Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,225 members • 23,393 posts

All posts for June 2018

High level of B12

Hello, six month earlier I had my B12 2900 while I was supplementing with B12. Yesterday I had my B12 results 1950, still too high. I've been told that this...

Hello, six month earlier I had my B12 2900 while I was supplementing with B12. Y...

Stanleyfarah

•6 years ago

1 Reply

Post menopausal and I have iron deffeciency anemia and asthma

Following a recent endoscope and colonoscopy we thought the cause of the internal bleeding had been identified. They found a very large polyp which was removed...

Following a recent endoscope and colonoscopy we thought the cause of the interna...

Chezza1777

•6 years ago

9 Replies

PAS research request

Request for people to take part in UK research on experiences of living with PA....

Sleepybunny

•6 years ago

4 Replies

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Losing muscle strength fast.

I have PA and Hashimotos. In the last year my general strength has reduced noticeably, e.g. I feel as if I could dislocate my fingers easily! Very odd and...

I have PA and Hashimotos. In the last year my general strength has reduced noti...

sirlam

•6 years ago

3 Replies

New (possible) diagnosis

Hello all. I have been feeling incredibly tired for months, maybe longer, and have been attributing it to some extreme stress at work over the last six months...

Hello all. I have been feeling incredibly tired for months, maybe longer, and ha...

Csl1

•6 years ago

16 Replies

B12 deficiency - more frequent injections

Hi all, newbie here :-) I was diagnosed with b12 deficiency in January after months of feeling rotten. Initially I was pleased it was 'nothing serious' and...

Hi all, newbie here :-) I was diagnosed with b12 deficiency in January after mo...

TiredMomma

•6 years ago

32 Replies

High B12 after shot

Hello! I was diagnosed with Hoshimotos/hypothyroid in January of 2015. Then diagnosed with autoimmune premature ovarian failure a year later. At the time of...

Hello! I was diagnosed with Hoshimotos/hypothyroid in January of 2015. Then diag...

Hormone-mess

•6 years ago

4 Replies

Methyl Cobalamin Injections

I have been caring for my wife full time for several years now. We are both in our mid 70's and we have been together since our mid teens. Her illness started...

I have been caring for my wife full time for several years now. We are both in o...

45hillbilly

•6 years ago

11 Replies

London Dietician?

I was diagnosed with PA & gastritis last June & have been SI since then. Also have low B6 & iron levels. Also now seem to have developed lactose intolerance --...

I was diagnosed with PA & gastritis last June & have been SI since then. Also ha...

jkiron

•6 years ago

2 Replies

Low blood pressure

Hi everyone My blood pressure appears to begetting Lower and lower today’s 71/56. I inject twice a week now as I don’t seem too survive on one anymore....

Hi everyone My blood pressure appears to begetting Lower and lower today’s 71/...

Patjamber

•6 years ago

3 Replies

Cold sores ??

Have been having B12 injections for about one year, the last twice I have had cold sores on my lip and in my nose within 2 days of being injected. Does this...

Have been having B12 injections for about one year, the last twice I have had co...

Nannyk4th

•6 years ago

2 Replies

Where do I find literature which says if no other cause of B12 Deficiency is found then assume that you have pernicious anaemia?

I am due to see the occ health at work this morning and have printed off loads of info from the pa website. All the info talks about pa not B12 Deficiency. I...

I am due to see the occ health at work this morning and have printed off loads o...

Padders12

•6 years ago

6 Replies

High ferritin

My husband has PA with macrocytosis. His ferritin at his latest blood test was 681ng/ml but no iron saturation test was done. He is on 3 monthly injections of...

My husband has PA with macrocytosis. His ferritin at his latest blood test was 6...

ABC852031

•6 years ago

2 Replies

What's next?

Hello, all. I'm a 45 year-old woman new to this forum. I'm suffering from fatigue (annoying, not debilitating) and in the last 3-4 weeks suddenly lost enough...

Hello, all. I'm a 45 year-old woman new to this forum. I'm suffering from fatigu...

aggleflaggle1045

•6 years ago

7 Replies

B12

I have been diagnosed with a severe B12 difficency. I have just had my last booster jab but am being refered to an endocriniologist because my gp has ruled out...

I have been diagnosed with a severe B12 difficency. I have just had my last boos...

laura726

•6 years ago

4 Replies

B12 injection and kit have arrived!

I posted earlier for advice on the order I’d made from the Australian supplier. I ordered last Monday late at night and they’ve arrived today! Now need to gear...

I posted earlier for advice on the order I’d made from the Australian supplier. ...

SuSan78

•6 years ago

2 Replies

Vit d and b12 results help needed

Hi I’m 34 male. Had 10 weeks off work been working 12hours a day some times more self employed Monday to Saturday and Sunday is Day with the kids Over a period...

Hi I’m 34 male. Had 10 weeks off work been working 12hours a day some times more...

