel antibodies present, had further blood tests but ...

Redmusic

•6 years ago

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Still trying to get a diagnosis

Lots of info mentions numbness and tingling but I have recently developed sharper pains like a single needle jab rather than tingling. Have others experienced...

Lots of info mentions numbness and tingling but I have recently developed sharpe...

Numbsew

•6 years ago

9 Replies

Update on: GP stopping my B12. Replacing with oral B12.

UPDATE: Hi everyone. Thanks to everyone who responded and advised me. I had the telephone consultation with my GP today. I have now had the decision to replace...

UPDATE: Hi everyone. Thanks to everyone who responded and advised me. I had the ...

Holly2201

•6 years ago

8 Replies

Low B12, positive ANA

Hello, I'm new here and seeking advice after another frustrating GP appointment today. I've got tons of tedious symptoms: Sudden, early menopause (HRT hasn’t...

Hello, I'm new here and seeking advice after another frustrating GP appointment ...

BlackInk

•6 years ago

9 Replies

serum b 12 tested today

i had severe migraines due to a wrong supplement and coincidently my b 12 levels were low 2014-180 pg/ml-neurologist put me on 6 shots of methylcobalamin, i...

i had severe migraines due to a wrong supplement and coincidently my b 12 levels...

pinkypop

•6 years ago

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‘Normal’ B12 level but antibodies can it be P.A.?

I am struggling at the moment with chest tightness, shortness of breath and have been to the GP and A&E and understandably investigations have taken us down...

I am struggling at the moment with chest tightness, shortness of breath and have...

Sususulio

•6 years ago

4 Replies

Hello

I am Catriona - B12 deficiency survivor!

Amaranthine

•6 years ago

5 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2018

Vitamin D cofactors

Feeling ill after first injection

Gastroenterology results: need help interpreting please

Help with results please

Self injecting with B12

PAS fundraising and Ileum damage

No benefit

Should I take Potassium?

RE-POSTED: Prolific Spammer STILL Active Across HU Platform. Communicating via Private Message. Do Not Reply. Report to Administrator

Gastritis and PA Question

Wanting to find out what is wrong with me

Prebiotic 'could help banish IBS'

Do my lab results look normal?

HU users: Warning about scam on the chat line.

Buying B12 injections

How often should I self-inject?

Where to purchase b12 injections online in US?

Help with converting MMA result

Please I need your help vitamin b12 results High

Where can I order the best b-12 ampules without a script/prescription?

Dismissive g.p.’s!

Blood tests/advice

Thalassemia

Newbie with questions

Still trying to get a diagnosis

Update on: GP stopping my B12. Replacing with oral B12.

Low B12, positive ANA

serum b 12 tested today

‘Normal’ B12 level but antibodies can it be P.A.?

Hello

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