Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for October 2018

Testing Intrinsic Factor and others

Can you test for intrinsic factor while on supplementation? I also have had redux and burning for several years and wonder if the PA test will also be...

Can you test for intrinsic factor while on supplementation? I also have had red...

Shashapoo

•6 years ago

5 Replies

B12 and flu jab

Can anyone advise me if I am entitled to a free flu jab given I have prenious anemia.

Can anyone advise me if I am entitled to a free flu jab given I have prenious an...

Steve687

•6 years ago

27 Replies

Role of B12 and Folate in the Conversion of Homocysteine to Methionine

I thought I would summarise the role of B12 and folate in the conversion of homocysteine to methionine. As you can see in the diagram, methylcobalamin plays no...

I thought I would summarise the role of B12 and folate in the conversion of homo...

fbirder

•6 years ago

11 Replies

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new here - does any of this sound like PA?

hi there, hoping someone may be able to help. I have underactive thyroid so first step whenever I am feeling fatigued is to get that tested - I know by now and...

hi there, hoping someone may be able to help. I have underactive thyroid so firs...

lumpymum

•6 years ago

29 Replies

Anybody had the same experience?

So I normally give blood because I am blessed with a rare blood group. I cancelled my last donation because I had recently had my loading shots for low B12....

So I normally give blood because I am blessed with a rare blood group. I cancell...

RJGFiona

•6 years ago

3 Replies

Sorry to ask again but I need some advice I think I might have taken too much folate or other vitamin/ mineral

Hello again I really appreciate the support you all provide I’m feeling a little anxious as I think I may have taken too much folate I’m seeing my GP in the...

Hello again I really appreciate the support you all provide I’m feeling a litt...

clairemallen123

•6 years ago

8 Replies

PA and Sport

After a few months of feeling quite ill and struggling, I went to my doctor and now two weeks later, I have been diagnosed with PA and am currently half way...

After a few months of feeling quite ill and struggling, I went to my doctor and ...

wiganer123

•6 years ago

3 Replies

Please help decipher these results. Prior to b12 injection, 3 months ago,my b12 was 93 and my folate 5.8. I still have low b12 symptoms. Jx

Test resultSerum TSH level Report, Normal, No Further Action (Patient Informed) Coded entrySerum TSH level Coded entrySerum TSH level 1.68 miu/L [0.38 -...

Test resultSerum TSH level Report, Normal, No Further Action (Patient Informed)...

Bornactor

•6 years ago

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Diagnosed with b12 deficiency

Hi everyone I have been diagnosed with b12 deficiency as I have been feeling like I have no energy and I have to sleep all the time I even feel tired when I...

Hi everyone I have been diagnosed with b12 deficiency as I have been feeling lik...

Ningy13

•6 years ago

7 Replies

The 2 year store of B12.

Hello All, I have been trying to understand the B12 store as we are always being told by the doctors. As I understand it - and I may be wrong, we are born with...

Hello All, I have been trying to understand the B12 store as we are always being...

EVMD

•6 years ago

6 Replies

More B12????

Could someone please tell me if it's a good idea to have more B12 injections when recovering from a virus, would it help or not..... Thanks in advance for any...

Could someone please tell me if it's a good idea to have more B12 injections whe...

Frances55

•6 years ago

5 Replies

Pernicious anaemia

Hi all I have pernicious anaemia and always tried love to exercise but found it hard I have no friends with this and to be fair not one of them understand how...

Hi all I have pernicious anaemia and always tried love to exercise but found it ...

Shellbes

•6 years ago

6 Replies

methylmalonic acid test in diagnosis - help needed please

Hi Everyone, This is my first post so your guidance welomed. Saw GP with increasingly worse neurological symptoms of hip/leg and hand numbness (blood test 150...

Hi Everyone, This is my first post so your guidance welomed. Saw GP with increa...

brionybritbird

•6 years ago

7 Replies

Please help me decipher these results. These are taken 3 months after having the loading dose of b12 injections. Original-b12 93, folate 6

Test resultSerum TSH level Report, Normal, No Further Action Coded entrySerum TSH level 1.68 miu/L [0.38 - 5.33] Test resultFull blood count Report,...

Test resultSerum TSH level Report, Normal, No Further Action Coded entrySerum ...

Bornactor

•6 years ago

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b12 myelin repair

thanks gambit 62 and foggyme -sorry to have bothered you with many queries . i have just one last question . vitamin b 12 should be bound to TC 2 for myelin...

thanks gambit 62 and foggyme -sorry to have bothered you with many queries . i h...

pinkypop

•6 years ago

12 Replies

B12 absorption

Hi All I read this on the NIH website. Is it true that, by eating foods fortified with b12, one can overcome the problem of insufficient stomach acid? Is so,...

Hi All I read this on the NIH website. Is it true that, by eating foods fortifie...

Alfabeta

•6 years ago

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Help with PAS Parliamentary Reception

Hi All, PAS are asking PAS members in UK to contact their MPs to invite them to PAS parliamentary reception Nov 1st 2018....

