Hi guys
Off and on for the last few years I've been suffering with what they now believe could be chronic fatigue / M.E. I have seen 3 doctors and its honestly really upsetting some of the things that they've said and dismissed so far. I just feel like nobody cares how much this is completely taking over, what was, such a happy life.
I spend hours doing my own research in the hope of finding something and a pain therapist gave me the book "could it be b12? the epidemic of misdiagnosis" I was shocked but also fascinated by the book. That led me to this group.
My b12 came back as 290 so ok on their range and none of the further tests for b12 were done. My red blood cells were just in the higher end of the range by 0.4 and no folate was done.
Has anyone on here been in this situation, with an unhelpful gp that could give me any advice please?
Ideally if someone has been here themselves to give me some hope i might be on to something. Ideas on things I can do myself, ideas of what direction to point the gp in next time they shrug their shoulders as they dont know whats wrong.
Feeling hopeful, thanks in advance!xx
You may wish to read my reply further up !
There are lots of possible causes of fatigue. B12 deficiency is just one.
But fatigue is only one of the symptoms of a B12 deficiency. Do you have any of the others? If so then you should ask your doctor to give you a trial of B12 injections and test you for Intrinsic Factor antibodies. If the antibody test is positive or if the injections improve the symptoms then you should have injections for life.
hey.nhs.uk/wp/wp-content/up...
I have lots of symptoms for chronic fatigue but unsure fully on b12 symptoms.
My mains symptoms are Muscle pain and weakness, unable to carry out very simple task without causing fatigue, lightheadedness
Tight chest
Bloating
Blurry vision
Sore throat
Pale skin
Low blood pressure
Brain fog/concentration problems
Light sensitivity
Weight gain whilst eating well.
I have an appointment coming up so can the nhs still give b12 injections even if I call into their normal range. I would be so happy if they would at least try it if they don't really seem to have any other avenue they're headed for the cause.
Thanks for the link I will have a read.xx
Have you had your thyroid correctly tested ?
thyroiduk.org
I've had it tested yes and it was 4.67. I assume it's been done correctly, although an osteopath did say I should get them to repeat it to check consistency.
TSH in a healthy person should be around 2. You have not had the correct testing as TSH is a Pituitary Hormone and does not tell you what is happening with the Thyroid. You also need the FT4 - FT3 and Thyroid Anti-bodies TPO & Tg - tested to rule out Hashimotos. This is how so many people are missed and continue to struggle. The NHS rarely if ever test the FT3 and only one anti-body TPO - it is a scandal and 1,000's are forced to have Private Testing. If you are in a position to have your tests done privately then I can send you the link. Happy to help ...
thyroiduk.org