Just about to finish B12 loading ( basically 3 injections once a week for two weeks ) here in the UK. Do not feel remotely more energetic and just as tired as before. After my ab today, I’m due a jab every 3 months.
Thought I might feel at least a little more energised after this ...
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ITM69
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It can take a while for symptoms to abate. If you have megaloblastic anaemia then it will take a couple of months before your red blood cells become normal. That anaemia can be a major contribution to the fatigue you’re feeling.
Keep a diary of your symptoms. If they’re not improving in another few weeks go see the doc again.
8 months on I'm the same i cut my hours at work i have got nerve damage hope you feel better soon x thfe fatigue is unbearable
Hi ITM69. Hold on to hope. You may well see an improvement in time. I was told it could take up to a year before seeing any significant improvement, depending on how long you have been symptomatic.
I only discovered my diagnosis by accident this year but have been symptomatic for many years. As a result, I am currently self injecting every other day and am beginning to see signs of improvement.
You could also try this option if you remain symptomatic. B12 injections can be easily purchased online. Furthermore, there is something very empowering about taking control of your own health! Good luck.
Thanks, Spogo ... Helpful info. I couldn’t self inject, though - I’m chronically needle-phobic ... I’d never be conscious long enough to see the process through 😄
Wait and see what happens first, ITM69 ....early days yet.
I am like Hidden and self-inject every other day. I've been doing this for a year and improvement very, very gradual. Also not without "blips"- when not sleeping enough or doing too much.
BUT.... most of the people on here are on here because they haven't yet got to where they want to be or are struggling in some way: frequency of doses/ lack of diagnosis mainly I think.
We are all different, which is why GPs and specialists are at a bit of a loss. Latest research (from the Pernicious Anaemia Society) is looking promising - there are answers to be found.
Meanwhile, keep a daily record of symptoms: something easy like a chart where you can see "frequency of symptom" at a glance and give "severity of symptom" a number out of 10. This will help you see any patterns relating to injections/ otherwise and any improvements (even gradual ones) as well as setbacks.
When I need a bit of positivity, I look back at my old diary to see how much difference a year can make.
Don't suffer alone, though: it helps GPs and nurses to see you when you are at your worst, so that at least they know what to look out for in terms of deterioration. You need to be able to trust that they understand your particular condition and set of problems. This is a lot to ask of them because it sometimes goes against their own training and advice that they might be getting from consultants, too.
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