Hi All, PAS are asking PAS members in UK to contact their MPs to invite them to ...

Sleepybunny

•6 years ago

5 Replies

Chest pain

Hi I have recently started taking b12 injections an I’m suffering with heart palpitations and chest pain . I am also getting short of breath too! The doctors...

Hi I have recently started taking b12 injections an I’m suffering with heart pal...

Annab124

•6 years ago

7 Replies

Help at my wits end now.

How often can you have B12 injections from GP surgery as I find my 12 weekly one does nothing for me I’m a 64 yr old female with Pericious Anaemia and...

How often can you have B12 injections from GP surgery as I find my 12 weekly one...

Liz061254

•6 years ago

9 Replies

Frequent urination

Just an interesting thing i noticed. Before my infusion and b12 i was urinating constantly. I thought my blood sugar was high. Up several times a night etc....

Just an interesting thing i noticed. Before my infusion and b12 i was urinating ...

Gardeningbuff

•6 years ago

6 Replies

what to do

My husband starting feeling ill about 6 months ago with lots of belly pain, constipation, tiredness, confusion and irritability. After lots of tests and some...

My husband starting feeling ill about 6 months ago with lots of belly pain, cons...

catb12

•6 years ago

7 Replies

B12 injections / heart

Hi I started on b12 injections back in July and since the end of August I started suffering with shortness of breath and chest Pain daily ! My gp thinks it’s...

Hi I started on b12 injections back in July and since the end of August I starte...

Annab124

•6 years ago

3 Replies

Desiccated liver pills

Hi, have any of you taken desiccated liver pills to help with Vitamin B 12 deficiency?

Hi, have any of you taken desiccated liver pills to help with Vitamin B 12 defic...

Hambledonia

•6 years ago

8 Replies

B12 injections - How long before you have relief?

Hi just wondering when people started to feel better after taking b12? I’m currently on loading dose, 2 injections a week for 5 weeks. Have lots of...

Hi just wondering when people started to feel better after taking b12? I’m curre...

AshlingMC

•6 years ago

4 Replies

b 12 stopped working after the sixth shot

i have migraines and my neuro suggested b 12 . My levels were low at 180 pg /ml - i was asked to take 6 shots -migraines greatly improved -i got 50 percent...

i have migraines and my neuro suggested b 12 . My levels were low at 180 pg /ml ...

pinkypop

•6 years ago

5 Replies

Made a decision to have further tests done

Hi all. Following a horrible week of symptoms I've finally decided to take charge of my own health and have further tests done. I have benefitted massively...

Hi all. Following a horrible week of symptoms I've finally decided to take charg...

pj16

•6 years ago

1 Reply

Fed up of being exhausted

I’m new on here and hope that I m not alone in the way I am feeling. I am now on 3 monthly injections and have already took a course of 3 months of folic acid...

I’m new on here and hope that I m not alone in the way I am feeling. I am now on...

AngelSarah1980

•6 years ago

1 Reply

8 years of anemia despite PA diagnosis and consistent treatment

This will be quite long as my history with anemia has been ongoing and frustrating for years (as well as confounding to my doctors). I was diagnosed with PA 8...

This will be quite long as my history with anemia has been ongoing and frustrati...

Bandit224

•6 years ago

9 Replies

Need help on b12

Hi guys, Diagonised low b12 levels of 150. I’m on injections now. I was just wondering what cofactors should I be aware of? Also what else should I be...

Hi guys, Diagonised low b12 levels of 150. I’m on injections now. I was just w...

Shannonf247

•6 years ago

4 Replies

Newly diagnosed, but long time sufferer

Dear all ... I hope you can all help to shed some light on the following. I recently had a raft of blood tests after many, many years of avoiding them (...

Dear all ... I hope you can all help to shed some light on the following. I rece...

ITM69

•6 years ago

9 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2018

Testing Intrinsic Factor and others

B12 and flu jab

Role of B12 and Folate in the Conversion of Homocysteine to Methionine

new here - does any of this sound like PA?

Anybody had the same experience?

Sorry to ask again but I need some advice I think I might have taken too much folate or other vitamin/ mineral

PA and Sport

Please help decipher these results. Prior to b12 injection, 3 months ago,my b12 was 93 and my folate 5.8. I still have low b12 symptoms. Jx

Diagnosed with b12 deficiency

The 2 year store of B12.

More B12????

Pernicious anaemia

methylmalonic acid test in diagnosis - help needed please

Please help me decipher these results. These are taken 3 months after having the loading dose of b12 injections. Original-b12 93, folate 6

b12 myelin repair

B12 absorption

Help with PAS Parliamentary Reception

Chest pain

Help at my wits end now.

Frequent urination

what to do

B12 injections / heart

Desiccated liver pills

B12 injections - How long before you have relief?

b 12 stopped working after the sixth shot

Made a decision to have further tests done

Fed up of being exhausted

8 years of anemia despite PA diagnosis and consistent treatment

Need help on b12

Newly diagnosed, but long time sufferer

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