Ste143

•6 years ago

42 Replies

I did it! I self injected under the eye of the nurse...but need some needle help.

I did it! I self injected under the eye of the nurse...but now desperately need some help regarding needles...Practice nurse has given me 5 but I need to self...

I did it! I self injected under the eye of the nurse...but now desperately need...

Katherine123

•6 years ago

26 Replies

Self-injection and holidays: how do you do it ?

I'm still injecting B12 every other day, and this, along with taking multivitamins and minerals, extra folic acid and vitamin D seems to be the only way to...

I'm still injecting B12 every other day, and this, along with taking multivitami...

Cherylclaire

Forum Support•6 years ago

5 Replies

23 and Me

Hello, I saw a post on here a while back about what to do with 23 and Me results once you get them. I think it was a program they had to be run through or...

Hello, I saw a post on here a while back about what to do with 23 and Me results...

Mlkirk

•6 years ago

3 Replies

B12 deficiency- are my symptoms normal

I am currently having loading shots after being diagnosed with B12 deficiency, and just wondering if any of us following symptoms could be caused by this, and...

I am currently having loading shots after being diagnosed with B12 deficiency, a...

Yellowkangaroo

•6 years ago

11 Replies

More on poo and parasites - "The Wonders of the Immune System"

Just listened to this really interesting and far from dull scientific programme on the immune system. Professor of Immunology and Public Engagement at the...

Just listened to this really interesting and far from dull scientific programm...

Polaris

•6 years ago

4 Replies

Can You Absorb SI Methyl Without Intrinsic Factor?

Do you still need to have the Intrinsic Factor if self injecting with Methylcobalamin? Simple question I know but have looked for answers but very foggy...

Do you still need to have the Intrinsic Factor if self injecting with Methylcoba...

Sallybones

•6 years ago

14 Replies

WHat VIT B12 injection what’s the best one can I ask GP for privately, or do I get a B complex as well ? Got GP in few hours !

I have an appointment with my GP today, I want to ask her for a private prescription for B12 injections , what type shall I ask for , I have MTHFA genetic...

I have an appointment with my GP today, I want to ask her for a private prescrip...

Pascha1

•6 years ago

6 Replies

How long for b12 supplements to work?

How long does it take for b12 supplements to start making even the slightest affect? I’ve taken two 500ug tablets daily for the past 13 days and so far haven’t...

How long does it take for b12 supplements to start making even the slightest aff...

mand82

•6 years ago

10 Replies

Slow body

I noticed trcontly that my body is very slow and timid, any I suspect it is because of nerve system involvement. I have slow reaction TT times and wouldn't...

I noticed trcontly that my body is very slow and timid, any I suspect it is beca...

Ela1

•6 years ago

1 Reply

Supplements

Today I finally had my first b12 injection! Ouch... however I asked the nurse about other supplements and she said they don’t give her enough appointment time...

Today I finally had my first b12 injection! Ouch... however I asked the nurse ab...

Thisgirl1973

•6 years ago

2 Replies

Blood results help please

Hi- I have posted all my previous results on thyroid uk, I have numerous longstanding symptoms such as exhaustion, headaches, anxiety, ibs, skin problems. My...

Hi- I have posted all my previous results on thyroid uk, I have numerous longst...

Chris1802p

•6 years ago

5 Replies

How often should I use Yuliv B12 nasal spray

I have injections every 8 weeks, but even that doesn't keep my B12 particularly high (I had a blood test the day before my last injection, and it was approx...

I have injections every 8 weeks, but even that doesn't keep my B12 particularly ...

petal02

•6 years ago

3 Replies

Newly diagnosed.. anemia goes full circle.

I went for genetics testing and things went full circle... on examination and full Hx and Px, Hx having severe RLS and lifetime of fatigue and anemia, and...

I went for genetics testing and things went full circle... on examination and fu...

Milescircus

•6 years ago

13 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2018

High level of B12

Post menopausal and I have iron deffeciency anemia and asthma

PAS research request

Losing muscle strength fast.

New (possible) diagnosis

B12 deficiency - more frequent injections

High B12 after shot

Methyl Cobalamin Injections

London Dietician?

Low blood pressure

Cold sores ??

Where do I find literature which says if no other cause of B12 Deficiency is found then assume that you have pernicious anaemia?

High ferritin

What's next?

B12

B12 injection and kit have arrived!

Vit d and b12 results help needed

I did it! I self injected under the eye of the nurse...but need some needle help.

Self-injection and holidays: how do you do it ?

23 and Me

B12 deficiency- are my symptoms normal

More on poo and parasites - "The Wonders of the Immune System"

Can You Absorb SI Methyl Without Intrinsic Factor?

WHat VIT B12 injection what’s the best one can I ask GP for privately, or do I get a B complex as well ? Got GP in few hours !

How long for b12 supplements to work?

Slow body

Supplements

Blood results help please

How often should I use Yuliv B12 nasal spray

Newly diagnosed.. anemia goes full circle.

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